Changing Healthcare Providers...It seems like that is all I know, CHANGE. Over a period of a few months, I have had to change several...reactionscomments
A Day in the Life of a Sickle Cell Advocate...As a sickle cell advocate, you are sometimes confronted with very difficult situations. For a few months, I also do volunteer work...reactions2comments
An Interview with Andressa Hunsel...Andressa is the author of the children's book Keemaya and The Beach: My Journey Living with Sickle Cell. Inspired by her daughter's...reactionscomments
Sickle Cell Disease: Myths and Misconceptions...Sickle cell disease (SCD) is a genetic disorder that affects red blood cells. A major challenge in treating people with SCD is...
Temperamental Temperatures: Weather and Sickle Cell...The weather in the Midwest is just about as unpredictable as sickle cell pain is. It’s March, so it makes sense that...reactionscomments
Coping With Mental Health: Trauma-Informed Care...Traumatic experiences can be life-changing, and it is well understood that such experiences can have long-term effects. In addition to mental health...reactionscomments
Recognizing Past Challenges and Prioritizing My Mental Health...Content Warning: This article discusses abuse and suicidal thoughts. If you or a loved one are experiencing suicidal thoughts, please text or...reactions5comments
Elle Cole...Elle Cole empowers moms and advocates for children with sickle cell disease. She is a mom of twin daughters, one of whom...
Lena Harvey...Lena Harvey hails from the heartland, having been born in Chicago, IL and raised in Indianapolis, Indiana. In 1989, at the age...
Finding Credible Health Information...There is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Questioning Yourself?...A lot of things go through my mind. Especially now that I’m stuck on crutches due to vascular necrosis. I ask myself...reactions4comments
Rebuilding My Confidence With AVN...I believe everyone living with sickle cell disorder has an idea of what avascular necrosis is. Even if you have not experienced...reactions3comments
Five Things I Wish I Knew Before the Transplant...I've said it about a million times, I'm happy I participated in a clinical trial and got a second chance at living...reactions1comment
Prioritizing Self-Care After Transplant...Undergoing a transplant is a difficult process for children and adults because each stage - from conditioning to stem cell infusion, and...reactions1comment
Gallstones and Sickle Cell Disease...People with sickle cell disease (SCD) often experience gallstones. These are solid, rock-like structures that form in the gallbladder. The condition is...
Traveling with Sickle Cell Disease...For many people, traveling is an important way to relax and explore life. However, for people with sickle cell disease (SCD), traveling...
Delayed Puberty and Sickle Cell Disease...Many teenagers with sickle cell disease (SCD) experience developmental delays because of anemia. Boys and girls with sickle cell anemia may see...
Ask the Advocates: Rare Disease Day...Rare Disease Day® is celebrated on the last day of February every year. This year, it falls on February 28, 2022. This...reactionscomments
Living Within My Means as a Warrior...I believe I was born to be rich. I can tell by the size of my dreams and aspirations. I set goals...reactions6comments
A Close Encounter With COVID-19...As soon as you turn on the television you are confronted with the rising COVID-19 cases trend. This is not only in...reactionscomments
