Tips for Parents When Relocating With a Warrior...I am writing this article because I believe there are more parents who experience this. In February of 2022, I moved to Florida from New Jersey because of the weather...Reactions0reactionsComments1 comments
Staying Out of My Head...Hi, my name is Wunmi and I am guilty of constantly living in my head. I'm not a hermit or recluse, I actually live my life as an extrovert but...Reactions0reactionsComments5 comments
Travel Prep with Sickle Cell...My Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. One thing I am very passionate about is advocating and talking...Reactions0reactionsComments2 comments
Do You Consider Sickle Cell a Disability?...So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never heard of this day until recently. A lot...Reactions0reactionsComments8 comments
I’m here to meet and do more in creating awareness...Awesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become particularly interested in medical awareness, and SCD had...Reactions0reactionsComments3 repliesAwarenessCoping
Will you take our In America survey to share the truth about life with sickle cell? ...There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living with sickle cell disease, we are fielding our...Reactions0reactionsComments1 repliesAwarenessResearch & Clinical Trials
Expectations for the New Year...I think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions, set goals, and change ourselves hence the common...Reactions0reactionsComments3 comments
Stem Cell Donor Experience, Myths, and Facts...Months before the peripheral blood stem cell (PBSC) donation, my brother felt tense, anxious, and a little nervous. The culmination of emotions was brought on by a fear of the...Reactions0reactionsComments1 comments
Living With and Conquering SCD at 50 and Beyond...Hi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days are good and I wake up strong and...Reactions0reactionsComments1 comments
What To Do When a Loved One Is Diagnosed...With a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I look back to 2022 with a grateful feeling...Reactions0reactionsComments3 comments
Hi...Hello everyone, I am new here my name is Ifejesu I am a Nigerian, 19 years old and I have been having pains since I was little. And growing up...Reactions0reactionsComments3 replies
Menopause and Sickle Cell...Many women with sickle cell disease (SCD) worry about how their health will change when they reach menopause. While there is still much to learn about the relationship between SCD...Reactions0reactionsComments1 comments
FeaturedMenstrual Cycles and Menopause ...Women with sickle cell face unique challenges when it comes to hormones and menstrual cycles, with many saying they often trigger crises. With the increase in life expectancy, more and...Reactions0reactionsComments2 repliesSymptoms
A Period of Pain...Recently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the only thing u hear from friends and family...Reactions0reactionsComments1 comments
A Mile in My Shoes...There are 1,760 yards (1.61 km) in a mile and I often imagine if people’s opinions would change if they could participate, watch and feel every 1,760 yards (1.61 km)...Reactions0reactionsComments3 comments
FeaturedI might not reach my potential height ...I think that one of the most depressing thing about being a sickler is living with the fear that you might never grow taller. I'm a secondary school senior and...Reactions0reactionsComments6 repliesCopingTips & Advice
Loneliness...Some people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot, since first being diagnosed with sickle cell. It’s...Reactions0reactionsComments7 comments
Grateful for The Weather in Orlando, Florida...When I moved to Orlando about a year ago, I thought we'd be in bikinis all year round. Nice and warm weather, no hassle with the cold and forever done...Reactions0reactionsComments1 comments
How To Survive Caregiver Burnout...As I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much pride in caring for them because, in the...Reactions0reactionsComments3 comments
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...