FeaturedNew FDA treatment for SCDThe US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions0reactionsComments9 repliesTreatment
FeaturedFavorite books, podcasts, or social media accounts for sickle cell informationWhat are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...Reactions0reactionsComments4 repliesAwareness
Active 6 days agoHope I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...Reactions0reactionsComments1 repliesCoping
Most memorable healthcare experienceHospitals and clinic visits are a big part of living with sickle cell. What is a memorable moment (good or bad) that has stuck with you?...Reactions0reactionsComments3 repliesHealthcare Team
Dating, Love, Support, and SICKLE CELLI'm in love with a woman who has sickle cells, dating her comes with different challenges, she has constant knee pain that limits us only to certain activities. She is...Reactions0reactionsComments1 replies
Emergency Dear soldiers this priapism thing is killing me inside. Is there any help here for me?...Reactions0reactionsComments1 replies
I’m a Sickle Cell SurvivorHello, My name is Lisa. I was diagnosed at Cleveland Clinic, OH. I was sixteen months old. My mother said that I had started to walk until one morning she...Reactions0reactionsComments0 replies
How much is?Good Day; I hope all are doing great. I live in Canada, have Sickle Cell Disease (SC), and I'm searching information on health services/insurances before I decide to move to...Reactions0reactionsComments1 repliesInsurance & Disability
Will you take our In America survey and help others understand the true impact of sickle cell disease? The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...Reactions0reactionsComments0 repliesAwareness
How it feels when I don't have anybody to share my feelings withI feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...Reactions0reactionsComments1 replies