Controlling thoughts while in pain.What are some of the thing that go through your mind when you are down/sick due to SCD? ...Reactions0reactionsComments1 replies
COVID 19Have you had your Covid 19 vaccination already? Do you think it’s safe for SCD patients to take the COVID 19 vaccine? What are your fears when it comes to...Reactions0reactionsComments4 replies
CopingDo you find it difficult to sustain your relationships because of sickle cell?? How do you cope with lonely days?...Reactions0reactionsComments5 repliesCoping
World sickle cell awareness monthI am so excited about world sickle cell awareness month.. Can’t wait to experience the power of all you amazing warriors.. it’s going to be so colorful . I can...Reactions0reactionsComments0 repliesAwareness
WHAT MAKES ME A WARRIORI am a warrior because I am happy and live my best life even though sickle cell gets in the way too many times. What is your warrior phrase? WHAT...Reactions0reactionsComments3 repliesCoping
Money Problems Because of Sickle cell?What are some of the things you need but can't afford because of Sickle cell? Have you ever been in serious money troubles?...Reactions0reactionsComments2 repliesCost
UNCOMMON TRIGGERS Aside weather,climate,stress and anemia which are the main known triggers for crises, what other triggers do you have? Mine is dust and I still don’t know why…....Reactions0reactionsComments8 repliesAwareness
Grief and Denial? How do you deal with the loss of a warrior that appeared stronger than you in all aspects? The warrior that encouraged me to share my story passed on and...Reactions0reactionsComments6 repliesMental Health
Awareness Month Forum: Be A Change MakerFor the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and make a change for future generations. What is...Reactions0reactionsComments3 repliesAwareness
How has a shorter life expectancy impacted you?A fellow warrior wrote a great article this week about life expectancy. Has this part of your disease changed the way you live your life? Are you more daring? Do...Reactions0reactionsComments2 repliesCoping