Nurturing Meaning and Purpose...Life is full of ups and downs, and declining health can sometimes make it challenging to maintain a sense of meaning and purpose. Finding meaning and purpose in life has...Reactions0reactionsComments0 comments
Here We Go Again...The last time I talked about love over two years ago, I thought I had met the one. What a cliche. I'm not sure if there is just one right...Reactions0reactionsComments0 comments
Story ...Hi new to this my name is letrai i was diagnosed with sickle cell at birth and been dealing with it all my life struggle after struggle had a stroke...Reactions0reactionsComments1 repliesDiagnosisAwarenessCoping
The Best Part of Living with Sickle Cell That You Might Be Ignoring...Why do some people think nothing good can come from living with sickle cell? They feel like every day is miserable for someone living with this disease. Maybe they need...Reactions0reactionsComments0 comments
Sickle Cell Warrior Role Model ...Has a fellow warrior inspired you along your journey? Share about them below!...Reactions0reactionsComments0 repliesFriends & Family
Sickle cells and dating ...I been diagnosed with sickle cell about 3 years ago and it’s been difficult for me to find friends and share my experience with others...Reactions0reactionsComments0 replies
How to Prepare Your Child With Sickle Cell To Have a Safe and Enjoyable Summer...Summer is a time for fun and adventure, but for sickle cell caregivers, it can also be a time of increased worry. With the warmer weather comes outdoor activities like...Reactions0reactionsComments0 comments
Sickle Cell Crisis Triggers...Sickle cell disease is a disorder that affects your blood’s ability to carry oxygen throughout your body. It is the most common gene blood disorder in the United States, meaning...
Connect With Other Sickle Cell Warriors!...Living with sickle cell can sometimes feel like a lonely journey, but remember, you are not alone! Our community is filled with other warriors that understand the unique challenges and...Reactions0reactionsComments10 replies
Withdrawing from Those Around Me...When my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...Reactions0reactionsComments6 comments
My Child's Testing & Appointment Schedule...I often talk to parents about sickle cell disease (SCD), even if they do not have a child with SCD. I recently had an interesting conversation with a mom, and...Reactions0reactionsComments5 comments
Not Really Lonely...I am 57 now. My journey like yours have been painful and buckets full of tears. I dislike sympathy especially the one my mother gives me. I am her only...Reactions0reactionsComments2 comments
I am a Father of SCD Child...Hi, my daughter was diagnosed with Sickle Cell Disease (SCD) when she was 1 year old. She is currently a year 4months now and 2days ago we noticed that her...Reactions0reactionsComments1 replies
My lovely girl friend with sickle cell...I hv my girlfriend with sickle cell anemia but she's loves me so much and me I do but she want me to marry her , I'm still scared of...Reactions0reactionsComments1 replies
Just give me your hand ...Hey I want to tell my story since I was in the hospital and the pain was all over me. No one in that hospital knew what my problem was...Reactions0reactionsComments0 replies
52 living with sickle cell ...My childhood was painful always swollen and in pain legs feet joints ... In my time they said I had juvenile arthritis.. terrible fever . No one dr knew ...Reactions0reactionsComments2 replies
The Placebo Effect...Our minds are really amazing. They can make us believe we’re not in pain when we should be or that we are in pain/danger when we’re not. I really believe...Reactions0reactionsComments8 comments
The Rise and Fall of My Mental Health With Sickle Cell...We all know that mental health and mental health issues are not talked about enough and I feel like it is because it is not encouraged in many homes, especially...Reactions0reactionsComments6 comments
Educating Our Kids Living With Sickle Cell...I am proud to announce that my newest children's book will be published in the summer of 2023. It will be a special book that I wrote together with my...Reactions0reactionsComments3 comments
FeaturedFavorite books, podcasts, or social media accounts for sickle cell information...What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...Reactions0reactionsComments6 repliesAwareness
