Stem Cell Donor Experience, Myths, and Facts...Months before the peripheral blood stem cell (PBSC) donation, my brother felt tense, anxious, and a little nervous. The culmination of emotions was brought on by a fear of the...Reactions0reactionsComments1 comments
Living With and Conquering SCD at 50 and Beyond...Hi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days are good and I wake up strong and...Reactions0reactionsComments1 comments
What To Do When a Loved One Is Diagnosed...With a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I look back to 2022 with a grateful feeling...Reactions0reactionsComments3 comments
Hi...Hello everyone, I am new here my name is Ifejesu I am a Nigerian, 19 years old and I have been having pains since I was little. And growing up...Reactions0reactionsComments3 replies
Menopause and Sickle Cell...Many women with sickle cell disease (SCD) worry about how their health will change when they reach menopause. While there is still much to learn about the relationship between SCD...Reactions0reactionsComments1 comments
FeaturedMenstrual Cycles and Menopause ...Women with sickle cell face unique challenges when it comes to hormones and menstrual cycles, with many saying they often trigger crises. With the increase in life expectancy, more and...Reactions0reactionsComments2 repliesSymptoms
A Period of Pain...Recently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the only thing u hear from friends and family...Reactions0reactionsComments1 comments
A Mile in My Shoes...There are 1,760 yards (1.61 km) in a mile and I often imagine if people’s opinions would change if they could participate, watch and feel every 1,760 yards (1.61 km)...Reactions0reactionsComments3 comments
FeaturedI might not reach my potential height ...I think that one of the most depressing thing about being a sickler is living with the fear that you might never grow taller. I'm a secondary school senior and...Reactions0reactionsComments6 repliesCopingTips & Advice
Loneliness...Some people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot, since first being diagnosed with sickle cell. It’s...Reactions0reactionsComments7 comments
Grateful for The Weather in Orlando, Florida...When I moved to Orlando about a year ago, I thought we'd be in bikinis all year round. Nice and warm weather, no hassle with the cold and forever done...Reactions0reactionsComments1 comments
How To Survive Caregiver Burnout...As I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much pride in caring for them because, in the...Reactions0reactionsComments3 comments
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
Timing is Everything...For many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe to say that the law of attraction works...Reactions0reactionsComments3 comments
Who I Am and Who I Want To Be...I think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from how we portray ourselves to others or how...Reactions0reactionsComments3 comments
The many emotions of living with sickle cell...There are many aspects of sickle cell that bring up strong emotions for warriors. What emotions are you currently feeling and why?...Reactions0reactionsComments3 repliesCopingMental Health
Educational Support for Kids Living With Sickle Cell...It is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the best support from the school. Looking back, I...Reactions0reactionsComments3 comments
Getting Off the Emotional Rollercoaster Ride...The last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and overwhelming. I feel like I’m on a never-ending...Reactions0reactionsComments3 comments
Making Adult Friends...I am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if you’ve read any of my pieces, you know...Reactions0reactionsComments2 comments
The Duality of Caregiving and Caretaking...The moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby, Wunmi. Sickle cell disease (SCD) was not a...Reactions0reactionsComments1 comments
