Live Your Best Life...I have been living with sickle cell disease for 59 years. I have been able to accomplish many things. I am married...reactions2comments
Running on Empty...I think it is time to focus and acknowledge that I, like other chronically ill people and people with sickle cell, struggle...reactionscomments
Lessons from My Hip Replacement Journey...Living with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for...reactionscomments
Sickle Cell and Menstruation...Sickle cell disorder (SCD) causes problems and difficulties in anyone’s life. For women, SCD can also cause certain unique problems. A common...reactions5comments
Essential Questions for Sickle Cell Caregivers...As a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle...reactionscomments
A Warrior's Call...My story with sickle cell disease starts like many others being born with the condition, but I also have a twin brother...reactionscomments
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right...
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing...
Honored Sickle Cell Journey...I have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I...reactions2comments
A Life Worth Living: How a Shorter Life Expectancy Affected Me...Editor’s note: As of September 2024, Oxbryta® (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns...reactions3comments
Life with Sickle Cell in a Warmer Paradise: My Journey to Wellness...Living with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has...reactionscomments
7 Tips to Prepare Sickle Cell Warriors for Vacation...As a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them...reactions3comments
Sickle Cell Awareness Day: How and Why We Raise Awareness...For this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease...reactionscomments
What Is Sickle Cell Anemia?...Sickle cell anemia (Hbss) is a condition of the red blood cells. It is part of a group of disorders called sickle...reactionscomments
Age Is Just a Number: Confronting Life Expectancy With Sickle Cell...Today, progress in treating and managing sickle cell disease (SCD) is helping people with the condition live longer than ever before. In...reactionscomments
The Power of Positivity: Nurturing Hope...How many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a...reactionscomments
Sickle Cell Advocacy and Activism...Today, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with...reactionscomments
