Asking for Help & Applying for Disability...I’m not very good at asking for helping when I’m sick. It’s ironic because I’m always seeking ways to help others and...reactions5comments
Mourn With a Purpose: Channeling Sickle Cell Grief Into Advocacy...The loss of quality of life is a term that has been used in the context of a grieving person. The loss...reactions3comments
Life After Transplant: Understanding the 5 Pillars of Chronic Pain Management...One of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the...reactions5comments
Living Beyond 50 with Sickle Cell...Hello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the...reactions5comments
Sickle Cell Disease and COVID-19...Since late 2019, COVID-19 has become a household name. It has changed many aspects of daily life. Especially for those living with...reactionscomments
Overcoming the Fear of the Future...It feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming...reactions5comments
Living With Sickle Cell: Sadiq's Story...Like parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to...reactions2comments
Halimat Talks Periods, Birth Control, and Sickle Cell...This past March, Halimat sat down to have a conversation with herself in honor of Women's History Month and International Women's Day...reactionscomments
Sickle Cell Disease Speaks All Languages...Thanks to the Health Union, I was able to attend and speak during the sickle cell event in my home country, Suriname...reactionscomments
Recovering From a Crisis...Every sickle cell crisis leaves scars, bills, unforgettable experiences, etc. The trauma, pain, fear, and depression that sets in, do not only...reactionscomments
6 Tips to Help With Hydration...Hi Guys, my name is Grace. I am a wife, mother and work as a full-time blogger. I also live with sickle...reactionscomments
Tolu Tani-Olu's Story...My story begins when I was diagnosed with sickle cell when I was one years old. I lived with my family in...reactions1comment
Sickle Cell and Me...Hi, my name is Sakina. New here. I have always wanted to speak to people who understood my pains. I was diagnosed...reactions4comments
Why Do We Get Sick?...Whenever I get sick, I find myself analyzing everything I did leading up to my crisis trying to pinpoint the exact cause...reactions3comments
Keeping the Hope Alive...One of the hardest things to do is try to encourage yourself in your worse moments. It’s easy to smile and be...reactions3comments
Presenting on Sickle Cell at Conferences...Recently, I went to the American Society of Hematology’s (ASH) Annual Meeting. It was in Atlanta, and I was only given off...reactions3comments
Joint Pain and Sickle Cell Disease...Acute and chronic pain are very common for people with sickle cell disease (SCD). Almost 1 in 3 adults with SCD have...
Unconsciously Irritated...Not long ago I got a call from a friend who I actually consider a sister. She walked around for months with...reactions2comments
Learning to Cope With Survivor’s Guilt...Once upon a time, a warrior said to me "I'm sure after your transplant you'll turn your back on the sickle cell...reactions1comment
Pregnancy, Motherhood & Accepting the Limits of Sickle Cell...Pregnancy for me was an exciting time. It did not start with the usual morning sickness and discomfort that most people complain...reactionscomments
