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Read conversations, start a discussion, and connect with others about sickle cell.

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New FDA treatment for SCD

The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...

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Favorite books, podcasts, or social media accounts for sickle cell information

What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...

How Do You Advocate for Yourself in the ER?

We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...

Have you experienced workplace discrimination?

What have you done when you have been discriminated against because of sickle cell? What kind of discrimination have you faced?...

Self care!

What are your go-to self care activities? ...

Does cold weather trigger a pain crisis for you?

It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...

Where Do I Go From Here?

Being born with sickle cell, I was constantly in and out of the hospital. Once I got older, it calmed down a lot. But I am unable to afford any...

How does sickle cell affect your dating and intimacy life?

This is a safe space to ask questions and share your experience with dating and intimacy while living with sickle cell. ...

Sickle Cell at Age 50

I was just diagnosed with Mild Sickle Cell Disease at 50. I was always told that I had the sickle cell trait. I have had 2 major surgeries but no...

A member named Marnita

I was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...

Free Tutoring for Kids with Sickle Cell

Hi! I am a 10th grader and would like to offer free tutoring services for kids with Sickle Cell. Last year I was out of school for a significant period...

My Story

Hello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...

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