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Read conversations, start a discussion, and connect with others about sickle cell.

Aging With Sickle Cell

Hello, I’m A Sickle Cell Warrior & I’m 26yrs Old I Had Gotten Diagnosed When I Was Just 2wks Old Of Being...

Do you exercise?

Walking, weights, tai chi... What kind of exercise do you do? If you don't exercise, why not?...

Feeling judged?

Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your...

Just give me your hand

Hey I want to tell my story since I was in the hospital and the pain was all over me. No one...

Will you take our In America survey to share the truth about life with sickle cell?

There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living...

Patient concierge

I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas...

I’m here to meet and do more in creating awareness

Awesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become...

Should I start on hydroxurea?

I am 49 years old. I have been having more crisis than before and the doctors believe this is influenced by menopause...

Reaching out to the hinterlands

With my little stay here, I noticed most of the active members here base abroad. well that's great for you all. Living...

Individuals with HBSC

I would like to know does anyone have tingling/numbness in their feet and hands? Does anyone hurt in their joints on a...

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