Research Opportunity: Sickle Cell and Intimate Relations
Loma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners as they navigate living with sickle cell disease.
What is the purpose of the study?
The purpose of this study is to understand better the experience of young adults (18-35) with sickle cell disease who are in intimate relationships. We hope to pave the way for the continued development of programs, treatment, and family-centered care geared toward supporting patients and their partners. Couples who agree to participate in this study will be asked to participate in a 1 to 2-hour individual virtual interview.
Will I be compensated?
All participants will receive a $10 amazon gift card (one per partner).
Am I eligible?
You are invited to participate in this study if you are:
- In a monogamous relationship in which only one of the two individuals has been diagnosed with some form (an expressed form of the disease, not trait) of sickle cell disease.
- Both you and your partner are available to participate in the study.
- Both you and your partner are young adults aged between 18 and 35.
- You have been in a relationship with your partner for at least one year
If you are interested in learning more about or joining this study, click the button below to complete the eligibility survey:
How can I learn about the outcomes of the study?
Participants will be given the option to participate in 30 minutes to 1-hour follow-up sessions to review findings with a member of our research team.
Do you consider yourself an advocate for sickle cell?