Averting Cold Weather Crises...The hallmark complication of sickle cell disease (SCD) is acute pain. Episodes of acute pain can occur at any time and are often caused by certain triggers. One of these...reactions2comments
Wunmi Bakare...Wunmi Bakare is a Patient Advocate and stem cell transplant recipient. At 18 months, she was diagnosed with the most severe type of sickle cell disease (SCD), Hemoglobin SS, but...
Comforting Other Parents...Do you recognize this? You are in the hospital with your child, and you get a call from a good friend. As you vent as a parent, you hear “It...reactionscomments
Why Are Family Histories Important?...Which family do you come from? The family that is mute on every medical condition or the family that informs other members of critical information? I have had a number...reactions1comment
Purpose and Perspective...Having sickle cell anemia has given me two things: purpose and perspective. Although I do not believe that my disease defines me or feel particularly limited by it – except...reactions1comment
My Parents and Me...I was one year old when my mom found out I had sickle cell and then in Liberia and then she moved to Belguim and I was 5 when she...reactions1comment
Sickle Cell Vacation Packing List...Hi All, my name is Grace. I am a wife and mother, and I work as a full time content creator. I also am living with sickle cell disease. One...reactions2comments
Staying Positive With Sickle Cell...Telling someone to stay positive is one of the vaguest pieces of advice you can give to someone living with sickle cell. Sometimes, I wonder what it really means to...reactions8comments
The People We Keep in Our Lives...Sickle cell is always up for emergencies. Most of the things that trigger a crisis are things beyond our control. Even though we do our best to avoid getting sick...reactions3comments
Going to Graduate School With Sickle Cell...August 2020, I moved to Houston, Texas to begin my tenure as a graduate student at the University of Houston’s Graduate College of Social Work. I am in the Master...reactions3comments
Caring for a Child With Sickle Cell...Most of the time when we are dealing with sickle cell disease, we are focusing on the pain episodes, sleepless nights, and all the pain medications. What we often forget...reactions2comments
UNCOMMON TRIGGERS ...Aside weather,climate,stress and anemia which are the main known triggers for crises, what other triggers do you have? Mine is dust and I still don’t know why…....reactions8repliesAwareness
PTSD and SCD...Do you have PTSD from an experience relating to sickle cell? This could be from a pain crisis or an experience in the ER. Share with others in the community...reactions5repliesCopingMental Health
What's the Relationship Between Depression and Sickle Cell Symptoms and Complications?...As a medical student, I'm often tasked with researching the intersection of different health conditions. Recently, I looked into the connection between sickle cell disease and mental health disorders. Vaso-occlusive...reactions1comment
What is Medical PTSD?...Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...reactions2comments
Money Problems Because of Sickle cell?...What are some of the things you need but can't afford because of Sickle cell? Have you ever been in serious money troubles?...reactions2repliesCost
Working With Sickle Cell Disease...After senior high school, I applied for a short course in broadcast journalism. I was so good before I completed the course, my lecturers already recommended me for a broadcasting...reactions4comments
Living With Multiple Chronic Health Conditions...Being a medical student has given me a really interesting perspective into the health care system. I mean even before I was a medical student, I had seen more of...reactions2comments
Finding Friends while having Sicklecell...Is it difficult for you to find or even keep friends while handling sicklecell?...reactions4repliesFriends & Family
Thinking About Dating a Sickle Cell Warrior...The first thing you must check before even considering asking a person with sickle cell out on a date is your genotype. If by now you still don’t know your...reactions2comments