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...I introduced you to Sadiq, a 20-year-old young man who has sickle cell disease type SS in part one, Living with Sickle Cell: Sadiq's Story. Despite all the challenges, he...

...When I was in elementary school and first diagnosed with sickle cell anemia, I never talked about it honestly unless it was absolutely necessary. My mom didn’t want me to...

...Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with chronic conditions. "Quarantine," "social distancing," and "herd immunity"...

...In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand and say, “I’m so sorry you have to...

...When you live with sickle cell disease (SCD), it is important to drink plenty of water and other fluids. This helps you to stay hydrated. If you become dehydrated, your...

...I first understood what it meant to have sickle cell when I had my first crisis at 19. It is definitely different growing up as someone living with sickle cell...

...Hi guys, my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. We all know...

...I first understood what it meant to have sickle cell when I was growing up as a child in primary school. Often I would miss a lot of time off...

...Every year, an estimated 300,000 babies are born with sickle cell disease globally. Approximately 100,000 people are thought to live with sickle cell disease in the US. Over the past...

...World Sickle Cell Day is celebrated on June 19 every year. Established in 2008 by the United Nations General Assembly, World Sickle Cell Day acknowledges sickle cell disease as a...

...Like parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to Sadiq, a 20-year-old man who lives in Nigeria...

...Sickle cell disease is a blood disorder that affects many African Americans. If you know anybody with sickle cell, please understand the pain and suffering that they may have gone...

...World Sickle Cell Day is coming up on June 19! To celebrate a day that sheds much-needed awareness on sickle cell, we are giving away 1 insulated water bottle with...

...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like sickle cell disease...

...I’ve always loved birthdays; who doesn’t? As a child it was a day to be spoilt, pampered and dare I say, see who gives you the best present. But as...

...About 1.4 million adults in the United States identify as transgender. For transgender adults with sickle cell disease (SCD), necessary transgender care may be hard to access. Racial, gender, and...

...For some reason, it is so hard for people living with sickle cell disease (SCD) to speak freely or live freely. Sometimes, this happens out of care and love for us...

...In this video, I am joined by Dr. Patrick McGann from Cincinnati Children's Hospital. Dr. McGann is an academic pediatric hematologist who does research focusing on improving outcomes for children...