FeaturedHow do you deal with the Jaundice that sometimes comes with have SSC?Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...Reactions 0 reactions Comments3 repliesAssistive DevicesDiet & NutritionTips & Advice
FeaturedActive 7 days agoWelcome to the Sickle Cell Community!Introduce yourself...Reactions 0 reactions Comments12 replies
Patient concierge I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...Reactions 0 reactions Comments2 repliesAwarenessCaregivingDiet & Nutrition
Aging With Sickle CellHello, I’m A Sickle Cell Warrior & I’m 26yrs Old I Had Gotten Diagnosed When I Was Just 2wks Old Of Being Born. For The Past Year My Sickle Cell...Reactions 0 reactions Comments2 replies
Disclosing Your DiagnosisThere is a lot of stigma and misconceptions about sickle cell disease. Have you had trouble telling people you have sickle cell? How do you decide when to say something...Reactions 0 reactions Comments1 repliesFriends & FamilyTips & Advice
How do you like to hydrate?As the weather heats up, hydration becomes even more important. Do you have a favorite way to hydrate? Plain water? Sparkling water? Water with add-ins (like fruit or herbs)? Electrolyte...Reactions 0 reactions Comments7 repliesDiet & Nutrition
Does a warm climate make you feel better or worse?So I'm currently in Jamaica. I've been here for 6 months now due to covid. I usually come as often as I can as I always feel good when I...Reactions 0 reactions Comments11 replies
Does cold weather trigger a pain crisis for you?It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...Reactions 0 reactions Comments5 repliesCopingSymptomsWeather
Mental Health MonthMay is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it...Reactions 0 reactions Comments5 repliesAwarenessCopingMental Health
How Do You Advocate for Yourself in the ER?We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...Reactions 0 reactions Comments2 repliesTips & Advice
