Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer
puzzle showing various medications and treatments such as pills, lotion and blood bag with missing pieces

Take the Managing Treatment and Medication Survey

Editorial Team's avatar image

By Editorial Team

1 min read

The Managing Treatment and Medication Survey is now closed. Thank you for your interest!

Treatment is a big part of managing a chronic (long-term) health condition like sickle cell disease. Often, we are told to take medicine as prescribed or to follow the treatment plan. But what if that is not always possible?

By providing your email address, you are agreeing to our Privacy Policy and Terms of Use.

Throughout our journey as patients, we ask ourselves questions that affect how we manage sickle cell treatment. These questions include but are not limited to:

  • Will there be side effects?
  • Will it impact my ability to do my everyday tasks?
  • How much does it cost?
  • Did I refill my prescriptions?

Treatment is not always simple

There is more to managing sickle cell than just taking drugs on time as prescribed. We want to learn about the real experiences of people managing and treating sickle cell. By taking our Managing Treatment and Medication survey, you can help us recognize and better serve the interests of our community.

This survey should only take about 20 minutes to complete. All of your responses are completely anonymous. Your answers will be shared only in aggregate form with the Health Union communities, including Sickle-Cell.com.

Join the conversation

Please read our rules before commenting.