My Pregnancy Experience With Sickle Cell Disease...My Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. I currently have a 5-year-old and I am pregnant with my...reactions3comments
Releasing Childhood Trauma...Unfortunately for me, 2023 hasn't been off to a great start. In fact, the year started off with a series of unrelated health issues from increased chest pain to rigor...reactions5comments
Struggles of Being an Advocate...Have you ever wondered what it is like to be a sickle cell advocate? I will explain a little about what that feels like but from a personal point of...reactions4comments
New Year, New Me...Ha, kidding. I don’t really believe in New Year’s Resolutions, not just because most people make a list of unattainable and unsustainable goals, but because it’s too limiting. New Year’s...reactions2comments
Has anyone used Kratom while managing sickle cell....Let me preface this by saying it is legal in my state. I have begun to use it to help my body go through opioid withdrawals after being discharged from...reactions2repliesDiet & NutritionTips & AdviceCoping
Student nurse...Hello Everyone, I hope you are all well? I’m currently a student nurse, I have a presentation due which Centers around life long medical conditions. I decided after having my...reactions2replies
A lesson learned...Before I got married I ran a genotype test,and the result came out that I as AA and my partner AS ,NOT knowing the lab attendant never carried out the...reactions1reply
sicke cell anaemia...my son has sickle cell and i have roamed in search of penicillin v suspension but to no avail i feel like giving up dont know what to do...reactions2replies
Warriors with brain...Hi, I am Eva, a mother of three Sickle cell kids. Growing up I totally disagreed with couples with genotype As getting married. As a nurse, I always advice couples...reactions2replies
Lab-Grown Blood Research and Sickle Cell Disease...In late 2022, for the first time, scientists transfused lab-grown red blood cells into a person who was not the original cell donor. This exciting clinical trial in the UK...reactions1comment
Dreams Unborn...Since we've just wrapped up 2022, it's time to start reflecting on how far we've come. As I think about the last 12 months, I can't help but feel a...reactions4comments
How has race affected your patient journey?...In your opinion, how has bias affected your journey as a patient? How do you think your journey would be different if you were a different race? Share your thoughts...reactions1reply
Building Virtual Community...When I was a child, I wasn’t allowed to have a private email address, let alone any social media accounts. Back then I thought it was unfair as all my...reactions4comments
Preparing for Labor and Delivery with Sickle Cell...My Name is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. In a few short weeks, my family and I will be...reactions1comment
Pain crisis at night time ...Hey warriors. I’m Ezekiel, a 21 year old Nigerian living with SCD and I’ve always wondered if anyone else who’s got SCD suffers from midnight crisis or is it just...reactions8replies
Donating and Receiving Blood Products...Have you ever donated blood? I haven’t, which probably comes as no surprise. I didn’t always know though, that I couldn’t donate blood. In my mind, I thought there would...reactions3comments
Tips for Parents When Relocating With a Warrior...I am writing this article because I believe there are more parents who experience this. In February of 2022, I moved to Florida from New Jersey because of the weather...reactions1comment
Staying Out of My Head...Hi, my name is Wunmi and I am guilty of constantly living in my head. I'm not a hermit or recluse, I actually live my life as an extrovert but...reactions5comments
Travel Prep with Sickle Cell...My Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. One thing I am very passionate about is advocating and talking...reactions2comments
Do You Consider Sickle Cell a Disability?...So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never heard of this day until recently. A lot...reactions8comments
