Warriors with brain
Hi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting married. As a nurse, I always advice couples to know their sickling status before heading to marriage, until I met my husband. The love was really deep and we were willing to do everything possible to get married knowing very well of our genotype (both As).We are blessed with three kids who are all SCD. The journey has not been easy. The stress, regular hospitalization and excuse duties were devastating. But God has been our strength. My kids are a blessing in disguise. They are very intelligent in all areas.And am proud to call them my children .
I'm glad you found true love with your spouse. Your children are blessed to have you both as parents but as they get older, it's important to have conversations with them about your decision to get married. Sickle cell is a debilitating blood disease and as you age, the complications can get worse. Although they have each other, navigating sickle cell disease is not an easy task so check in with them frequently. A lot of warriors may feel resentment toward their parents, especially when dealing with vast-occlusive pain because the burden of the disease affects all facets of the patient's life. Support them but also empower them to connect with sickle cell advocates who can be pillars of support as well.
Hi
, thanks so much for sharing! So glad to hear that you found true love. Do you have any tips for other couples with genotype AS that are considering having children? Thanks, Allison (Team Member)
