What Is Sickle Cell Anemia?...Sickle cell anemia (Hbss) is a condition of the red blood cells. It is part of a group of disorders called sickle...reactionscomments
Age Is Just a Number: Confronting Life Expectancy With Sickle Cell...Today, progress in treating and managing sickle cell disease (SCD) is helping people with the condition live longer than ever before. In...reactionscomments
The Power of Positivity: Nurturing Hope...How many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a...reactionscomments
Sickle Cell Advocacy and Activism...Today, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with...reactionscomments
Challenging ER Visits...OMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the...reactions1comment
Living with Chronic Pain...Living with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts...reactionscomments
New Beginnings Settling In...After my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful...reactionscomments
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
The Challenges of Invisible Illnesses and Intimacy...Sickle cell disease (SCD) can affect sex and intimacy for both men and women. Pain and other physical complications can impact the...reactions2comments
Priapism and Sickle Cell Disease...Men with sickle cell disease (SCD) can experience a complication called priapism. This is an unwanted erection, which may last for any...
Bossing of the Skull...Abnormal bone growth is a common symptom for children with sickle cell disease(SCD). It usually occurs because of anemia. An enlarged forehead...
What Causes Sickle Cell Disease?...Sickle cell disease (SCD) is a genetic disorder caused by a mutation in the HBB gene. This gene provides instructions for the...
Things I Cannot Do With Avascular Necrosis...Avascular necrosis (AVN) is a sickle cell complication that begins suddenly and quickly progresses from stage I to stage IV even without...reactions5comments
Jaundice and Sickle Cell Disease...Jaundice is a common early symptom of sickle cell disease (SCD). It happens when sickled red blood cells die faster than the...
Abdominal Pain and Sickle Cell Disease...The most common symptom of sickle cell disease (SCD) is acute pain. Pain can affect any part of the body, but the...
Can My Diet Help Manage My Pain Crises?...A balanced diet is beneficial for everyone, but it is especially important for people with sickle cell disease (SCD). SCD is linked...reactions4comments
Infections and Sickle Cell Disease...Sickle cell disease (SCD) often causes spleen damage and other immune system problems. This makes people with SCD more likely to experience...
Dactylitis and Sickle Cell Disease...Dactylitis, or hand-foot syndrome, is often the first symptom experienced by children with sickle cell disease (SCD). It is a condition associated...
Types of Sickle Cell...Sickle cell disease is a group of inherited disorders. The specific type of SCD a person has depends on which HBB gene...
Exercise and Athletics With Sickle Cell Disease...Regular exercise is healthy for everyone, including people with sickle cell disease (SCD). However, people with SCD should keep exercises mild and...