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Read conversations, start a discussion, and connect with others about sickle cell.

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New FDA treatment for SCD

The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...

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Favorite books, podcasts, or social media accounts for sickle cell information

What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...

Active today

Warriors with brain

Hi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting married. As a nurse, I always advice couples...

Active today

What are the major challenges faced by SCD patients at age 40 and above?

Give causes and remedies to the challenges....

What coping methods help with anxiety, fear and loneliness?

Since my last hospital visit I have been anxious, fearful and kinda lonely. I didn't experience anything different during hospitalization but I just can't shake these feelings off. I am...

How Do You Advocate for Yourself in the ER?

We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...

Does a warm climate make you feel better or worse?

So I'm currently in Jamaica. I've been here for 6 months now due to covid. I usually come as often as I can as I always feel good when I...

Breathe control

How do u manage your breathe before or during a crisis?...

How does sickle cell affect your dating and intimacy life?

This is a safe space to ask questions and share your experience with dating and intimacy while living with sickle cell. ...

Have you experienced workplace discrimination?

What have you done when you have been discriminated against because of sickle cell? What kind of discrimination have you faced?...

Does cold weather trigger a pain crisis for you?

It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...

Self care!

What are your go-to self care activities? ...

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