FeaturedNew FDA treatment for SCDThe US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions 0 reactions Comments7 repliesTreatment
FeaturedFavorite books, podcasts, or social media accounts for sickle cell informationWhat are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...Reactions 0 reactions Comments3 repliesAwareness
How much is?Good Day; I hope all are doing great. I live in Canada, have Sickle Cell Disease (SC), and I'm searching information on health services/insurances before I decide to move to...Reactions 0 reactions Comments1 repliesInsurance & Disability
Will you take our In America survey and help others understand the true impact of sickle cell disease? The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...Reactions 0 reactions Comments0 repliesAwareness
How it feels when I don't have anybody to share my feelings withI feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...Reactions 0 reactions Comments1 replies
Hope I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...Reactions 0 reactions Comments1 repliesCoping
Has anyone used Kratom while managing sickle cell.Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...Reactions 0 reactions Comments2 repliesDiet & NutritionTips & AdviceCoping
My avascular necrosis surgery I suffered from a hip pain for six years I use to limp when walking and it became a problem for me. It got to a time I couldn’t walk...Reactions 0 reactions Comments4 repliesSurgery
How to manage sickle cellHi, I have a daughter of 6years but she's sickle cell She always complain of stomach pain...Reactions 0 reactions Comments1 replies
Connect With Other Sickle Cell Warriors!Living with sickle cell can sometimes feel like a lonely journey, but remember, you are not alone! Our community is filled with other warriors that understand the unique challenges and...Reactions 0 reactions Comments10 replies
World Sickle cell DayYes We are Sickled !and Yes !we are not like everyone else, but,Sickled or Not, We all deserve to be loved and treated equally.We are Sickled but Fly ,We are...Reactions 0 reactions Comments1 repliesAwareness