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Read conversations, start a discussion, and connect with others about sickle cell.

Has anyone used Kratom while managing sickle cell.

Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...

How Do You Advocate for Yourself in the ER?

We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...

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I might not reach my potential height

I think that one of the most depressing thing about being a sickler is living with the fear that you might never grow taller. I'm a secondary school senior and...

Music Therapy

Have you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful? What is your favorite type of...

Disclosing Your Diagnosis

There is a lot of stigma and misconceptions about sickle cell disease. Have you had trouble telling people you have sickle cell? How do you decide when to say something?...

How do you deal with the Jaundice that sometimes comes with have SSC?

Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...

What are your summer triggers?

Are there things that you have to watch out for in the summer time, or is your disease better managed?...

Travel Tips

What have you found helpful to pack for when you travel?...

Ways to Advocate

In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...

Caregiver's Awareness Month

Did you know that November is Caregiver's Awareness Month? Are you a caregiver for someone? What are tips or questions that you have for other caregivers?...

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