FeaturedConnect With Other Sickle Cell Warriors!Living with sickle cell can sometimes feel like a lonely journey, but remember, you are not alone! Our community is filled with other warriors that understand the unique challenges and...Reactions 0 reactions Comments10 repliesAwarenessTips & Advice
How Do You Advocate for Yourself in the ER?We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...Reactions 0 reactions Comments5 repliesTips & Advice
Has anyone used Kratom while managing sickle cell.Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...Reactions 0 reactions Comments1 repliesCopingDiet & NutritionTips & Advice
FeaturedI might not reach my potential height I think that one of the most depressing thing about being a sickler is living with the fear that you might never grow taller. I'm a secondary school senior and...Reactions 0 reactions Comments6 repliesCopingTips & Advice
Music TherapyHave you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found most helpful? What is your favorite type of...Reactions 0 reactions Comments6 repliesCopingTips & Advice
Disclosing Your DiagnosisThere is a lot of stigma and misconceptions about sickle cell disease. Have you had trouble telling people you have sickle cell? How do you decide when to say something?...Reactions 0 reactions Comments1 repliesFriends & FamilyTips & Advice
How do you deal with the Jaundice that sometimes comes with have SSC?Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...Reactions 0 reactions Comments3 repliesAssistive DevicesDiet & NutritionTips & Advice
What are your summer triggers?Are there things that you have to watch out for in the summer time, or is your disease better managed?...Reactions 0 reactions Comments0 repliesCopingTips & Advice
Travel Tips What have you found helpful to pack for when you travel?...Reactions 0 reactions Comments3 repliesTips & Advice
Ways to Advocate In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...Reactions 0 reactions Comments1 repliesAwarenessTips & Advice
