How to Make 2022 a Better Year With Sickle Cell...'I want this year to be better than last year.' Have you ever told yourself this? Sure you have. As humans, we...reactions3comments
Misconceptions on Drug Use and Dependency...Pain is unbearable, even for the strongest warrior and soldiers. The measurements health officials put on pain are totally unnecessary if you...reactions4comments
Sometimes It's Okay to Be Perceived as Defensive...One problem most SCD patients face is verbal abuse. The things people say to us are sometimes too mean and unfair. We...reactions10comments
Overcoming Anxiety...If you’ve read some of my other posts, you may know I have sickle cell anemia and anxiety. The thought of having...reactions2comments
Unheard...This winter has been unusual. We’ve managed to stay in the 60s temperature-wise through December. I’m not even sure it’s snowed. But...reactions7comments
Acute Chest Syndrome and Sickle Cell Disease...Acute chest syndrome (ACS) is a common and severe complication of sickle cell disease (SCD). It happens when blood flow to the...
Mental Health and Sickle Cell Disease...Complications of sickle cell disease (SCD) can cause a large emotional burden. Pain, fatigue, and sleep disturbance are linked to depression for...
Sleep Disorders and Sickle Cell Disease...Many people with sickle cell disease (SCD) experience poor sleep or sleep disruptions. Usually, it is caused by a type of sleep...
Alone Isn't Lonely...When sickle cell patients talk about how it affects their love life, most people think it’s an extreme exaggeration. Sadly, this is...reactions3comments
How To Deal With Tough Times...We all face tough times at some point in our lives whether that is going through a financial crisis or dealing with...reactions2comments
Financial Planning for a Transplant...September is Sickle Cell Awareness month so earlier this year, I launched a web project titled "The Diary of a #SickleCellProdigy". This...reactions1comment
Are You Feeling Invisible?...I have not been to the emergency room in years due to the treatment I received years ago. So, consider how I...reactions2comments
A LITTLE PAMPERING...So I've been in and out of the hospital continuously since 2019.. Started with pregnancy complications, then coma, emergency Cs, lung infection...reactions4comments
Stop Doing These Things...Hi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with...reactions1comment
What Is a Pain Management Specialist? Should I See One?...Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of...reactions1comment
I Appreciate You!...I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to...reactions2comments
Practicing Self-Care on a Budget...In the past, we have talked about the importance of self-care and shared examples of how you can practice it in your...reactionscomments
What I Wish Everyone Knew About Sickle Cell...Let's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is...reactions3comments
American Society of Hematology Sickle Cell Patient Care Guidelines...People with sickle cell disease (SCD) often have a lot of pain. SCD pain can happen suddenly and be severe, or it...reactionscomments
