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Read conversations, start a discussion, and connect with others about sickle cell.

Has anyone used Kratom while managing sickle cell.

Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...

Patient concierge

I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...

How do you like to hydrate?

As the weather heats up, hydration becomes even more important. Do you have a favorite way to hydrate? Plain water? Sparkling water? Water with add-ins (like fruit or herbs)? Electrolyte...

How do you deal with the Jaundice that sometimes comes with have SSC?

Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...

Sc disease - Sickle cell

Not sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of doing testosterone replacement therapy but I don’t know...

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