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Read conversations, start a discussion, and connect with others about sickle cell.

How do you deal with the Jaundice that sometimes comes with have SSC?

Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...

Mental Health Month

May is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it?...

What are your summer triggers?

Are there things that you have to watch out for in the summer time, or is your disease better managed?...

2 Questions about this graph: (please view graph)

For context this graph is about 2 patients who received a CTX001 infusion. (CRISPR-Cas9 treatment) One month after infusion HbA skyrockets. Why is this and is this a problem? In...

my life so far

hi my name is Joshua i am from Kenya i was born with Sickle cell anemia i am 18 but i have not experienced puberty i am always discriminated even...

Women's History Month

What are some unique challenges women with sickle cell face?...

Sc disease - Sickle cell

Not sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of doing testosterone replacement therapy but I don’t know...

2nd Sickle Cell In America Survey

Sickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...

Travel Tips

What have you found helpful to pack for when you travel?...

Ways to Advocate

In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...

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