Dating With an Invisible Illness...The other day I was speaking to a dear friend and we found ourselves digging up the "Ex files," thinking of love lost and love won. As we reflected on...Reactions0reactionsComments3 comments
The #1 Reason to Donate Blood...Growing up, I always knew my blood would be my highest hurdle. Imagine being made to carry your enemy inside of you. All the while it destroys you from the inside...Reactions0reactionsComments1 comments
Does exercise triggers pain crises? ...My Son has SCT, never had any issues until he started working out. He got interested in intensive speed running and suddenly he started complaining about pain. Is this normal...Reactions0reactionsComments1 replies
Living My Best Life...While the year is still new, I want to talk about all the exciting things going on in my life and share updates on all the things I’ve been working...Reactions0reactionsComments4 comments
My Pregnancy Experience With Sickle Cell Disease...My Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. I currently have a 5-year-old and I am pregnant with my...Reactions0reactionsComments3 comments
Releasing Childhood Trauma...Unfortunately for me, 2023 hasn't been off to a great start. In fact, the year started off with a series of unrelated health issues from increased chest pain to rigor...Reactions0reactionsComments5 comments
Struggles of Being an Advocate...Have you ever wondered what it is like to be a sickle cell advocate? I will explain a little about what that feels like but from a personal point of...Reactions0reactionsComments4 comments
New Year, New Me...Ha, kidding. I don’t really believe in New Year’s Resolutions, not just because most people make a list of unattainable and unsustainable goals, but because it’s too limiting. New Year’s...Reactions0reactionsComments2 comments
Has anyone used Kratom while managing sickle cell....Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...Reactions0reactionsComments2 repliesDiet & NutritionTips & AdviceCoping
Student nurse...Hello Everyone, I hope you are all well? I’m currently a student nurse, I have a presentation due which Centers around life long medical conditions. I decided after having my...Reactions0reactionsComments2 replies
A lesson learned...Before I got married I ran a genotype test,and the result came out that I as AA and my partner AS ,NOT knowing the lab attendant never carried out the...Reactions0reactionsComments1 replies
sicke cell anaemia...my son has sickle cell and i have roamed in search of penicillin v suspension but to no avail i feel like giving up dont know what to do...Reactions0reactionsComments2 replies
Warriors with brain...Hi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting married. As a nurse, I always advice couples...Reactions0reactionsComments2 replies
Lab-Grown Blood Research and Sickle Cell Disease...In late 2022, for the first time, scientists transfused lab-grown red blood cells into a person who was not the original cell donor. This exciting clinical trial in the UK...Reactions0reactionsComments1 comments
Dreams Unborn...Since we've just wrapped up 2022, it's time to start reflecting on how far we've come. As I think about the last 12 months, I can't help but feel a...Reactions0reactionsComments4 comments
How has race affected your patient journey?...In your opinion, how has bias affected your journey as a patient? How do you think your journey would be different if you were a different race? Share your thoughts...Reactions0reactionsComments1 replies
Building Virtual Community...When I was a child, I wasn’t allowed to have a private email address, let alone any social media accounts. Back then I thought it was unfair as all my...Reactions0reactionsComments4 comments
Preparing for Labor and Delivery with Sickle Cell...My Name is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. In a few short weeks, my family and I will be...Reactions0reactionsComments1 comments
Pain crisis at night time ...Hey warriors. I’m Ezekiel, a 21 year old Nigerian living with SCD and I’ve always wondered if anyone else who’s got SCD suffers from midnight crisis or is it just...Reactions0reactionsComments8 replies
Donating and Receiving Blood Products...Have you ever donated blood? I haven’t, which probably comes as no surprise. I didn’t always know though, that I couldn’t donate blood. In my mind, I thought there would...Reactions0reactionsComments3 comments