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Read conversations, start a discussion, and connect with others about sickle cell.

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New FDA treatment for SCD

The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...

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Favorite books, podcasts, or social media accounts for sickle cell information

What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...

Active 7 days ago

Sickle Cell CONSTANTLY Getting Disrespected

As sickle cell warriors are you constantly getting disrespected whenever you go to the hospital or the doctor or if you get weekly treatment? Your pain not getting taking seriously...

ADA Recommendations Examples & Navigating ADA request

Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations that would help avoid being penalized for missed time...

Pain Triggers

Do you know what your triggers are? ...

A member named Marnita

I was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...

Dating, Love, Support, and SICKLE CELL

I'm in love with a woman who has sickle cells, dating her comes with different challenges, she has constant knee pain that limits us only to certain activities. She is...

Warriors with brain

Hi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting married. As a nurse, I always advice couples...

Does cold weather trigger a pain crisis for you?

It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...

Emergency

Dear soldiers this priapism thing is killing me inside. Is there any help here for me?...

Hope

I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...

I’m a Sickle Cell Survivor

Hello, My name is Lisa. I was diagnosed at Cleveland Clinic, OH. I was sixteen months old. My mother said that I had started to walk until one morning she...

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