Restless Legs Syndrome in Children with Sickle Cell DiseaseRestless legs syndrome (RLS) is a neurological condition that disrupts sleep in children and adults. That is why it is also called...reactions3comments
A Dad's Journey of HopeI can't accept this! As an experience expert, you grow over the years as a person, as an individual and above all...reactionscomments
A How-to Guide for Self-advocacyAfter the initial shock of a chronic disease diagnosis, questions arise. What does this mean? How do I manage the symptoms? Can...reactionscomments
Sickle Cell Books You NeedLast week, I was putting my nephew to bed and he asked me to tell him a story. At first, I wanted...reactions1comment
Racial Disparities in HealthcareThe term "racial disparities" refers to the ways that different racial groups are treated differently or have different outcomes. Racial disparities in...reactionscomments
Emergency Challenges and GuidanceI've written many times about challenges in the emergency department (ED) with my little princess. Unpleasant situations usually cause feelings of misunderstanding...reactionscomments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions like sickle cell disease often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and...reactionscomments
Adventures Abroad With Sickle CellGet ready with me for my next adventure, a tour around Europe! I have been dreaming of returning to Europe ever since...reactions1comment
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin when you have questions about a new diagnosis...reactionscomments
Sickle Cell Disease in the Emergency RoomIn recent years I have always wondered how we as a Sickle Cell community can make a sustainable contribution to the things...reactionscomments
Lessons from My Hip Replacement JourneyLiving with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for...reactionscomments
Essential Questions for Sickle Cell CaregiversAs a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle...reactionscomments
Living with Chronic PainLiving with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts...reactionscomments
Honored Sickle Cell JourneyI have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I...reactions2comments
Life with Sickle Cell in a Warmer Paradise: My Journey to WellnessLiving with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has...reactionscomments
7 Tips to Prepare Sickle Cell Warriors for VacationAs a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them...reactions3comments
Sickle Cell Awareness Day: How and Why We Raise AwarenessFor this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease...reactionscomments
The Power of Positivity: Nurturing HopeHow many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a...reactionscomments
Sickle Cell Advocacy and ActivismToday, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with...reactionscomments
Challenging ER VisitsOMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the...reactions1comment
