Honored Sickle Cell Journey...I have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I decided to enroll her in virtual school. This...reactions2comments
ADA Recommendations Examples & Navigating ADA request ...Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations that would help avoid being penalized for missed time...reactions1reply
Sickle Cell CONSTANTLY Getting Disrespected ...As sickle cell warriors are you constantly getting disrespected whenever you go to the hospital or the doctor or if you get weekly treatment? Your pain not getting taking seriously...reactions7repliesInsurance & DisabilityTreatmentHealthcare Team
A member named Marnita...I was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did I wouldn’t have children. I will be 63...reactions3replies
Life with Sickle Cell in a Warmer Paradise: My Journey to Wellness...Living with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...reactionscomments
Emergency ...Dear soldiers this priapism thing is killing me inside. Is there any help here for me?...reactions6replies
Dating, Love, Support, and SICKLE CELL...I'm in love with a woman who has sickle cells, dating her comes with different challenges, she has constant knee pain that limits us only to certain activities. She is...reactions7replies
7 Tips to Prepare Sickle Cell Warriors for Vacation...As a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give...reactions3comments
Sickle Cell Awareness Day: How and Why We Raise Awareness...For this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease (SCD)?" In response, they shared their personal experiences...reactionscomments
I’m a Sickle Cell Survivor...Hello, My name is Lisa. I was diagnosed at Cleveland Clinic, OH. I was sixteen months old. My mother said that I had started to walk until one morning she...reactions2replies
The Power of Positivity: Nurturing Hope...How many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a medical professional told you to be “positive.” In...reactionscomments
Sickle Cell Advocacy and Activism...Today, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...reactionscomments
How much is?...Good Day; I hope all are doing great. I live in Canada, have Sickle Cell Disease (SC), and I'm searching information on health services/insurances before I decide to move to...reactions1replyInsurance & Disability
A Warrior's Call...My story with sickle cell disease starts like many others being born with the condition, but I also have a twin brother, and he is going to save my life...reactionscomments
Challenging ER Visits...OMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess...reactions1comment
How it feels when I don't have anybody to share my feelings with...I feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...reactions1reply
New Beginnings Settling In...After my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I...reactionscomments
Will you take our In America survey and help others understand the true impact of sickle cell disease? ...The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...reactionsrepliesAwareness
Sleeves Up for Sickle Cell...Sickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this...reactionscomments
