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Read conversations, start a discussion, and connect with others about sickle cell.

Andres Story

Can someone help me understand why no one is taking my son’s pains and difficulty with gout seriously? His sickle cell trait...

What are the major challenges faced by SCD patients at age 40 and above?

Give causes and remedies to the challenges....

Warriors with brain

Hi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting...

What coping methods help with anxiety, fear and loneliness?

Since my last hospital visit I have been anxious, fearful and kinda lonely. I didn't experience anything different during hospitalization but I...

Does a warm climate make you feel better or worse?

So I'm currently in Jamaica. I've been here for 6 months now due to covid. I usually come as often as I...

Breathe control

How do u manage your breathe before or during a crisis?...

How does sickle cell affect your dating and intimacy life?

This is a safe space to ask questions and share your experience with dating and intimacy while living with sickle cell. ...

Have you experienced workplace discrimination?

What have you done when you have been discriminated against because of sickle cell? What kind of discrimination have you faced?...

Self care!

What are your go-to self care activities? ...

Where Do I Go From Here?

Being born with sickle cell, I was constantly in and out of the hospital. Once I got older, it calmed down a...

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