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...I've said it about a million times, I'm happy I participated in a clinical trial and got a second chance at living...

...Undergoing a transplant is a difficult process for children and adults because each stage - from conditioning to stem cell infusion, and...

...Rare Disease Day® is celebrated on the last day of February every year. This year, it falls on February 28, 2022. This...

...I believe I was born to be rich. I can tell by the size of my dreams and aspirations. I set goals...

...As soon as you turn on the television you are confronted with the rising COVID-19 cases trend. This is not only in...

...When I was little, and I would get sick, my mother would hardly ever let me skip school. She’d push me to...

...Have you ever wondered why the majority of people living with sickle cell look younger and have a smaller stature than their...

...It is always wise to plan activities way ahead of time. This is supposed to help make the outcome be well planned...

...Surveys show a majority of people in the United States are in favor of legalized marijuana for medical or recreational use. As...

...Each year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good...

...As a frequent solo traveler, I believe the saying ‘catch flights not feelings’ was created just for me. I can definitely say...

...Sometimes I worry that I am living my life in fear. In fear of triggering a sickle cell attack, of not being...

...Telling someone to stay positive is one of the vaguest pieces of advice you can give to someone living with sickle cell...

...I love dancing in the rain. I think it started when I first watched Dirty Dancing or maybe Singing in the Rain...

...Did you know that April is National Minority Health Month? Sickle cell disease is a rare disease that affects mainly Black people...

...Did you know that around 70% of adults with sickle cell disease experience sleep disturbances? Well, I had no idea. I thought...