Stories

I have been living with sickle cell disease for 59 years. I have been able to accomplish many things. I am married for almost 35 years and gave birth to...

I think it is time to focus and acknowledge that I, like other chronically ill people and people with sickle cell, struggle with this sense of normalcy. Since attending primary...

My story with sickle cell disease starts like many others being born with the condition, but I also have a twin brother, and he is going to save my life...

My name is Ronke, and I am a Nigerian. I am 17 years of age and diagnosed with SS. I discovered my sickness very late in 2022. I left my...

l had a stroke when l was 5 years old. Growing up has been difficult for me because of my appearance and the way that l look compared to my...

It's 1996, I am 30 years old, and I just finished my National Youth Service Corp (NYSC) in Nigeria. I was quite healthy that period with occasional crises mixed with...

Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease...

Greetings, I am Paris and I have SS sickle cell disease. My mother was told I would be born with the disease before I was born. I was born in...

I myself am a 57 year old warrior. Diagnosed at birth, but still don’t know who had the trait or the disease. My parents say they didn’t have a trait...

My journey with sickle cell disease started at five months old. I had a severe pain crisis and I couldn't learn how to walk until two years later. I have...

I am 25 years old and have lived with sickle cell anemia since I was six months old. The crises are the worst; the pain and the fear that I...

Hello, my name is Tammy and I have been living with sickle cell disease for 52 years. I was born in 1969 and babies were not yet screened for this...

I am currently in the hospital but tonight is going to be my last night unfortunately even though I am still in an excruciating amount of pain. I am basically...

I am 57 now. My journey like yours have been painful and buckets full of tears. I dislike sympathy especially the one my mother gives me. I am her only...

Hi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days are good and I wake up strong and...

Recently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the only thing u hear from friends and family...

Hello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter and 1 goddaughter that are both 24. My...

I’m Grace and I’m a 25 year old third-year nursing student. Whenever I tell people about my condition I'm always met with sympathy and fear for my future. Despite that...

My Name Is Candance La’Dream Bradley and I was diagnosed with Sickle Cell Disease - SS Type when I was born. I had my very first pain crisis at the...

I don't remember a world without sickle cell in it. My older brother had it for almost 41 years before he passed in 2006. He managed to marry and have...