What do you want your caregivers to know?
What's the #1 thing friends and family members can do to support you (something they may not think of) in your sickle cell journey?
One thing I always wished my loved ones understood better was the exhaustion and pain that comes with sickle cell. Many of them have become desensitized and their compassion/concern has declined over the years. When I say I'm in pain, they react as if it's a headache and that can really hurt.
