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Read conversations, start a discussion, and connect with others about sickle cell.

Pain crisis at night time

Hey warriors. I’m Ezekiel, a 21 year old Nigerian living with SCD and I’ve always wondered if anyone else who’s got SCD suffers from midnight crisis or is it just...

How has race affected your patient journey?

In your opinion, how has bias affected your journey as a patient? How do you think your journey would be different if you were a different race? Share your thoughts...

Student nurse

Hello Everyone, I hope you are all well? I’m currently a student nurse, I have a presentation due which Centers around life long medical conditions. I decided after having my...

A lesson learned

Before I got married I ran a genotype test,and the result came out that I as AA and my partner AS ,NOT knowing the lab attendant never carried out the...

Hi

Hello everyone, I am new here my name is Ifejesu I am a Nigerian, 19 years old and I have been having pains since I was little. And growing up...

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I might not reach my potential height

I think that one of the most depressing thing about being a sickler is living with the fear that you might never grow taller. I'm a secondary school senior and...

The many emotions of living with sickle cell

There are many aspects of sickle cell that bring up strong emotions for warriors. What emotions are you currently feeling and why?...

Emotional Support Animals

Do you have an animal that comforts you when experiencing pain or mental health issues due to your disease? Share about them here! (pictures encouraged :))...

Music Therapy

Have you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful? What is your favorite type of...

Do you know any Ridiculous Myths about Sickle Cell

What are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...

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