Sometimes It's Okay to Be Perceived as Defensive...One problem most SCD patients face is verbal abuse. The things people say to us are sometimes too mean and unfair. We mostly can’t do anything about this. It practically...reactions10comments
Overcoming Anxiety...If you’ve read some of my other posts, you may know I have sickle cell anemia and anxiety. The thought of having multiple chronic illnesses is enough to make me...reactions2comments
Unheard...This winter has been unusual. We’ve managed to stay in the 60s temperature-wise through December. I’m not even sure it’s snowed. But this past weekend to bring in the new...reactions7comments
2nd Sickle Cell In America Survey...Sickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...reactionsrepliesAwareness
Alone Isn't Lonely...When sickle cell patients talk about how it affects their love life, most people think it’s an extreme exaggeration. Sadly, this is actually true. The first person I ever dated...reactions3comments
How To Deal With Tough Times...We all face tough times at some point in our lives whether that is going through a financial crisis or dealing with career stress. It happens to everyone and people...reactions2comments
Are You Feeling Invisible?...I have not been to the emergency room in years due to the treatment I received years ago. So, consider how I felt when I had to go last month...reactions2comments
Financial Planning for a Transplant...September is Sickle Cell Awareness month so earlier this year, I launched a web project titled "The Diary of a #SickleCellProdigy". This content series gives audiences a closer look at...reactions1comment
Will I Be A Good Parent? A Journey of Acceptance...Have you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math test. Or your driving test. You can practice...reactions1comment
Accepting the damage Sickle cell has on my mind....How often do you check on your mental health as an SCD warrior.. Well, I recently got diagnosed with bipolar disorder and I didn’t really like the truth about these...reactions10repliesMental HealthDepression
Rare In America: What’s That?...The "In America survey" is now closed. Are you one of the millions of people dealing with sickle cell disease? Whether you are looking to try new treatments, have your...reactionscomments
Active 6 days agoHow Do You Advocate for Yourself in the ER?...We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you have found to advocate for yourself in the...reactions5repliesTips & Advice
Asking for Help & Applying for Disability...I’m not very good at asking for helping when I’m sick. It’s ironic because I’m always seeking ways to help others and not afraid to ask for help when it...reactions5comments
My Crisis Triggers...Paying attention to my triggers was something I wasn’t good at when I was a child. My mum wouldn't let me go and play in the rain, but I didn’t...reactions2comments
Everyone Can Be an Advocate...I chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due to the toll sickle cell had had on...reactions2comments
Stop Doing These Things...Hi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with sickle cell disease. In this video, I am...reactions1comment
A LITTLE PAMPERING...So I've been in and out of the hospital continuously since 2019.. Started with pregnancy complications, then coma, emergency Cs, lung infection, kidney infection and most recent AVN.. Now it's...reactions4comments
What Is a Pain Management Specialist? Should I See One?...Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of reasons. These can include injury, nerve damage, surgery...reactions1comment
I Appreciate You!...I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to talk about those things that impact us who...reactions2comments
2022 World Sickle Cell Day Giveaway Terms and Conditions...Official Rules, Terms and Conditions for the 2022 World Sickle Cell Day Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID...reactionscomments
