52 living with sickle cell ...My childhood was painful always swollen and in pain legs feet joints ... In my time they said I had juvenile arthritis...reactions2replies
The Placebo Effect...Our minds are really amazing. They can make us believe we’re not in pain when we should be or that we are...reactions8comments
The Rise and Fall of My Mental Health With Sickle Cell...We all know that mental health and mental health issues are not talked about enough and I feel like it is because...reactions6comments
Educating Our Kids Living With Sickle Cell...I am proud to announce that my newest children's book will be published in the summer of 2023. It will be a...reactions3comments
FeaturedFavorite books, podcasts, or social media accounts for sickle cell information...What are your top recommendations for sickle cell-related books, podcasts, or accounts? Share in the comments below!...reactions6repliesAwareness
How Parents of Children with Sickle Cell Disease Can Find Intimacy and Connection...I'm the mother of a child with sickle cell disease (SCD), and a few weeks ago while chatting with another sickle cell...reactions4comments
A Warrior's Perspective on Mother's Day...My mother and I have a complicated relationship. I am not sure there is a mother-daughter relationship in existence that is not...reactionscomments
The Three Year Transplant Update...I can't believe it's been 3 years since my transplant. For most of my life, I thought sickle cell pain would always...reactions9comments
Changing Roles: Allow Me to Reintroduce Myself...As of April 22, 2023, around 11:53 am, my life forever changed. I went from being Halimat Shadia Owolobi Olaniyan – author...reactionscomments
My Medical Massage Experience...I try to treat myself periodically to a massage technique called medical massage from a licensed medical massage therapist. A massage therapist...reactions4comments
FeaturedWhat sickle cell opportunities are you most interested in?...Whether it’s attending virtual or in-person events, spreading awareness online, or learning more about sickle cell through webinars and podcasts, let us...reactions2repliesAwareness
The Benefits of Sunshine in My Life...I've always thought that there had to be some health benefits of sunshine. Growing up in dull England will make you start...reactions5comments
A Lonely journey...This article is for caregivers who sometimes feel lonely or sad. I've thought about it for a long time if it's smart...reactions2comments
Should I start on hydroxurea?...I am 49 years old. I have been having more crisis than before and the doctors believe this is influenced by menopause...reactions1reply
Creating A #SickleCellTribe...As I continue to foster relationships with fellow advocates, one thing rings true for all of us – we grew up not...reactions2comments
The Match...Have you heard of The Match? Well, it’s the most important day of medical school. The day all 4 years, and all...reactions2comments
Where Can I Find More Information About Sickle Cell Disease?...As a parent of a child with sickle cell disease (SCD), it is very important that we know exactly where to get...reactions4comments
A Recap of the Sickle Cell Leadership Summit...A few weeks ago, I was invited to the Sickle Cell Community Consortium's Leadership Summit in Atlanta. It was the first time...reactions1comment
Long-Term Effects of Chronic Pain...Pain is the primary reason that people with sickle cell disease (SCD) visit the emergency room. It is an extremely common symptom...reactions1comment
Sickle Cell & Chronic Pain: The Road to Recovery...My little princess has been diagnosed with chronic back pain since the summer of 2021. Every time I think about it or...reactions4comments
