FeaturedWhat do you want your caregivers to know?What's the #1 thing friends and family members can do to support you (something they may not think of) in your sickle cell journey?...Reactions 0 reactions Comments1 repliesCaregiving
How to take care of a child living with sickle cell as a motherA have a 4yrs old son living with sickle cell and it as not been an easy one,need advice and counsel on how to take good care of him...Reactions 0 reactions Comments4 repliesAssistive Devices
Things never to say to a warriorLast week's article talked about things you should never say to a warrior. What would you add to the list, or what has been said to you that was unkind/untrue?...Reactions 0 reactions Comments1 repliesCoping
Finding Friends while having SicklecellIs it difficult for you to find or even keep friends while handling sicklecell?...Reactions 0 reactions Comments2 repliesFriends & Family
Posture IssuesLast week, one of our health leaders wrote a great article about how sickle cell and pain in general can impact posture. Do you have posture issues? Have you done...Reactions 0 reactions Comments1 repliesSymptoms
Controlling thoughts while in pain.What are some of the thing that go through your mind when you are down/sick due to SCD? ...Reactions 0 reactions Comments1 replies
COVID 19Have you had your Covid 19 vaccination already? Do you think it’s safe for SCD patients to take the COVID 19 vaccine? What are your fears when it comes to...Reactions 0 reactions Comments4 replies
CopingDo you find it difficult to sustain your relationships because of sickle cell?? How do you cope with lonely days?...Reactions 0 reactions Comments5 repliesCoping
World sickle cell awareness monthI am so excited about world sickle cell awareness month.. Can’t wait to experience the power of all you amazing warriors.. it’s going to be so colorful . I can...Reactions 0 reactions Comments0 repliesAwareness
WHAT MAKES ME A WARRIORI am a warrior because I am happy and live my best life even though sickle cell gets in the way too many times. What is your warrior phrase? WHAT...Reactions 0 reactions Comments3 repliesCoping