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Read conversations, start a discussion, and connect with others about sickle cell.

Pain Triggers

Do you know what your triggers are? ...

What is the first sign that lets you know a crisis is coming?

From emotional changes to fatigue & thirst, how do you typically know that a crisis is coming? Share below!...

Does cold weather trigger a pain crisis for you?

It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...

Individuals with HBSC

I would like to know does anyone have tingling/numbness in their feet and hands? Does anyone hurt in their joints on a constant bases? Does anyone be fatigued, depressed, and...

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Menstrual Cycles and Menopause

Women with sickle cell face unique challenges when it comes to hormones and menstrual cycles, with many saying they often trigger crises. With the increase in life expectancy, more and...

Posture Issues

Last week, one of our health leaders wrote a great article about how sickle cell and pain in general can impact posture. Do you have posture issues? Have you done...

2 Questions about this graph: (please view graph)

For context this graph is about 2 patients who received a CTX001 infusion. (CRISPR-Cas9 treatment) One month after infusion HbA skyrockets. Why is this and is this a problem? In...

Sickle cell trait

Do you have sickle cell trait? What are your symptoms? Do doctors take your pain seriously? ...

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