2 Questions about this graph: (please view graph)For context this graph is about 2 patients who received a CTX001 infusion. (CRISPR-Cas9 treatment) One month after infusion HbA skyrockets. Why is this and is this a problem? In...reactions1replyResearch & Clinical TrialsSide EffectsSymptoms
my life so farhi my name is Joshua i am from Kenya i was born with Sickle cell anemia i am 18 but i have not experienced puberty i am always discriminated even...reactions1reply
Women's History MonthWhat are some unique challenges women with sickle cell face?...reactions6repliesAwarenessCoping
Sc disease - Sickle cellNot sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of doing testosterone replacement therapy but I don’t know...reactions2repliesDiet & NutritionDiagnosis
2nd Sickle Cell In America SurveySickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...reactionsrepliesAwareness
Travel Tips What have you found helpful to pack for when you travel?...reactions3repliesTips & Advice
Ways to Advocate In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...reactions1replyAwarenessTips & Advice
Awareness Month Forum: Self Care!What self care activities do you enjoy? This could be journaling, yoga, napping...whatever you like doing. This is a space to share and connect with other warriors. Maybe someone shares...reactions37replies
Caregiver's Awareness MonthDid you know that November is Caregiver's Awareness Month? Are you a caregiver for someone? What are tips or questions that you have for other caregivers?...reactionsrepliesTips & AdviceCaregiving
PTSD and SCDDo you have PTSD from an experience relating to sickle cell? This could be from a pain crisis or an experience in the ER. Share with others in the community...reactions5repliesCopingMental Health