Life with Sickle Cell in a Warmer Paradise: My Journey to WellnessLiving with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...
Sickle Cell Advocacy and ActivismToday, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...
Withdrawing from Those Around MeWhen my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...
Life with Sickle Cell in a Warmer Paradise: My Journey to WellnessLiving with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...
Sickle Cell Advocacy and ActivismToday, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...
Withdrawing from Those Around MeWhen my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...
Life with Sickle Cell in a Warmer Paradise: My Journey to WellnessLiving with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...
Sickle Cell Advocacy and ActivismToday, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...
Withdrawing from Those Around MeWhen my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...
My Medical Massage ExperienceI try to treat myself periodically to a massage technique called medical massage from a licensed medical massage therapist. A massage therapist rubs and kneads the soft tissues of your...Reactions0reactionsComments4 comments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions like sickle cell disease often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating are frequent side effects too. That...Reactions0reactionsComments0 comments
Featured forum New FDA treatment for SCDThe US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions0reactionsComments9 replies
Featured story A Period of PainRecently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the only thing u hear from friends and family...Reactions0reactionsComments1 comments
