How do you like to hydrate?As the weather heats up, hydration becomes even more important. Do you have a favorite way to hydrate? Plain water? Sparkling water? Water with add-ins (like fruit or herbs)? Electrolyte...Reactions 0 reactions Comments7 repliesDiet & Nutrition
How do you deal with the Jaundice that sometimes comes with have SSC?Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...Reactions 0 reactions Comments3 repliesAssistive DevicesDiet & NutritionTips & Advice
Mental Health MonthMay is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it?...Reactions 0 reactions Comments5 repliesAwarenessCopingMental Health
What are your summer triggers?Are there things that you have to watch out for in the summer time, or is your disease better managed?...Reactions 0 reactions Comments0 repliesCopingTips & Advice
2 Questions about this graph: (please view graph)For context this graph is about 2 patients who received a CTX001 infusion. (CRISPR-Cas9 treatment) One month after infusion HbA skyrockets. Why is this and is this a problem? In...Reactions 0 reactions Comments1 repliesResearch & Clinical TrialsSide EffectsSymptoms
my life so farhi my name is Joshua i am from Kenya i was born with Sickle cell anemia i am 18 but i have not experienced puberty i am always discriminated even...Reactions 0 reactions Comments1 replies
Women's History MonthWhat are some unique challenges women with sickle cell face?...Reactions 0 reactions Comments6 repliesAwarenessCoping
Sc disease - Sickle cellNot sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of doing testosterone replacement therapy but I don’t know...Reactions 0 reactions Comments2 repliesDiet & NutritionDiagnosis
2nd Sickle Cell In America SurveySickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...Reactions 0 reactions Comments0 repliesAwareness