10 Questions to Ask Your Doctor When You Are Newly Diagnosed...It is often hard to know what to ask, or even where to begin when you have questions about a new diagnosis...reactionscomments
Loneliness: The Silent Symptom of Sickle Cell...It is not an understatement to say that it is harder to find lasting and meaningful friendships as one progresses into adulthood...reactions1comment
Misinformation on Living with Sickle Cell Trait...I’m 29 years old and the sickle cell community and doctors still have a lack of knowledge of sickle cell disease and...reactions1comment
Sickle Cell Disease in the Emergency Room...In recent years I have always wondered how we as a Sickle Cell community can make a sustainable contribution to the things...reactionscomments
Live Your Best Life...I have been living with sickle cell disease for 59 years. I have been able to accomplish many things. I am married...reactions2comments
Running on Empty...I think it is time to focus and acknowledge that I, like other chronically ill people and people with sickle cell, struggle...reactionscomments
Lessons from My Hip Replacement Journey...Living with sickle cell comes with many complications. At 17, I was diagnosed with AVN and by 23 I was begging for...reactionscomments
My Story...Hello, I was diagnosed at 18 months. My mother said I started to walk. One day she put shoes on my feet...reactions1reply
Some tips for managing Priapism at home...Wake up everyday with priapism. Home treatment suggestions thanks....reactions1replyTreatment
Essential Questions for Sickle Cell Caregivers...As a sickle cell caregiver, managing the condition can be overwhelming and challenging. I’m sure you may be aware of what sickle...reactionscomments
Living with Chronic Pain...Living with chronic pain is a complex and often misunderstood experience. Not only does it bring physical discomfort, but it also impacts...reactionscomments
Please help educate me...Hello, I am learning about ss, to try to help someone. I just read about cells going sickle when oxygen is lacking...reactions1reply
Honored Sickle Cell Journey...I have experienced a lot of difficulties for my daughter with her school. After years of fighting against the "school system" I...reactions2comments
ADA Recommendations Examples & Navigating ADA request ...Hello All, Just looking for suggestions and positive experiences to help my partner navigate work place discrimination and requesting ADA accommodations that...reactions1reply
Sickle Cell CONSTANTLY Getting Disrespected ...As sickle cell warriors are you constantly getting disrespected whenever you go to the hospital or the doctor or if you get...reactions7repliesHealthcare TeamInsurance & DisabilityTreatment
A member named Marnita...I was diagnosed with Sickle Cell at birth and was told I wouldn’t live passed 2 years old and if I did...reactions3replies
Life with Sickle Cell in a Warmer Paradise: My Journey to Wellness...Living with sickle cell in a warmer climate has been both a challenge and a blessing for me. As someone who has...reactionscomments
Emergency ...Dear soldiers this priapism thing is killing me inside. Is there any help here for me?...reactions6replies
Dating, Love, Support, and SICKLE CELL...I'm in love with a woman who has sickle cells, dating her comes with different challenges, she has constant knee pain that...reactions7replies
