Stories

I don't remember a world without sickle cell in it. My older brother had it for almost 41 years before he passed in 2006. He managed to marry and have...

I am a 50-year-old biracial female diagnosed with sickle cell. I have had pain crises, had my heart stopped twice, and I feel the pain of my disease on a...

Hello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the age of 10 at a children's hospital. I...

My story begins when I was diagnosed with sickle cell when I was one years old. I lived with my family in Nigeria and we moved to the United States...

Hi, my name is Sakina. New here. I have always wanted to speak to people who understood my pains. I was diagnosed with sickle cell when I was 10. It...

My daughter Michelle was born on 12/12/1991 with sickle cell disease. Michelle's life was not an easy one, not at all. She started showing symptoms of hand and foot syndrome...

I had my first sickle cell crisis at age 16, and the second at age 19. Being in Med school drove me to depression as I was in and out...

My 10-year-old sickle cell anemic son went through chemotherapy and a stem cell transplant (from his elder brother)  in 2019 and now he is totally cured from the disease! He...

A lot of things go through my mind. Especially now that I’m stuck on crutches due to vascular necrosis. I ask myself "why?" I know the importance of self-sufficiency, hope...

So I've been in and out of the hospital continuously since 2019.. Started with pregnancy complications, then coma, emergency Cs, lung infection, kidney infection and most recent AVN.. Now it's...

I was one year old when my mom found out I had sickle cell and then in Liberia and then she moved to Belguim and I was 5 when she...

It has been a rollercoaster of emotions and trauma since childhood. As I little girl I never understood why things I didn't sign up for would come my way. I...

Three ago I had acute chest syndrome and it was like that was the end of my life. I felt I was dying inside, couldn't breath, was on oxygen for...

I've been sick for several weeks now. To be honest, it hasn't been easy for me. The bills, medication, complications, wanting to give up and all. My emotions have been...

Trying to live a normal life is challenging, trying to live a normal life with an invisible, serious chronic illness like sickle cell is even more challenging, especially when very...

One of the most difficult stages of my life was accepting life as a sickle cell patient. You can imagine how society will treat you. My eyes are yellow and...

One of the most difficult stages for me was accepting and adjusting into life as a sickle cell disease patient (SS genotype). How do I accept that this is how...

It's now 2021 and I started this journey in Wisconsin while attending middle school in the 80's, when I can remember a debilitating episode of stomach pain. Since then, I...

I am a Sickle Cell Warrior. I was diagnosed with this disease at the age of two because at that time, sickle cell screening was not done at birth like...

I was born with sickle cell disease and I’m always in the hospital...