Articles

In recent years I have always wondered how we as a Sickle Cell community can make a sustainable contribution to the things we see again and again. The more I...

Living with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for a hip replacement as I was unable to...

As a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle cell disease is, but I will define it...

Living with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts various aspects of a person's life. One significant...

I have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I decided to enroll her in virtual school. This...

Living with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...

As a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give...

For this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease (SCD)?" In response, they shared their personal experiences...

How many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a medical professional told you to be “positive.” In...

Today, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...

OMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess...

After my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I...

Sickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this...

It has been almost 2 years since my little princess was diagnosed with chronic back pain. In several articles, I have shared my experience and I believe that it is...

Living with sickle cell is a unique journey that often requires careful consideration of various aspects of our health and well-being. Transitioning to a holistic lifestyle can be both empowering...

Life is full of ups and downs, and declining health can sometimes make it challenging to maintain a sense of meaning and purpose. Finding meaning and purpose in life has...

The last time I talked about love over two years ago,  I thought I had met the one. What a cliche. I'm not sure if there is just one right...

Why do some people think nothing good can come from living with sickle cell? They feel like every day is miserable for someone living with this disease. Maybe they need...

Summer is a time for fun and adventure, but for sickle cell caregivers, it can also be a time of increased worry. With the warmer weather comes outdoor activities like...

When my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...