The many emotions of living with sickle cellThere are many aspects of sickle cell that bring up strong emotions for warriors. What emotions are you currently feeling and why?...reactions3repliesCopingMental Health
Emotional Support AnimalsDo you have an animal that comforts you when experiencing pain or mental health issues due to your disease? Share about them...reactions1replyCoping
Music TherapyHave you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found...reactions6repliesCopingTips & Advice
Do you know any Ridiculous Myths about Sickle CellWhat are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is...reactions11repliesAwareness
FeaturedWhat do you want your caregivers to know?What's the #1 thing friends and family members can do to support you (something they may not think of) in your sickle...reactions1replyCaregiving
How to take care of a child living with sickle cell as a motherA have a 4yrs old son living with sickle cell and it as not been an easy one,need advice and counsel on...reactions4repliesAssistive Devices
Things never to say to a warriorLast week's article talked about things you should never say to a warrior. What would you add to the list, or what...reactions1replyCoping
Controlling thoughts while in pain.What are some of the thing that go through your mind when you are down/sick due to SCD? ...reactions1reply
COVID 19Have you had your Covid 19 vaccination already? Do you think it’s safe for SCD patients to take the COVID 19 vaccine?...reactions4replies
CopingDo you find it difficult to sustain your relationships because of sickle cell?? How do you cope with lonely days?...reactions5repliesCoping