FeaturedWelcome to the Sickle Cell Community!Introduce yourself...Reactions 0 reactions Comments10 replies
Active 3 days agoDoes a warm climate make you feel better or worse?So I'm currently in Jamaica. I've been here for 6 months now due to covid. I usually come as often as I can as I always feel good when I...Reactions 0 reactions Comments8 replies
Active 5 days agoMental Health MonthMay is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it...Reactions 0 reactions Comments1 repliesAwarenessCopingMental Health
Active 5 days ago2 Questions about this graph: (please view graph)For context this graph is about 2 patients who received a CTX001 infusion. (CRISPR-Cas9 treatment) One month after infusion HbA skyrockets. Why is this and is this a problem? In...Reactions 0 reactions Comments1 repliesResearch & Clinical TrialsSide EffectsSymptoms
Active 6 days agoMost memorable healthcare experienceHospitals and clinic visits are a big part of living with sickle cell. What is a memorable moment (good or bad) that has stuck with you...Reactions 0 reactions Comments2 repliesHealthcare Team
Active 6 days agoMusic TherapyHave you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful? What is your favorite type of...Reactions 0 reactions Comments0 repliesCopingTips & Advice
Active 6 days agomy life so farhi my name is Joshua i am from Kenya i was born with Sickle cell anemia i am 18 but i have not experienced puberty i am always discriminated even...Reactions 0 reactions Comments1 replies
Women's History MonthWhat are some unique challenges women with sickle cell face...Reactions 0 reactions Comments6 repliesCopingAwareness
Sc disease - Sickle cellNot sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of doing testosterone replacement therapy but I don’t know...Reactions 0 reactions Comments2 repliesDiet & NutritionDiagnosis
Accepting the damage Sickle cell has on my mind.How often do you check on your mental health as an SCD warrior.. Well, I recently got diagnosed with bipolar disorder and I didn’t really like the truth about these...Reactions 0 reactions Comments5 repliesMental HealthDepression
2nd Sickle Cell In America SurveySickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...Reactions 0 reactions Comments0 repliesAwareness
