The Act of Fitting In...After my mum's death, I had to go and live with my aunty Mabel. Dad enrolled me in a private school called...reactions4comments
My Good and Bad Stress...My many forms of stress include the good and the bad. About a week ago, my motivational stress had me doing too...reactions3comments
How I Keep Track of My Disease...I think I say this so many times that anyone who has read my previous articles is probably tired of me saying...reactionscomments
Multidisciplinary Approaches to Caring for Sickle Cell Patient: An Interview With Dr. Sharon Singh...I sat with Dr. Sharon Singh, my previous pediatric hematologist and the head of the sickle cell team at the University of...reactionscomments
Why My Birthday Is A Big Deal...I’ve always loved birthdays; who doesn’t? As a child it was a day to be spoilt, pampered and dare I say, see...reactions3comments
Benefits of Support Groups for Sickle Cell...A support group is simply a gathering to discuss the challenges of a common issue. Members offer consolation, words of encouragement, and...reactions6comments
My Self-Care Routine...Self-care is very essential to living and growth. Maintaining the stand to choose yourself every time is a real struggle for most...reactions3comments
Speaking with Your Partner about SCD...Finding a spouse or partner can be especially stressful for people with SCD. Different aspects of the disease make dating more complicated...
Changing Healthcare Providers...It seems like that is all I know, CHANGE. Over a period of a few months, I have had to change several...reactionscomments
A Day in the Life of a Sickle Cell Advocate...As a sickle cell advocate, you are sometimes confronted with very difficult situations. For a few months, I also do volunteer work...reactions2comments
An Interview with Andressa Hunsel...Andressa is the author of the children's book Keemaya and The Beach: My Journey Living with Sickle Cell. Inspired by her daughter's...reactionscomments
Sickle Cell Disease: Myths and Misconceptions...Sickle cell disease (SCD) is a genetic disorder that affects red blood cells. A major challenge in treating people with SCD is...
Temperamental Temperatures: Weather and Sickle Cell...The weather in the Midwest is just about as unpredictable as sickle cell pain is. It’s March, so it makes sense that...reactionscomments
Coping With Mental Health: Trauma-Informed Care...Traumatic experiences can be life-changing, and it is well understood that such experiences can have long-term effects. In addition to mental health...reactionscomments
Recognizing Past Challenges and Prioritizing My Mental Health...Content Warning: This article discusses abuse and suicidal thoughts. If you or a loved one are experiencing suicidal thoughts, please text or...reactions5comments
Elle Cole...Elle Cole empowers moms and advocates for children with sickle cell disease. She is a mom of twin daughters, one of whom...
Lena Harvey...Lena Harvey hails from the heartland, having been born in Chicago, IL and raised in Indianapolis, Indiana. In 1989, at the age...
Finding Credible Health Information...There is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Questioning Yourself?...A lot of things go through my mind. Especially now that I’m stuck on crutches due to vascular necrosis. I ask myself...reactions4comments
Rebuilding My Confidence With AVN...I believe everyone living with sickle cell disorder has an idea of what avascular necrosis is. Even if you have not experienced...reactions3comments
