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Read conversations, start a discussion, and connect with others about sickle cell.

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New FDA treatment for SCD

The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...

Featured

Favorite books, podcasts, or social media accounts for sickle cell information

What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...

Active today

How Do You Advocate for Yourself in the ER?

We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...

Active today

Does cold weather trigger a pain crisis for you?

It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...

Seeking perspectives on genetic engineering and sickle-cell disease

Good evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...

My Story

Hello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet. I cried and wouldn’t walk. She took me...

Some tips for managing Priapism at home

Wake up everyday with priapism. Home treatment suggestions thanks....

Unacceptance

As a sickle cell warrior, Do you find yourself constantly battling other peoples perspective of you? Are the moments you feel unwanted and not understood?? Because I do. And it...

Pain Triggers

Do you know what your triggers are? ...

Pain killers

Am having too much crisis...

A member named Marnita

I was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...

What is the first sign that lets you know a crisis is coming?

From emotional changes to fatigue & thirst, how do you typically know that a crisis is coming? Share below!...

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