Life with Sickle Cell in a Warmer Paradise: My Journey to Wellness...Living with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has always dreamed of basking in the sun and...Reactions0reactionsComments0 comments
Emergency ...Dear soldiers this priapism thing is killing me inside. Is there any help here for me?...Reactions0reactionsComments6 replies
Dating, Love, Support, and SICKLE CELL...I'm in love with a woman who has sickle cells, dating her comes with different challenges, she has constant knee pain that limits us only to certain activities. She is...Reactions0reactionsComments7 replies
7 Tips to Prepare Sickle Cell Warriors for Vacation...As a caregiver, I was encouraged and shocked to meet warriors who live limitless lives and have traveled the world. Meeting them inspired me to make sure that I give...Reactions0reactionsComments3 comments
Sickle Cell Awareness Day: How and Why We Raise Awareness...For this World Sickle Cell Day, we asked our Health Leaders, "How and why do you raise awareness for sickle cell disease (SCD)?" In response, they shared their personal experiences...Reactions0reactionsComments0 comments
I’m a Sickle Cell Survivor...Hello, My name is Lisa. I was diagnosed at Cleveland Clinic, OH. I was sixteen months old. My mother said that I had started to walk until one morning she...Reactions0reactionsComments2 replies
The Power of Positivity: Nurturing Hope...How many times have you had to tell yourself to be positive? Personally, I have stopped counting. How many times have a medical professional told you to be “positive.” In...Reactions0reactionsComments0 comments
Sickle Cell Advocacy and Activism...Today, I took one brief moment to glance at my reflection in the mirror, while I prepared for a big pitch with a pharmaceutical company. As I worked on my...Reactions0reactionsComments0 comments
How much is?...Good Day; I hope all are doing great. I live in Canada, have Sickle Cell Disease (SC), and I'm searching information on health services/insurances before I decide to move to...Reactions0reactionsComments1 repliesInsurance & Disability
A Warrior's Call...My story with sickle cell disease starts like many others being born with the condition, but I also have a twin brother, and he is going to save my life...Reactions0reactionsComments0 comments
Challenging ER Visits...OMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess...Reactions0reactionsComments1 comments
How it feels when I don't have anybody to share my feelings with...I feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...Reactions0reactionsComments1 replies
New Beginnings Settling In...After my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I...Reactions0reactionsComments0 comments
Will you take our In America survey and help others understand the true impact of sickle cell disease? ...The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...Reactions0reactionsComments0 repliesAwareness
Sleeves Up for Sickle Cell...Sickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this...Reactions0reactionsComments0 comments
A Nigerian Warrior's Story...My name is Ronke, and I am a Nigerian. I am 17 years of age and diagnosed with SS. I discovered my sickness very late in 2022. I left my...Reactions0reactionsComments0 comments
Self-Conscious of My Appearance...l had a stroke when l was 5 years old. Growing up has been difficult for me because of my appearance and the way that l look compared to my...Reactions0reactionsComments1 comments
Why? The Moon and My Tears...It's 1996, I am 30 years old, and I just finished my National Youth Service Corp (NYSC) in Nigeria. I was quite healthy that period with occasional crises mixed with...Reactions0reactionsComments0 comments
My Journey as a Sickle Cell Patient...Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease...Reactions0reactionsComments0 comments
Hope ...I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...Reactions0reactionsComments2 repliesCoping
