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Forums

Read conversations, start a discussion, and connect with others about sickle cell.

Sc disease - Sickle cell

Not sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of doing testosterone replacement therapy but I don’t know...

2nd Sickle Cell In America Survey

Sickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...

Travel Tips

What have you found helpful to pack for when you travel?...

Ways to Advocate

In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...

Awareness Month Forum: Self Care!

What self care activities do you enjoy? This could be journaling, yoga, napping...whatever you like doing. This is a space to share and connect with other warriors. Maybe someone shares...

Caregiver's Awareness Month

Did you know that November is Caregiver's Awareness Month? Are you a caregiver for someone? What are tips or questions that you have for other caregivers?...

PTSD and SCD

Do you have PTSD from an experience relating to sickle cell? This could be from a pain crisis or an experience in the ER. Share with others in the community...

Sickle Cell Awareness Month 2021

What are you doing this month to be heard during sickle cell awareness month? This is a great place to share resources and ways to be involved this month....

Self care!

What are your go-to self care activities? ...

Traveling and Retail therapy

I enjoy traveling and seeing the world and seeing what other states have to offer. I have visited several already traveling either on a plane or anorak. I also enjoy...

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