Mental Health and Sickle Cell Disease...Complications of sickle cell disease (SCD) can cause a large emotional burden. Pain, fatigue, and sleep disturbance are linked to depression for...
Sleep Disorders and Sickle Cell Disease...Many people with sickle cell disease (SCD) experience poor sleep or sleep disruptions. Usually, it is caused by a type of sleep...
Alone Isn't Lonely...When sickle cell patients talk about how it affects their love life, most people think it’s an extreme exaggeration. Sadly, this is...reactions3comments
How To Deal With Tough Times...We all face tough times at some point in our lives whether that is going through a financial crisis or dealing with...reactions2comments
Financial Planning for a Transplant...September is Sickle Cell Awareness month so earlier this year, I launched a web project titled "The Diary of a #SickleCellProdigy". This...reactions1comment
Are You Feeling Invisible?...I have not been to the emergency room in years due to the treatment I received years ago. So, consider how I...reactions2comments
A LITTLE PAMPERING...So I've been in and out of the hospital continuously since 2019.. Started with pregnancy complications, then coma, emergency Cs, lung infection...reactions4comments
Stop Doing These Things...Hi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with...reactions1comment
What Is a Pain Management Specialist? Should I See One?...Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of...reactions1comment
I Appreciate You!...I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to...reactions2comments
Practicing Self-Care on a Budget...In the past, we have talked about the importance of self-care and shared examples of how you can practice it in your...reactionscomments
What I Wish Everyone Knew About Sickle Cell...Let's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is...reactions3comments
American Society of Hematology Sickle Cell Patient Care Guidelines...People with sickle cell disease (SCD) often have a lot of pain. SCD pain can happen suddenly and be severe, or it...reactionscomments
Deciding on a Career as a Physician with Sickle Cell...The third year of medical school is all about career exploration. We rotate through many of the major specialties in the field...reactions3comments
Surviving as a Crescent...Content note: This article talks about depression, suicide, and mental health. When I started accepting my sickle cell (SS) condition, people made...reactionscomments
Resources for Sickle Cell...Do you or a loved one live with sickle cell disease (SCD)? There are resources that can help manage the condition. Some...
Research Opportunity: Sickle Cell and Intimate Relations...Loma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners...reactions1comment
Thank You for Taking Our Survey!...We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with sickle...reactionscomments
Wunmi Bakare...Wunmi Bakare is a Patient Advocate and stem cell transplant recipient. At 18 months, she was diagnosed with the most severe type...
My Parents and Me...I was one year old when my mom found out I had sickle cell and then in Liberia and then she moved...reactions1comment
