FeaturedNew FDA treatment for SCDThe US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions0reactionsComments9 repliesTreatment
FeaturedFavorite books, podcasts, or social media accounts for sickle cell informationWhat are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...Reactions0reactionsComments6 repliesAwareness
Active todayMy StoryHello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...Reactions0reactionsComments1 replies
Some tips for managing Priapism at homeWake up everyday with priapism. Home treatment suggestions thanks....Reactions0reactionsComments1 repliesTreatment
UnacceptanceAs a sickle cell warrior, Do you find yourself constantly battling other peoples perspective of you? Are the moments you feel unwanted and not understood?? Because I do. And it...Reactions0reactionsComments8 repliesCaregiving
A member named MarnitaI was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...Reactions0reactionsComments3 replies
What is the first sign that lets you know a crisis is coming?From emotional changes to fatigue & thirst, how do you typically know that a crisis is coming? Share below!...Reactions0reactionsComments10 repliesSymptoms
Finding Friends while having SicklecellIs it difficult for you to find or even keep friends while handling sicklecell?...Reactions0reactionsComments4 repliesFriends & Family
Please help educate meHello, I am learning about ss, to try to help someone. I just read about cells going sickle when oxygen is lacking. I realise its normal for some blood to...Reactions0reactionsComments1 replies
Sickle Cell CONSTANTLY Getting Disrespected As sickle cell warriors are you constantly getting disrespected whenever you go to the hospital or the doctor or if you get weekly treatment? Your pain not getting taking seriously...Reactions0reactionsComments7 repliesHealthcare TeamInsurance & DisabilityTreatment