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Read conversations, start a discussion, and connect with others about sickle cell.

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Favorite books, podcasts, or social media accounts for sickle cell information

What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...

Featured

What sickle cell opportunities are you most interested in?

Whether it’s attending virtual or in-person events, spreading awareness online, or learning more about sickle cell through webinars and podcasts, let us...

Active 5 days ago

Posture Issues

Last week, one of our health leaders wrote a great article about how sickle cell and pain in general can impact posture...

Active 6 days ago

Does cold weather trigger a pain crisis for you?

It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis...

Active 7 days ago

Pain Triggers

Do you know what your triggers are? ...

A Mother’s Fight, A Son’s Courage

My son Jaydon was born with sickle cell disease, and our journey has been one of resilience, faith, and advocacy. Sickle cell...

Andres Story

Can someone help me understand why no one is taking my son’s pains and difficulty with gout seriously? His sickle cell trait...

How Do You Advocate for Yourself in the ER?

We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you...

What are the major challenges faced by SCD patients at age 40 and above?

Give causes and remedies to the challenges....

Warriors with brain

Hi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting...

What coping methods help with anxiety, fear and loneliness?

Since my last hospital visit I have been anxious, fearful and kinda lonely. I didn't experience anything different during hospitalization but I...

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