Living With Sickle Cell: Sadiq's Story...Like parents, children with sickle cell disease also have times when they are afraid, insecure, or feel sad. I was introduced to Sadiq, a 20-year-old man who lives in Nigeria...reactions2comments
Overcoming Challenges of Sickle Cell: You Are Not Alone...Sickle cell disease is a blood disorder that affects many African Americans. If you know anybody with sickle cell, please understand the pain and suffering that they may have gone...reactions1comment
World Sickle Cell Day 2021 Hydration Giveaway!...World Sickle Cell Day is coming up on June 19! To celebrate a day that sheds much-needed awareness on sickle cell, we are giving away 1 insulated water bottle with...reactionscomments
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like sickle cell disease...reactionscomments
Why My Birthday Is A Big Deal...I’ve always loved birthdays; who doesn’t? As a child it was a day to be spoilt, pampered and dare I say, see who gives you the best present. But as...reactions3comments
Transgender Care and Sickle Cell...About 1.4 million adults in the United States identify as transgender. For transgender adults with sickle cell disease (SCD), necessary transgender care may be hard to access. Racial, gender, and...reactionscomments
Freedom to Be a Crescent...For some reason, it is so hard for people living with sickle cell disease (SCD) to speak freely or live freely. Sometimes, this happens out of care and love for us...reactionscomments
Dr. McGann On The Road To Caring For Sickle Cell Patients...In this video, I am joined by Dr. Patrick McGann from Cincinnati Children's Hospital. Dr. McGann is an academic pediatric hematologist who does research focusing on improving outcomes for children...reactionscomments
Tips For Dating With Sickle Cell...Hi Guys my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also living with sickle cell disease. Before I got...reactionscomments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect your finances and your family’s. However, there is...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right thing to do – it is the law...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your job done. When this happens, you may find...
Sickle Cell Can Be Lonely...I have had this illness for many years, met many people in my life, and been around my family whilst in pain, but something always remains the same THE LONELINESS!...reactions2comments
My Journey to Becoming an Advocate...Growing up, sickle cell was always a hindrance in my life. It often limited me from being able to do the things that I loved to do consistently due to...reactions1comment
Frequently Asked Questions (FAQs) About Sickle Cell...If you live with sickle cell disease (SCD) or are a friend, family member, or caretaker of someone with the condition, you might have some questions. In this article, we...reactionscomments
Sickle Cell Disease and Oral Health...Sickle cell disease (SCD) often causes problems with your immune system. This makes people with SCD more prone to infections. This includes infections in your mouth. Good oral health is...reactions1comment
The Journey of a Mother of a Sickle Cell Warrior...Dear Readers, My name is Andressa Hunsel Ambrose. I am the mother of Miracle, a sweet little girl of 9 years old and I want to share my journey with...reactionscomments
How Sickle Cell Complications Delayed My Studies...I'm super excited that I get to share my story here with you. As a kid, I was made to believe that people living with sickle cell disorder are always...reactions3comments