Challenging ER Visits...OMG it has been quite a journey the past few weeks. It has been awhile since I needed to go to the Emergency Room with my princess. My little princess...Reactions0reactionsComments1 comments
How it feels when I don't have anybody to share my feelings with...I feel like i can't be my true self around people, so I have to put on a mask and pretend to be someone am not, nobody want to listen...Reactions0reactionsComments1 replies
New Beginnings Settling In...After my European escapade and tour of the Midwest I moved into my new apartment in Indianapolis. Moving is so unnecessarily stressful from apartment hunting to tours and applications. I...Reactions0reactionsComments0 comments
Will you take our In America survey and help others understand the true impact of sickle cell disease? ...The In America survey is now closed. To better understand the patient experience and realities of living with sickle cell, we are fielding our Sickle Cell In America survey. By...Reactions0reactionsComments0 repliesAwareness
Sleeves Up for Sickle Cell...Sickle cell disease (SCD) is a genetic disorder that affects millions of people worldwide. In the United States alone, it is estimated that more than 100,000 people live with this...Reactions0reactionsComments0 comments
A Nigerian Warrior's Story...My name is Ronke, and I am a Nigerian. I am 17 years of age and diagnosed with SS. I discovered my sickness very late in 2022. I left my...Reactions0reactionsComments0 comments
Self-Conscious of My Appearance...l had a stroke when l was 5 years old. Growing up has been difficult for me because of my appearance and the way that l look compared to my...Reactions0reactionsComments1 comments
Why? The Moon and My Tears...It's 1996, I am 30 years old, and I just finished my National Youth Service Corp (NYSC) in Nigeria. I was quite healthy that period with occasional crises mixed with...Reactions0reactionsComments0 comments
My Journey as a Sickle Cell Patient...Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease...Reactions0reactionsComments0 comments
Hope ...I’m 25 years of age,living in Nigeria..been diagnosed ever since I was born And I spent my early years in hospital..I’ve had 1 blood transfusion so far and sometimes when...Reactions0reactionsComments2 repliesCoping
Lead Poisoning and Sickle Cell Disease...Greetings, I am Paris and I have SS sickle cell disease. My mother was told I would be born with the disease before I was born. I was born in...Reactions0reactionsComments0 comments
Sickle Cell and l...I myself am a 57 year old warrior. Diagnosed at birth, but still don’t know who had the trait or the disease. My parents say they didn’t have a trait...Reactions0reactionsComments0 comments
My name is Myron, I'm a Kenyan...My journey with sickle cell disease started at five months old. I had a severe pain crisis and I couldn't learn how to walk until two years later. I have...Reactions0reactionsComments0 comments
Live the Moment...I am 25 years old and have lived with sickle cell anemia since I was six months old. The crises are the worst; the pain and the fear that I...Reactions0reactionsComments0 comments
Still Kicking at 52...Hello, my name is Tammy and I have been living with sickle cell disease for 52 years. I was born in 1969 and babies were not yet screened for this...Reactions0reactionsComments0 comments
Being Kicked Out of the Hospital...I am currently in the hospital but tonight is going to be my last night unfortunately even though I am still in an excruciating amount of pain. I am basically...Reactions0reactionsComments0 comments
How to manage sickle cell...Hi, I have a daughter of 6years but she's sickle cell She always complain of stomach pain...Reactions0reactionsComments1 replies
FeaturedNew FDA treatment for SCD...The US FDA approved the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older this month. Have you heard? What are...Reactions0reactionsComments9 repliesTreatment
The Importance of Sickle Cell Caregiver Education and How to Help...It has been almost 2 years since my little princess was diagnosed with chronic back pain. In several articles, I have shared my experience and I believe that it is...Reactions0reactionsComments0 comments
Embracing a Holistic Lifestyle with Sickle Cell...Living with sickle cell is a unique journey that often requires careful consideration of various aspects of our health and well-being. Transitioning to a holistic lifestyle can be both empowering...Reactions0reactionsComments0 comments
