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...As I continue to foster relationships with fellow advocates, one thing rings true for all of us – we grew up not...

...Have you heard of The Match? Well, it’s the most important day of medical school. The day all 4 years, and all...

...As a parent of a child with sickle cell disease (SCD), it is very important that we know exactly where to get...

...A few weeks ago, I was invited to the Sickle Cell Community Consortium's Leadership Summit in Atlanta. It was the first time...

...The weather is getting warmer and everybody wants to be outside. As the weather continues to get warmer, remember to stay hydrated...

...Pain is the primary reason that people with sickle cell disease (SCD) visit the emergency room. It is an extremely common symptom...

...There are 1,760 yards (1.61 km) in a mile and I often imagine if people’s opinions would change if they could participate...

...Renal medullary carcinoma (RMC) is a rare type of kidney cancer that mostly affects people with sickle cell trait. Most people with...

...Months before the peripheral blood stem cell (PBSC) donation, my brother felt tense, anxious, and a little nervous. The culmination of emotions...

...My little princess has been diagnosed with chronic back pain since the summer of 2021. Every time I think about it or...

...Priapism is a sickle cell complication that many people know nothing about. I understand because priapism is a complication that affects only...

...Sickle cell disease (SCD) often causes problems with your immune system. This makes people with SCD more prone to infections. This includes...

...The hallmark complication of sickle cell disease (SCD) is acute pain. Episodes of acute pain can occur at any time and are...

...A challenging aspect of living with sickle cell disease (SCD) can be finding and keeping a job. People with SCD often miss...

...When you live with sickle cell disease (SCD), it is important to drink plenty of water and other fluids. This helps you...

...Since I got diagnosed with avascular necrosis, I've been asked many times what that means. People want to know what avascular necrosis...

...Remember when I was on my period and nervous about giving blood for the first time? Well, that appointment had to be...

...As a child born in Nigeria, I was incredibly fortunate to have my Aunt-in-law, Dr. Dorothy Esangbedo, as my pediatric physician because...