FeaturedDo you know any Ridiculous Myths about Sickle CellWhat are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...Reactions 0 reactions Comments9 repliesAwareness
FeaturedTravel Tips What have you found helpful to pack for when you travel...Reactions 0 reactions Comments1 repliesTips & Advice
Active 3 days agoApproaches to Glycemic TreatmentThere are excellent reviews to guide the initiation and management of insulin therapy to achieve desired glycemic goals (. Although most studies of MDI versus pump therapy have been small...Reactions 0 reactions Comments0 repliesTreatment
Active 7 days agoWays to Advocate In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates...Reactions 0 reactions Comments1 repliesAwarenessTips & Advice
Sickle Cell InterviewHi everyone, As a fellow sickle cell warrior, holistic nutritionist, and massage therapist, I want to let you in on a new project I’m working on. It’s going to be...Reactions 0 reactions Comments0 repliesDiet & NutritionTreatmentResearch & Clinical Trials
Grief and Denial? How do you deal with the loss of a warrior that appeared stronger than you in all aspects? The warrior that encouraged me to share my story passed on and...Reactions 0 reactions Comments6 repliesMental Health
Does cold weather trigger a pain crisis for you?It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...Reactions 0 reactions Comments1 repliesCopingSymptomsWeather
My avascular necrosis surgery I suffered from a hip pain for six years I use to limp when walking and it became a problem for me. It got to a time I couldn’t walk...Reactions 0 reactions Comments2 repliesSurgery
Awareness Month Forum: Self Care!What self care activities do you enjoy? This could be journaling, yoga, napping...whatever you like doing. This is a space to share and connect with other warriors. Maybe someone shares...Reactions 0 reactions Comments37 replies
Caregiver's Awareness MonthDid you know that November is Caregiver's Awareness Month? Are you a caregiver for someone? What are tips or questions that you have for other caregivers...Reactions 0 reactions Comments0 repliesTips & AdviceCaregiving
UNCOMMON TRIGGERS Aside weather,climate,stress and anemia which are the main known triggers for crises, what other triggers do you have? Mine is dust and I still don’t know why...Reactions 0 reactions Comments3 repliesAwareness
