Lead Poisoning and Sickle Cell Disease...Greetings, I am Paris and I have SS sickle cell disease. My mother was told I would be born with the disease before I was born. I was born in...Reactions0reactionsComments0 comments
Sickle Cell and l...I myself am a 57 year old warrior. Diagnosed at birth, but still don’t know who had the trait or the disease. My parents say they didn’t have a trait...Reactions0reactionsComments0 comments
My name is Myron, I'm a Kenyan...My journey with sickle cell disease started at five months old. I had a severe pain crisis and I couldn't learn how to walk until two years later. I have...Reactions0reactionsComments0 comments
Live the Moment...I am 25 years old and have lived with sickle cell anemia since I was six months old. The crises are the worst; the pain and the fear that I...Reactions0reactionsComments0 comments
Still Kicking at 52...Hello, my name is Tammy and I have been living with sickle cell disease for 52 years. I was born in 1969 and babies were not yet screened for this...Reactions0reactionsComments0 comments
Being Kicked Out of the Hospital...I am currently in the hospital but tonight is going to be my last night unfortunately even though I am still in an excruciating amount of pain. I am basically...Reactions0reactionsComments0 comments
How to manage sickle cell...Hi, I have a daughter of 6years but she's sickle cell She always complain of stomach pain...Reactions0reactionsComments1 replies
FeaturedNew FDA treatment for SCD...The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions0reactionsComments9 repliesTreatment
The Importance of Sickle Cell Caregiver Education and How to Help...It has been almost 2 years since my little princess was diagnosed with chronic back pain. In several articles, I have shared my experience and I believe that it is...Reactions0reactionsComments0 comments
Embracing a Holistic Lifestyle with Sickle Cell...Living with sickle cell is a unique journey that often requires careful consideration of various aspects of our health and well-being. Transitioning to a holistic lifestyle can be both empowering...Reactions0reactionsComments0 comments
Nurturing Meaning and Purpose...Life is full of ups and downs, and declining health can sometimes make it challenging to maintain a sense of meaning and purpose. Finding meaning and purpose in life has...Reactions0reactionsComments0 comments
Here We Go Again...The last time I talked about love over two years ago, I thought I had met the one. What a cliche. I'm not sure if there is just one right...Reactions0reactionsComments0 comments
Story ...Hi new to this my name is letrai i was diagnosed with sickle cell at birth and been dealing with it all my life struggle after struggle had a stroke...Reactions0reactionsComments1 repliesDiagnosisAwarenessCoping
The Best Part of Living with Sickle Cell That You Might Be Ignoring...Why do some people think nothing good can come from living with sickle cell? They feel like every day is miserable for someone living with this disease. Maybe they need...Reactions0reactionsComments0 comments
Sickle Cell Warrior Role Model ...Has a fellow warrior inspired you along your journey? Share about them below!...Reactions0reactionsComments0 repliesFriends & Family
Sickle cells and dating ...I been diagnosed with sickle cell about 3 years ago and it’s been difficult for me to find friends and share my experience with others...Reactions0reactionsComments0 replies
How to Prepare Your Child With Sickle Cell To Have a Safe and Enjoyable Summer...Summer is a time for fun and adventure, but for sickle cell caregivers, it can also be a time of increased worry. With the warmer weather comes outdoor activities like...Reactions0reactionsComments0 comments
Sickle Cell Crisis Triggers...Sickle cell disease is a disorder that affects your blood’s ability to carry oxygen throughout your body. It is the most common gene blood disorder in the United States, meaning...
Connect With Other Sickle Cell Warriors!...Living with sickle cell can sometimes feel like a lonely journey, but remember, you are not alone! Our community is filled with other warriors that understand the unique challenges and...Reactions0reactionsComments10 replies
Withdrawing from Those Around Me...When my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...Reactions0reactionsComments6 comments
