My Journey to Happily Ever After...I’ve always been enamored by Disney’s animation and storytelling, eagerly anticipating the blissful end of the fairy tale. The simple meaning of...reactions5comments
Grief and Denial? ...How do you deal with the loss of a warrior that appeared stronger than you in all aspects? The warrior that encouraged...reactions6repliesMental Health
My First Bankruptcy With SCD...My mum used to complain all the time about hospital bills and the toll it’s taking on the family. At a point...reactions2comments
Sickle Cell's Influence on My Career...Sickle cell can influence the career we choose. It can stop us from going for a particular career perhaps because of the...reactions3comments
My avascular necrosis surgery ...I suffered from a hip pain for six years I use to limp when walking and it became a problem for me...reactions4repliesSurgery
Research Opportunity: Sickle Cell and Intimate Relations...Loma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners...reactions1comment
American Society of Hematology Sickle Cell Patient Care Guidelines...People with sickle cell disease (SCD) often have a lot of pain. SCD pain can happen suddenly and be severe, or it...reactionscomments
Caregiver's Awareness Month...Did you know that November is Caregiver's Awareness Month? Are you a caregiver for someone? What are tips or questions that you...reactionsrepliesTips & AdviceCaregiving
Does cold weather trigger a pain crisis for you?...It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis...reactions9repliesCopingSymptomsWeather
Grieving the Loss of a Warrior...As an SCD patient, you probably have met another warrior who is no more. The fear of death that comes with SCD...reactions1comment
5 Lessons Sickle Cell Has Taught Me...Life is the best teacher, they say. I totally agree with that because in every situation we find ourselves in life, there...reactions10comments
Averting Cold Weather Crises...The hallmark complication of sickle cell disease (SCD) is acute pain. Episodes of acute pain can occur at any time and are...reactions2comments
Wunmi Bakare...Wunmi Bakare is a Patient Advocate and stem cell transplant recipient. At 18 months, she was diagnosed with the most severe type...
Comforting Other Parents...Do you recognize this? You are in the hospital with your child, and you get a call from a good friend. As...reactionscomments
Why Are Family Histories Important?...Which family do you come from? The family that is mute on every medical condition or the family that informs other members...reactions1comment
Purpose and Perspective...Having sickle cell anemia has given me two things: purpose and perspective. Although I do not believe that my disease defines me...reactions1comment
My Parents and Me...I was one year old when my mom found out I had sickle cell and then in Liberia and then she moved...reactions1comment
Sickle Cell Vacation Packing List...Hi All, my name is Grace. I am a wife and mother, and I work as a full time content creator. I...reactions2comments
Staying Positive With Sickle Cell...Telling someone to stay positive is one of the vaguest pieces of advice you can give to someone living with sickle cell...reactions8comments
The People We Keep in Our Lives...Sickle cell is always up for emergencies. Most of the things that trigger a crisis are things beyond our control. Even though...reactions3comments
