A Mother’s Fight, A Son’s CourageMy son Jaydon was born with sickle cell disease, and our journey has been one of resilience, faith, and advocacy. Sickle cell has challenged us with hospital stays, pain crises...reactions1reply
Andres StoryCan someone help me understand why no one is taking my son’s pains and difficulty with gout seriously? His sickle cell trait is 49 percent sickling and no one has...reactions1reply
How Do You Advocate for Yourself in the ER?We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...reactions9repliesTips & Advice
Living Beyond 50 with Sickle CellHello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the age of 10 at a children's hospital. I...reactions5comments