How it feels when I don't have anybody to share my feelings with...I feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...reactions1reply
New Beginnings Settling In...After my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I...reactionscomments
Will you take our In America survey and help others understand the true impact of sickle cell disease? ...The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...reactionsrepliesAwareness
Sleeves Up for Sickle Cell...Sickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this...reactionscomments
A Nigerian Warrior's Story...My name is Ronke, and I am a Nigerian. I am 17 years of age and diagnosed with SS. I discovered my sickness very late in 2022. I left my...reactionscomments
Self-Conscious of My Appearance...l had a stroke when l was 5 years old. Growing up has been difficult for me because of my appearance and the way that l look compared to my...reactions1comment
Why? The Moon and My Tears...It's 1996, I am 30 years old, and I just finished my National Youth Service Corp (NYSC) in Nigeria. I was quite healthy that period with occasional crises mixed with...reactionscomments
My Journey as a Sickle Cell Patient...Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease...reactionscomments
Hope ...I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...reactions2repliesCoping
Lead Poisoning and Sickle Cell Disease...Greetings, I am Paris and I have SS sickle cell disease. My mother was told I would be born with the disease before I was born. I was born in...reactionscomments
Sickle Cell and l...I myself am a 57 year old warrior. Diagnosed at birth, but still don’t know who had the trait or the disease. My parents say they didn’t have a trait...reactionscomments
My name is Myron, I'm a Kenyan...My journey with sickle cell disease started at five months old. I had a severe pain crisis and I couldn't learn how to walk until two years later. I have...reactionscomments
Live the Moment...I am 25 years old and have lived with sickle cell anemia since I was six months old. The crises are the worst; the pain and the fear that I...reactionscomments
Still Kicking at 52...Hello, my name is Tammy and I have been living with sickle cell disease for 52 years. I was born in 1969 and babies were not yet screened for this...reactionscomments
Being Kicked Out of the Hospital...I am currently in the hospital but tonight is going to be my last night unfortunately even though I am still in an excruciating amount of pain. I am basically...reactionscomments
How to manage sickle cell...Hi, I have a daughter of 6years but she's sickle cell She always complain of stomach pain...reactions1reply
FeaturedNew FDA treatment for SCD...The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...reactions9repliesTreatment
The Importance of Sickle Cell Caregiver Education and How to Help...It has been almost 2 years since my little princess was diagnosed with chronic back pain. In several articles, I have shared my experience and I believe that it is...reactionscomments
Embracing a Holistic Lifestyle with Sickle Cell...Living with sickle cell is a unique journey that often requires careful consideration of various aspects of our health and well-being. Transitioning to a holistic lifestyle can be both empowering...reactionscomments
Nurturing Meaning and Purpose...Life is full of ups and downs, and declining health can sometimes make it challenging to maintain a sense of meaning and purpose. Finding meaning and purpose in life has...reactionscomments
