FeaturedNew FDA treatment for SCDThe US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...reactions9repliesTreatment
FeaturedFavorite books, podcasts, or social media accounts for sickle cell informationWhat are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...reactions6repliesAwareness
Active 2 days agoHow Do You Advocate for Yourself in the ER?We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...reactions5repliesTips & Advice
Active 2 days agoHave you experienced workplace discrimination? What have you done when you have been discriminated against because of sickle cell? What kind of discrimination have you faced?...reactions3repliesCopingWork & Employment
Active 2 days agoSelf care!What are your go-to self care activities? ...reactions17repliesCopingTips & Advice
Active 2 days agoDoes cold weather trigger a pain crisis for you?It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...reactions7repliesCopingSymptomsWeather
Active 3 days agoWhere Do I Go From Here?Being born with sickle cell, I was constantly in and out of the hospital. Once I got older, it calmed down a lot. But I am unable to afford any...reactions1reply
How does sickle cell affect your dating and intimacy life? This is a safe space to ask questions and share your experience with dating and intimacy while living with sickle cell. ...reactions1replyTips & AdviceCoping
Sickle Cell at Age 50I was just diagnosed with Mild Sickle Cell Disease at 50. I was always told that I had the sickle cell trait. I have had 2 major surgeries but no...reactionsreplies
A member named MarnitaI was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...reactions3replies
Free Tutoring for Kids with Sickle CellHi! I am a 10th grader and would like to offer free tutoring services for kids with Sickle Cell. Last year I was out of school for a significant period...reactionsrepliesCopingCaregivingCost
My StoryHello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...reactions1reply