Stories

My story with sickle cell disease starts like many others being born with the condition, but I also have a twin brother, and he is going to save my life...

My name is Ronke, and I am a Nigerian. I am 17 years of age and diagnosed with SS. I discovered my sickness very late in 2022. I left my...

l had a stroke when l was 5 years old. Growing up has been difficult for me because of my appearance and the way that l look compared to my...

It's 1996, I am 30 years old, and I just finished my National Youth Service Corp (NYSC) in Nigeria. I was quite healthy that period with occasional crises mixed with...

Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease...

Greetings, I am Paris and I have SS sickle cell disease. My mother was told I would be born with the disease before I was born. I was born in...

I myself am a 57 year old warrior. Diagnosed at birth, but still don’t know who had the trait or the disease. My parents say they didn’t have a trait...

My journey with sickle cell disease started at five months old. I had a severe pain crisis and I couldn't learn how to walk until two years later. I have...

I am 25 years old and have lived with sickle cell anemia since I was six months old. The crises are the worst; the pain and the fear that I...

Hello, my name is Tammy and I have been living with sickle cell disease for 52 years. I was born in 1969 and babies were not yet screened for this...

I am currently in the hospital but tonight is going to be my last night unfortunately even though I am still in an excruciating amount of pain. I am basically...

I am 57 now. My journey like yours have been painful and buckets full of tears. I dislike sympathy especially the one my mother gives me. I am her only...

Hi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days are good and I wake up strong and...

Recently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the only thing u hear from friends and family...

Hello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter and 1 goddaughter that are both 24. My...

I’m Grace and I’m a 25 year old third-year nursing student. Whenever I tell people about my condition I'm always met with sympathy and fear for my future. Despite that...

My Name Is Candance La’Dream Bradley and I was diagnosed with Sickle Cell Disease - SS Type when I was born. I had my very first pain crisis at the...

I don't remember a world without sickle cell in it. My older brother had it for almost 41 years before he passed in 2006. He managed to marry and have...

I am a 50-year-old biracial female diagnosed with sickle cell. I have had pain crises, had my heart stopped twice, and I feel the pain of my disease on a...

Hello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the age of 10 at a children's hospital. I...