Awareness Month Forum: Be A Change MakerFor the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and make a change for future generations. What is...reactions3repliesAwareness
How has a shorter life expectancy impacted you?A fellow warrior wrote a great article this week about life expectancy. Has this part of your disease changed the way you live your life? Are you more daring? Do...reactions2repliesCoping
Discussion - Sickle-Cell/Thalassemia.Does any one wish to discuss any issues to do with any one or all of these conditions?...reactions2repliesAwarenessCopingFriends & Family
What are the long term effects of Tramadol?I want to know the adverse effects of Tramadol....reactions8repliesCaregivingCopingAwareness
Disclosing Your DiagnosisThere is a lot of stigma and misconceptions about sickle cell disease. Have you had trouble telling people you have sickle cell? How do you decide when to say something?...reactions1replyTips & AdviceFriends & Family
How do you like to hydrate?As the weather heats up, hydration becomes even more important. Do you have a favorite way to hydrate? Plain water? Sparkling water? Water with add-ins (like fruit or herbs)? Electrolyte...reactions7repliesDiet & Nutrition
How do you deal with the Jaundice that sometimes comes with have SSC?Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...reactions3repliesAssistive DevicesDiet & NutritionTips & Advice
Mental Health MonthMay is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it?...reactions5repliesAwarenessCopingMental Health
What are your summer triggers?Are there things that you have to watch out for in the summer time, or is your disease better managed?...reactionsrepliesCopingTips & Advice