Connect With Other Sickle Cell Warriors!...Living with sickle cell can sometimes feel like a lonely journey, but remember, you are not alone! Our community is filled with other warriors that understand the unique challenges and...Reactions0reactionsComments10 replies
Withdrawing from Those Around Me...When my pain levels rise, I tend to withdraw from those around me. What comes to my mind is the safety mechanism of the turtle when the turtle has to...Reactions0reactionsComments6 comments
My Child's Testing & Appointment Schedule...I often talk to parents about sickle cell disease (SCD), even if they do not have a child with SCD. I recently had an interesting conversation with a mom, and...Reactions0reactionsComments5 comments
Not Really Lonely...I am 57 now. My journey like yours have been painful and buckets full of tears. I dislike sympathy especially the one my mother gives me. I am her only...Reactions0reactionsComments2 comments
I am a Father of SCD Child...Hi, my daughter was diagnosed with Sickle Cell Disease (SCD) when she was 1 year old. She is currently a year 4months now and 2days ago we noticed that her...Reactions0reactionsComments1 replies
My lovely girl friend with sickle cell...I hv my girlfriend with sickle cell anemia but she's loves me so much and me I do but she want me to marry her , I'm still scared of...Reactions0reactionsComments1 replies
Just give me your hand ...Hey I want to tell my story since I was in the hospital and the pain was all over me. No one in that hospital knew what my problem was...Reactions0reactionsComments0 replies
52 living with sickle cell ...My childhood was painful always swollen and in pain legs feet joints ... In my time they said I had juvenile arthritis.. terrible fever . No one dr knew ...Reactions0reactionsComments2 replies
The Placebo Effect...Our minds are really amazing. They can make us believe we’re not in pain when we should be or that we are in pain/danger when we’re not. I really believe...Reactions0reactionsComments8 comments
The Rise and Fall of My Mental Health With Sickle Cell...We all know that mental health and mental health issues are not talked about enough and I feel like it is because it is not encouraged in many homes, especially...Reactions0reactionsComments6 comments
Educating Our Kids Living With Sickle Cell...I am proud to announce that my newest children's book will be published in the summer of 2023. It will be a special book that I wrote together with my...Reactions0reactionsComments3 comments
FeaturedFavorite books, podcasts, or social media accounts for sickle cell information...What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...Reactions0reactionsComments6 repliesAwareness
How Parents of Children with Sickle Cell Disease Can Find Intimacy and Connection...I'm the mother of a child with sickle cell disease (SCD), and a few weeks ago while chatting with another sickle cell parent, she asked me about sickle cell and...Reactions0reactionsComments4 comments
A Warrior's Perspective on Mother's Day...My mother and I have a complicated relationship. I am not sure there is a mother-daughter relationship in existence that is not complicated. Treading the delicate balance between parent and...Reactions0reactionsComments0 comments
The Three Year Transplant Update...I can't believe it's been 3 years since my transplant. For most of my life, I thought sickle cell pain would always take center stage in my life, dictating where...Reactions0reactionsComments9 comments
Changing Roles: Allow Me to Reintroduce Myself...As of April 22, 2023, around 11:53 am, my life forever changed. I went from being Halimat Shadia Owolobi Olaniyan – author, philanthropist, sickle cell warrior and all-around pretty cool...Reactions0reactionsComments0 comments
My Medical Massage Experience...I try to treat myself periodically to a massage technique called medical massage from a licensed medical massage therapist. A massage therapist rubs and kneads the soft tissues of your...Reactions0reactionsComments4 comments
FeaturedWhat sickle cell opportunities are you most interested in?...Whether it’s attending virtual or in-person events, spreading awareness online, or learning more about sickle cell through webinars and podcasts, let us know what matters most to you and what...Reactions0reactionsComments2 repliesAwareness
The Benefits of Sunshine in My Life...I've always thought that there had to be some health benefits of sunshine. Growing up in dull England will make you start to wonder about these sorts of things. I...Reactions0reactionsComments5 comments
A Lonely journey...This article is for caregivers who sometimes feel lonely or sad. I've thought about it for a long time if it's smart to write about emotions when I'm a bit...Reactions0reactionsComments2 comments
