Ways to Raise Awareness About Sickle Cell...Hi Guys, my name is Grace. I am a wife, mother and I work as a full-time blogger. I also am living with sickle cell disease. In this video, I...reactionscomments
Chesterfield Hall...Growing up Chesterfield Hall was very active in sports and martial arts. Chesterfield was diagnosed in 2011 with sickle cell trait by his adult primary care physician. In 2011 he...
Do I Qualify for Medicare or Medicaid?...People with sickle cell disease (SCD) often face high healthcare costs. Paying for care costs from hospital visits, medical procedures, and prescription drugs can be costly. Health insurance in the...reactionscomments
Life Is Pain...I was born with sickle cell disease and I’m always in the hospital....reactions1comment
Finding Love with Sickle Cell...February is a month of celebration. It’s Black History Month, the month of love, and a time to acknowledge the impact of women in medicine. With Valentine’s Day, National Women...reactionscomments
Rare Disease Day® and Sickle Cell...There’s a day to recognize rare diseases like sickle cell disease! In the US, rare diseases are defined as conditions that affect less than 200,000 people. The definition of rare...reactionscomments
Thank You for Taking Our Survey!...We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with sickle cell. New here? We invite you to explore...reactionscomments
Donating Blood Can Support Those Living with Sickle Cell...Sickle cell disease (SCD) is a group of inherited disorders that affect red blood cells. SCD causes red blood cells to harden and become sticky. Cells also become C-shaped, or...reactionscomments
Finding Ways to Enjoy Snow Days...As a child, I remember getting really excited for snow days. I’d sit in front of my tv waiting for them to announce my school’s closure. I never really liked...reactionscomments
Heart Complications and Sickle Cell Disease...Sickle cell disease (SCD) is the most common inherited blood disorder in the United States. It is also a global health issue. The abnormally-shaped red blood cells can block blood...
Asthma and Sickle Cell Disease...Adults and children with sickle cell disease (SCD) often have asthma too. In fact, people with SCD have asthma at much higher rates than the general public. Asthma can get...
An Interview with Andressa Hunsel...Andressa is the author of the children's book Keemaya and The Beach: My Journey Living with Sickle Cell. Inspired by her daughter's experiences with sickle cell and her experience as...reactionscomments
Can My Diet Help Manage My Pain Crises?...A balanced diet is beneficial for everyone, but it is especially important for people with sickle cell disease (SCD). SCD is linked to low levels of essential nutrients including proteins...reactions4comments
A Hospital Visit During COVID-19...I want to quickly share my experience of being hospitalized during this pandemic. Now let me start this by saying I did not have COVID-19 (thank God), nor did I...reactionscomments
Resources for Sickle Cell...Do you or a loved one live with sickle cell disease (SCD)? There are resources that can help manage the condition. Some common questions that come up may include:...
Triggers, Tells, and Uncertainty...Triggers. I think most people see the word trigger and expect someone to be talking about or showing something violent. But when I say trigger, I mean something that happens...reactionscomments
Know Your Rights: Balancing Work And Health...A challenging aspect of living with sickle cell disease (SCD) can be finding and keeping a job. People with SCD often miss work because of complications or medical appointments. Recurring...reactionscomments
Living with an Invisible Illness Like Sickle Cell Disease...Acute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and explaining what you are feeling may be frustrating...reactions1comment
Why Do We Get Sick?...Whenever I get sick, I find myself analyzing everything I did leading up to my crisis trying to pinpoint the exact cause of my pain. Hoping that maybe I can...reactions3comments
Accepting My Disease...I figured out that things were a lot easier once I accepted my disease. We all know sickle cell is something that you are born with and although there is...reactions1comment