How Do You Advocate for Yourself in the ER?We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...Reactions0reactionsComments5 repliesTips & Advice
Does cold weather trigger a pain crisis for you?It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...Reactions0reactionsComments7 repliesCopingSymptomsWeather
My StoryHello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...Reactions0reactionsComments1 replies
Live Your Best LifeI have been living with sickle cell disease for 59 years. I have been able to accomplish many things. I am married for almost 35 years and gave birth to...Reactions0reactionsComments2 comments