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Read conversations, start a discussion, and connect with others about sickle cell.

Active 5 days ago

Breathe control

How do u manage your breathe before or during a crisis?...

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Favorite books, podcasts, or social media accounts for sickle cell information

What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...

Will you take our In America survey and help others understand the true impact of sickle cell disease?

The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...

World Sickle cell Day

Yes We are Sickled !and Yes !we are not like everyone else, but,Sickled or Not, We all deserve to be loved and treated equally.We are Sickled but Fly ,We are...

Story

Hi new to this my name is letrai i was diagnosed with sickle cell at birth and been dealing with it all my life struggle after struggle had a stroke...

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What sickle cell opportunities are you most interested in?

Whether it’s attending virtual or in-person events, spreading awareness online, or learning more about sickle cell through webinars and podcasts, let us know what matters most to you and what...

Feeling judged?

Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction?...

Will you take our In America survey to share the truth about life with sickle cell?

There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...

Patient concierge

I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...

I’m here to meet and do more in creating awareness

Awesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become particularly interested in medical awareness, and SCD had...

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