Search

...As I continue to foster relationships with fellow advocates, one thing rings true for all of us – we grew up not knowing any other person living with sickle cell...

...Have you heard of The Match? Well, it’s the most important day of medical school. The day all 4 years, and all the work before/outside of the 4 years, is...

...As a parent of a child with sickle cell disease (SCD), it is very important that we know exactly where to get the necessary information. A mother called me in...

...A few weeks ago, I was invited to the Sickle Cell Community Consortium's Leadership Summit in Atlanta. It was the first time health leaders, patient advocates, caregivers, pharmaceutical companies, and...

...Pain is the primary reason that people with sickle cell disease (SCD) visit the emergency room. It is an extremely common symptom for those living with SCD. Pain from SCD...

...My little princess has been diagnosed with chronic back pain since the summer of 2021. Every time I think about it or write about it, a piece of my heart...

...Remember when I was on my period and nervous about giving blood for the first time? Well, that appointment had to be rescheduled because of the weather, so crisis averted...

...I had a conversation with another warrior who is also a friend recently. We were just catching up when she asked how the change in weather was treating me and...

...Last year I wrote an article about the challenges I encountered at my daughter's school. Some of the accommodations we had in New Jersey for the 504 plan we don't...

...The other day I was speaking to a dear friend and we found ourselves digging up the "Ex files," thinking of love lost and love won. As we reflected on...

...Growing up, I always knew my blood would be my highest hurdle. Imagine being made to carry your enemy inside of you. All the while it destroys you from the inside...

...While the year is still new, I want to talk about all the exciting things going on in my life and share updates on all the things I’ve been working...

...My Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. I currently have a 5-year-old and I am pregnant with my...

...Unfortunately for me, 2023 hasn't been off to a great start. In fact, the year started off with a series of unrelated health issues from increased chest pain to rigor...

...Have you ever wondered what it is like to be a sickle cell advocate? I will explain a little about what that feels like but from a personal point of...