Finding Joy When You Have Sickle Cell Disease...Hi All, my name is Grace. I am a wife, mother and I work as a full-time content creator. I also am living with sickle cell disease. Sickle cell disease...reactionscomments
My Experience With Priapism...Priapism is a sickle cell complication that many people know nothing about. I understand because priapism is a complication that affects only male sickle cell warriors. I was 17 or...reactions8comments
Do you know any Ridiculous Myths about Sickle Cell...What are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...reactions11repliesAwareness
How Sickle Cell Affects My Social Life...Sickle cell affects all parts of a patient's life: Finances, love, and our work, school and social lives. For me, this started when I was barely 2 years old. Kids...reactionscomments
Finding Empowerment Through Writing on a Tough Day...Today was really overwhelming. Being a med-student is hard. Not just because of the insane amount of material or the long days put into studying and even longer working hours...reactions1comment
What Triggers a Pain Crisis?...Hi All, my name is Grace. I am a wife, mother and I work as a full-time content creator. I also am living with sickle cell disease. We all know...reactionscomments
Things I Never Signed Up For...It has been a rollercoaster of emotions and trauma since childhood. As I little girl I never understood why things I didn't sign up for would come my way. I...reactions3comments
My Health...Three ago I had acute chest syndrome and it was like that was the end of my life. I felt I was dying inside, couldn't breath, was on oxygen for...reactions1comment
Sickle Cell and PTSD...Having a chronic illness is not easy at all and I know that a lot of us have been through some traumatic experiences. It got me thinking about post-traumatic stress...reactions1comment
How I Discovered Cannabis for Pain...I wish I knew about cannabis years ago, it would have saved me from a lot of stress. Truth is, ever since I started using it, I’ve seen changes in...reactions2comments
WHAT MAKES ME A WARRIOR...I am a warrior because I am happy and live my best life even though sickle cell gets in the way too many times. What is your warrior phrase? WHAT...reactions3repliesCoping
Universal Coverage and Sickle Cell Disease...Sickle cell disease is the world’s most common heritable blood disorder and arguably one of the most racially polarizing diseases that exist today. Unfortunately, sickle cell disease is also one...reactions3comments
Advocating for Yourself in the Emergency Room...Dr. Simone Eastman Uwan (known to the sickle cell community as Dr. Simone) was diagnosed with sickle cell disease in college, even though she had symptoms all her life. Her...reactions1comment
What Is Sickle Cell Anemia?...Sickle cell anemia (Hbss) is a condition of the red blood cells. It is part of a group of disorders called sickle cell disease. Sickle cell anemia is the most...reactionscomments
Feeling judged?...Have you ever been told by your loved ones or strangers that you’re sick because you’re not spiritual enough? What was your reaction?...reactions8repliesFriends & FamilyAwareness
Dancing in the Rain...I love dancing in the rain. I think it started when I first watched Dirty Dancing or maybe Singing in the Rain. Either way, something about when it’s raining enough...reactions1comment
Traveling and Retail therapy ...I enjoy traveling and seeing the world and seeing what other states have to offer. I have visited several already traveling either on a plane or anorak. I also enjoy...reactions3replies
Pregnancy, Motherhood & Accepting the Limits of Sickle Cell...Pregnancy for me was an exciting time. It did not start with the usual morning sickness and discomfort that most people complain about. In fact, I did not even know...reactionscomments
Sickle Cell Awareness Month 2021...What are you doing this month to be heard during sickle cell awareness month? This is a great place to share resources and ways to be involved this month....reactions12repliesAwareness
World sickle cell awareness month...I am so excited about world sickle cell awareness month.. Can’t wait to experience the power of all you amazing warriors.. it’s going to be so colorful . I can...reactionsrepliesAwareness
