A Day in the Life of a Sickle Cell Advocate (Part 2): Conversation With a Warrior...Do you ever have the feeling that you can't separate your advocate cap from your real life? I often have conversations with...reactions2comments
The Act of Fitting In...After my mum's death, I had to go and live with my aunty Mabel. Dad enrolled me in a private school called...reactions4comments
My Good and Bad Stress...My many forms of stress include the good and the bad. About a week ago, my motivational stress had me doing too...reactions3comments
Multidisciplinary Approaches to Caring for Sickle Cell Patient: An Interview With Dr. Sharon Singh...I sat with Dr. Sharon Singh, my previous pediatric hematologist and the head of the sickle cell team at the University of...reactionscomments
Sickle-Cell.com Giveaway Terms and Conditions...These Official Rules apply to any giveaway (or “Promotion”) published on Sickle-Cell.com, a Health Union (“Health Union” or “We”) owned and operated...reactionscomments
The Disparities in Patient Healthcare...As a child born in Nigeria, I was incredibly fortunate to have my Aunt-in-law, Dr. Dorothy Esangbedo, as my pediatric physician because...reactions9comments
Benefits of Support Groups for Sickle Cell...A support group is simply a gathering to discuss the challenges of a common issue. Members offer consolation, words of encouragement, and...reactions6comments
My Self-Care Routine...Self-care is very essential to living and growth. Maintaining the stand to choose yourself every time is a real struggle for most...reactions3comments
I'm Not Broken, Just Bent...Love isn't just a four-letter word; it is an intense feeling of genuine affection for someone else. Navigating love for someone with...reactionscomments
my life so far...hi my name is Joshua i am from Kenya i was born with Sickle cell anemia i am 18 but i have...reactions1reply
Recovering from Heart Break...I have a broken heart. It’s crazy because I genuinely thought I was done with those. I thought I had met and...reactions4comments
Most memorable healthcare experience...Hospitals and clinic visits are a big part of living with sickle cell. What is a memorable moment (good or bad) that...reactions4repliesHealthcare Team
A Day in the Life of a Sickle Cell Advocate...As a sickle cell advocate, you are sometimes confronted with very difficult situations. For a few months, I also do volunteer work...reactions2comments
Changing Healthcare Providers...It seems like that is all I know, CHANGE. Over a period of a few months, I have had to change several...reactionscomments
Temperamental Temperatures: Weather and Sickle Cell...The weather in the Midwest is just about as unpredictable as sickle cell pain is. It’s March, so it makes sense that...reactionscomments
How I Practice Self-Care...My name is Grace, I am a wife and mother, and I work as a full-time content creator. I also live with...reactions1comment
Recognizing Past Challenges and Prioritizing My Mental Health...Content Warning: This article discusses abuse and suicidal thoughts. If you or a loved one are experiencing suicidal thoughts, please text or...reactions5comments
Elle Cole...Elle Cole empowers moms and advocates for children with sickle cell disease. She is a mom of twin daughters, one of whom...
Music Therapy...Have you used music (either playing or listening) to help cope with pain and other symptoms? If so, what have you found...reactions6repliesCopingTips & Advice
Take the Health and Media Habits Survey!...The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments