Articles

Restless legs syndrome (RLS) is a neurological condition that disrupts sleep in children and adults. That is why it is also called a sleep disorder. About 2 to 4 out...

I can't accept this! As an experience expert, you grow over the years as a person, as an individual and above all in terms of your experience. I had a...

After the initial shock of a chronic disease diagnosis, questions arise. What does this mean? How do I manage the symptoms? Can I afford my treatments and appointments? It feels...

Last week, I was putting my nephew to bed and he asked me to tell him a story. At first, I wanted to take the easy route and make up...

The term "racial disparities" refers to the ways that different racial groups are treated differently or have different outcomes. Racial disparities in healthcare are differences in care that harm certain...

I've written many times about challenges in the emergency department (ED) with my little princess. Unpleasant situations usually cause feelings of misunderstanding, disrespect, and so many more negative emotions. And...

People with chronic health conditions like sickle cell disease often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems concentrating are frequent side effects too. That...

Get ready with me for my next adventure, a tour around Europe! I have been dreaming of returning to Europe ever since my trip to Spain back in high school!...

It is often hard to know what to ask, or even where to begin when you have questions about a new diagnosis. Many community members on this site talk about...

In recent years I have always wondered how we as a Sickle Cell community can make a sustainable contribution to the things we see again and again. The more I...

Living with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for a hip replacement as I was unable to...

As a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle cell disease is, but I will define it...

Living with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts various aspects of a person's life. One significant...

I have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I decided to enroll her in virtual school. This...

Living with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...

As a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give...

For this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease (SCD)?" In response, they shared their personal experiences...

How many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a medical professional told you to be “positive.” In...

Today, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...

OMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess...