FeaturedFavorite books, podcasts, or social media accounts for sickle cell informationWhat are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...Reactions0reactionsComments6 repliesAwareness
Will you take our In America survey and help others understand the true impact of sickle cell disease? The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...Reactions0reactionsComments0 repliesAwareness
World Sickle cell DayYes We are Sickled !and Yes !we are not like everyone else, but,Sickled or Not, We all deserve to be loved and treated equally.We are Sickled but Fly ,We are...Reactions0reactionsComments1 repliesAwareness
Story Hi new to this my name is letrai i was diagnosed with sickle cell at birth and been dealing with it all my life struggle after struggle had a stroke...Reactions0reactionsComments1 repliesDiagnosisAwarenessCoping
FeaturedWhat sickle cell opportunities are you most interested in?Whether it’s attending virtual or in-person events, spreading awareness online, or learning more about sickle cell through webinars and podcasts, let us know what matters most to you and what...Reactions0reactionsComments2 repliesAwareness
Feeling judged?Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction?...Reactions0reactionsComments8 repliesFriends & FamilyAwareness
Will you take our In America survey to share the truth about life with sickle cell? There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...Reactions0reactionsComments1 repliesAwarenessResearch & Clinical Trials
Patient concierge I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...Reactions0reactionsComments5 repliesAwarenessCaregivingDiet & Nutrition
I’m here to meet and do more in creating awarenessAwesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become particularly interested in medical awareness, and SCD had...Reactions0reactionsComments3 repliesAwarenessCoping
Reaching out to the hinterlands With my little stay here, I noticed most of the active members here base abroad. well that's great for you all. Living in a country with law and order, available...Reactions0reactionsComments8 repliesAwarenessAssistive DevicesDepression