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Read conversations, start a discussion, and connect with others about sickle cell.

Disclosing Your Diagnosis

There is a lot of stigma and misconceptions about sickle cell disease. Have you had trouble telling people you have sickle cell?...

How do you like to hydrate?

As the weather heats up, hydration becomes even more important. Do you have a favorite way to hydrate? Plain water? Sparkling water?...

How do you deal with the Jaundice that sometimes comes with have SSC?

Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell...

Mental Health Month

May is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it?...

What are your summer triggers?

Are there things that you have to watch out for in the summer time, or is your disease better managed?...

2 Questions about this graph: (please view graph)

For context this graph is about 2 patients who received a CTX001 infusion. (CRISPR-Cas9 treatment) One month after infusion HbA skyrockets. Why...

my life so far

hi my name is Joshua i am from Kenya i was born with Sickle cell anemia i am 18 but i have...

Women's History Month

What are some unique challenges women with sickle cell face?...

Sc disease - Sickle cell

Not sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of...

2nd Sickle Cell In America Survey

Sickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with...

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