A lesson learnedBefore I got married I ran a genotype test,and the result came out that I as AA and my partner AS ,NOT knowing the lab attendant never carried out the...reactions1reply
HiHello everyone, I am new here my name is Ifejesu I am a Nigerian, 19 years old and I have been having pains since I was little. And growing up...reactions3replies
FeaturedI might not reach my potential height I think that one of the most depressing thing about being a sickler is living with the fear that you might never grow taller. I'm a secondary school senior and...reactions6repliesCopingTips & Advice
The many emotions of living with sickle cellThere are many aspects of sickle cell that bring up strong emotions for warriors. What emotions are you currently feeling and why?...reactions3repliesCopingMental Health
Emotional Support AnimalsDo you have an animal that comforts you when experiencing pain or mental health issues due to your disease? Share about them here! (pictures encouraged :))...reactions1replyCoping
Music TherapyHave you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful? What is your favorite type of...reactions6repliesCopingTips & Advice
Do you know any Ridiculous Myths about Sickle CellWhat are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...reactions11repliesAwareness
FeaturedWhat do you want your caregivers to know?What's the #1 thing friends and family members can do to support you (something they may not think of) in your sickle cell journey?...reactions1replyCaregiving
How to take care of a child living with sickle cell as a motherA have a 4yrs old son living with sickle cell and it as not been an easy one,need advice and counsel on how to take good care of him...reactions4repliesAssistive Devices
Things never to say to a warriorLast week's article talked about things you should never say to a warrior. What would you add to the list, or what has been said to you that was unkind/untrue?...reactions1replyCoping