Dreams Unborn...Since we've just wrapped up 2022, it's time to start reflecting on how far we've come. As I think about the last...reactions4comments
How has race affected your patient journey?...In your opinion, how has bias affected your journey as a patient? How do you think your journey would be different if...reactions1reply
Building Virtual Community...When I was a child, I wasn’t allowed to have a private email address, let alone any social media accounts. Back then...reactions4comments
Preparing for Labor and Delivery with Sickle Cell...My Name is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. In a few...reactions1comment
Pain crisis at night time ...Hey warriors. I’m Ezekiel, a 21 year old Nigerian living with SCD and I’ve always wondered if anyone else who’s got SCD...reactions8replies
Donating and Receiving Blood Products...Have you ever donated blood? I haven’t, which probably comes as no surprise. I didn’t always know though, that I couldn’t donate...reactions3comments
Tips for Parents When Relocating With a Warrior...I am writing this article because I believe there are more parents who experience this. In February of 2022, I moved to...reactions1comment
Staying Out of My Head...Hi, my name is Wunmi and I am guilty of constantly living in my head. I'm not a hermit or recluse, I...reactions5comments
Travel Prep with Sickle Cell...My Name Is Grace, I am a wife, mother, and content creator. I am also a sickle cell warrior. One thing I...reactions2comments
Do You Consider Sickle Cell a Disability?...So apparently December 3rd was International Day of Persons With Disabilities. There really is a day for everything but I had never...reactions8comments
I’m here to meet and do more in creating awareness...Awesome. I’m excited to be here. Nd Esther is my name; I am a practicing physician in Lagos, Nigeria. I have become...reactions3repliesAwarenessCoping
Will you take our In America survey to share the truth about life with sickle cell? ...There are a lot of myths and misconceptions about sickle cell disease. To better understand the patient experience and realities of living...reactions1replyAwarenessResearch & Clinical Trials
Expectations for the New Year...I think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions...reactions3comments
Stem Cell Donor Experience, Myths, and Facts...Months before the peripheral blood stem cell (PBSC) donation, my brother felt tense, anxious, and a little nervous. The culmination of emotions...reactions1comment
Living With and Conquering SCD at 50 and Beyond...Hi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days...reactions1comment
What To Do When a Loved One Is Diagnosed...With a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I...reactions3comments
Hi...Hello everyone, I am new here my name is Ifejesu I am a Nigerian, 19 years old and I have been having...reactions3replies
Menopause and Sickle Cell...Many women with sickle cell disease (SCD) worry about how their health will change when they reach menopause. While there is still...reactions1comment
FeaturedMenstrual Cycles and Menopause ...Women with sickle cell face unique challenges when it comes to hormones and menstrual cycles, with many saying they often trigger crises...reactions2repliesSymptoms
A Period of Pain...Recently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the...reactions1comment
