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Disclosing Your Diagnosis

There is a lot of stigma and misconceptions about sickle cell disease. Have you had trouble telling people you have sickle cell? How do you decide when to say something?

  1. it is hard to open up about it most of the time because people have different reactions to these things. And in Ghana every illness is associated with evil and curse. I keep most of my things to myself. But I made sure everyone around me know that I am a sickle cell warrior. I say something whenever I get the chance because I don’t care anymore what people will think of me.

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