How It Feels to Have SCD...One of the most difficult stages of my life was accepting life as a sickle cell patient. You can imagine how society...reactions1comment
World Sickle cell Day...Yes We are Sickled !and Yes !we are not like everyone else, but,Sickled or Not, We all deserve to be loved and...reactions1replyAwareness
What Is World Sickle Cell Day?...World Sickle Cell Day is celebrated on June 19 every year. Established in 2008 by the United Nations General Assembly, World Sickle...reactionscomments
Living With Sickle Cell: Sadiq's Story...Like parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to...reactions2comments
Overcoming Challenges of Sickle Cell: You Are Not Alone...Sickle cell disease is a blood disorder that affects many African Americans. If you know anybody with sickle cell, please understand the...reactions1comment
World Sickle Cell Day 2021 Hydration Giveaway!...World Sickle Cell Day is coming up on June 19! To celebrate a day that sheds much-needed awareness on sickle cell, we...reactionscomments
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with...reactionscomments
Why My Birthday Is A Big Deal...I’ve always loved birthdays; who doesn’t? As a child it was a day to be spoilt, pampered and dare I say, see...reactions3comments
Transgender Care and Sickle Cell...About 1.4 million adults in the United States identify as transgender. For transgender adults with sickle cell disease (SCD), necessary transgender care...reactionscomments
Freedom to Be a Crescent...For some reason, it is so hard for people living with sickle cell disease (SCD) to speak freely or live freely. Sometimes...reactionscomments
Dr. McGann On The Road To Caring For Sickle Cell Patients...In this video, I am joined by Dr. Patrick McGann from Cincinnati Children's Hospital. Dr. McGann is an academic pediatric hematologist who...reactionscomments
Tips For Dating With Sickle Cell...Hi Guys my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also...reactionscomments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...
Sickle Cell Can Be Lonely...I have had this illness for many years, met many people in my life, and been around my family whilst in pain...reactions2comments
My Journey to Becoming an Advocate...Growing up, sickle cell was always a hindrance in my life. It often limited me from being able to do the things...reactions1comment
Frequently Asked Questions (FAQs) About Sickle Cell...If you live with sickle cell disease (SCD) or are a friend, family member, or caretaker of someone with the condition, you...reactionscomments
