FeaturedActive 3 days agoWill you take our In America survey to share the truth about life with sickle cell? There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...Reactions 0 reactions Comments0 repliesAwarenessResearch & Clinical Trials
World Sickle cell DayYes We are Sickled !and Yes !we are not like everyone else, but,Sickled or Not, We all deserve to be loved and treated equally.We are Sickled but Fly ,We are...Reactions 0 reactions Comments1 repliesAwareness
Do you know any Ridiculous Myths about Sickle CellWhat are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...Reactions 0 reactions Comments11 repliesAwareness
World sickle cell awareness monthI am so excited about world sickle cell awareness month.. Can’t wait to experience the power of all you amazing warriors.. it’s going to be so colorful . I can...Reactions 0 reactions Comments0 repliesAwareness
Feeling judged?Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction...Reactions 0 reactions Comments7 repliesFriends & FamilyAwareness
UNCOMMON TRIGGERS Aside weather,climate,stress and anemia which are the main known triggers for crises, what other triggers do you have? Mine is dust and I still don’t know why...Reactions 0 reactions Comments8 repliesAwareness
Patient concierge I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...Reactions 0 reactions Comments4 repliesAwarenessCaregivingDiet & Nutrition
Awareness Month Forum: Be A Change MakerFor the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and make a change for future generations. What is...Reactions 0 reactions Comments3 repliesAwareness
Discussion - Sickle-Cell/Thalassemia.Does any one wish to discuss any issues to do with any one or all of these conditions...Reactions 0 reactions Comments2 repliesAwarenessCopingFriends & Family
Reaching out to the hinterlands With my little stay here, I noticed most of the active members here base abroad. well that's great for you all. Living in a country with law and order, available...Reactions 0 reactions Comments6 repliesAssistive DevicesAwarenessDepression
