Questioning Yourself?...A lot of things go through my mind. Especially now that I’m stuck on crutches due to vascular necrosis. I ask myself "why?" I know the importance of self-sufficiency, hope...reactions4comments
Women's History Month...What are some unique challenges women with sickle cell face?...reactions6repliesAwarenessCoping
Rebuilding My Confidence With AVN...I believe everyone living with sickle cell disorder has an idea of what avascular necrosis is. Even if you have not experienced it, you must have seen someone or heard...reactions3comments
How Can You Care For Me, If You Don't Care About Me?...To anyone who may witness me in a pain crisis, please do not judge me in my worst moment. Living with a chronic illness, especially one as painful as sickle...reactions6comments
Five Things I Wish I Knew Before the Transplant...I've said it about a million times, I'm happy I participated in a clinical trial and got a second chance at living my life without the limitations of sickle cell...reactions1comment
Prioritizing Self-Care After Transplant...Undergoing a transplant is a difficult process for children and adults because each stage - from conditioning to stem cell infusion, and recovery - poses a different challenge. A common...reactions1comment
Physical Activity...I like to believe that having sickle cell doesn’t at all limit my potential. That if I really want to do something, then I can. However, I have to say...reactions13comments
Change Makers Bundle Giveaway Terms and Conditions...Official Rules, Terms and Conditions for the Change Makers Bundle Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED...reactionscomments
2 Questions about this graph: (please view graph)...For context this graph is about 2 patients who received a CTX001 infusion. (CRISPR-Cas9 treatment) One month after infusion HbA skyrockets. Why is this and is this a problem? In...reactions1replyResearch & Clinical TrialsSide EffectsSymptoms
Ask the Advocates: Rare Disease Day...Rare Disease Day® is celebrated on the last day of February every year. This year, it falls on February 28, 2022. This day is designed to support those living with...reactionscomments
6 Health Goals For Warriors...Every year we promise ourselves that we will take our health seriously and do better with our health but we never really make that change. Sometimes we give up and...reactions3comments
Living Within My Means as a Warrior...I believe I was born to be rich. I can tell by the size of my dreams and aspirations. I set goals that scare me and keep me awake at...reactions6comments
A Close Encounter With COVID-19...As soon as you turn on the television you are confronted with the rising COVID-19 cases trend. This is not only in America but in many other countries. We are...reactionscomments
A Fireside Chat With Pain...For the last two years, I've suffered in silence because as a transplant recipient, a common misconception is that my life is remarkably blissful. Sickle cell pain is out the...reactions5comments
Fatigue...When I was little, and I would get sick, my mother would hardly ever let me skip school. She’d push me to get up and get ready, saying it would...reactionscomments
Sc disease - Sickle cell...Not sure if anyone knows but I got my blood work done and my testosterone levels are extremely low. I’m thinking of doing testosterone replacement therapy but I don’t know...reactions2repliesDiet & NutritionDiagnosis
5 Important Nutrients...Have you ever wondered why the majority of people living with sickle cell look younger and have a smaller stature than their peers? This can in part be traced to...reactions2comments
The Importance of Improving Your Nutrition...My name is Wunmi and I'm a foodie! Carbs, snacks, and sugary drinks are the way to my heart. I mean the heart wants what it wants and I need...reactions7comments
Unmade Memories...It is always wise to plan activities way ahead of time. This is supposed to help make the outcome be well planned out before the day to avoid stress and...reactions4comments
Legalization of Medical Marijuana: The Impact on Those Living With Chronic Health Conditions...Surveys show a majority of people in the United States are in favor of legalized marijuana for medical or recreational use. As of early 2022, cannabis for medical use, or...reactionscomments