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Read conversations, start a discussion, and connect with others about sickle cell.

Music Therapy

Have you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful? What is your favorite type of...

Do you know any Ridiculous Myths about Sickle Cell

What are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...

Featured

What do you want your caregivers to know?

What's the #1 thing friends and family members can do to support you (something they may not think of) in your sickle cell journey?...

How to take care of a child living with sickle cell as a mother

A have a 4yrs old son living with sickle cell and it as not been an easy one,need advice and counsel on how to take good care of him...

Things never to say to a warrior

Last week's article talked about things you should never say to a warrior. What would you add to the list, or what has been said to you that was unkind/untrue?...

Posture Issues

Last week, one of our health leaders wrote a great article about how sickle cell and pain in general can impact posture. Do you have posture issues? Have you done...

Controlling thoughts while in pain.

What are some of the thing that go through your mind when you are down/sick due to SCD? ...

COVID 19

Have you had your Covid 19 vaccination already? Do you think it’s safe for SCD patients to take the COVID 19 vaccine? What are your fears when it comes to...

Coping

Do you find it difficult to sustain your relationships because of sickle cell?? How do you cope with lonely days?...

World sickle cell awareness month

I am so excited about world sickle cell awareness month.. Can’t wait to experience the power of all you amazing warriors.. it’s going to be so colorful . I can...

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