FeaturedNew FDA treatment for SCDThe US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions0reactionsComments9 repliesTreatment
FeaturedFavorite books, podcasts, or social media accounts for sickle cell informationWhat are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...Reactions0reactionsComments6 repliesAwareness
Active 7 days agoSickle Cell CONSTANTLY Getting Disrespected As sickle cell warriors are you constantly getting disrespected whenever you go to the hospital or the doctor or if you get weekly treatment? Your pain not getting taking seriously...Reactions0reactionsComments7 repliesHealthcare TeamInsurance & DisabilityTreatment
ADA Recommendations Examples & Navigating ADA request Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations that would help avoid being penalized for missed time...Reactions0reactionsComments1 replies
A member named MarnitaI was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...Reactions0reactionsComments1 replies
Dating, Love, Support, and SICKLE CELLI'm in love with a woman who has sickle cells, dating her comes with different challenges, she has constant knee pain that limits us only to certain activities. She is...Reactions0reactionsComments7 replies
Warriors with brainHi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting married. As a nurse, I always advice couples...Reactions0reactionsComments2 replies
Does cold weather trigger a pain crisis for you?It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...Reactions0reactionsComments7 repliesCopingSymptomsWeather
Emergency Dear soldiers this priapism thing is killing me inside. Is there any help here for me?...Reactions0reactionsComments6 replies
Hope I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...Reactions0reactionsComments2 repliesCoping
I’m a Sickle Cell SurvivorHello, My name is Lisa. I was diagnosed at Cleveland Clinic, OH. I was sixteen months old. My mother said that I had started to walk until one morning she...Reactions0reactionsComments2 replies