Asking for Help & Applying for Disability...I’m not very good at asking for helping when I’m sick. It’s ironic because I’m always seeking ways to help others and not afraid to ask for help when it...reactions5comments
My Crisis Triggers...Paying attention to my triggers was something I wasn’t good at when I was a child. My mum wouldn't let me go and play in the rain, but I didn’t...reactions2comments
Everyone Can Be an Advocate...I chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due to the toll sickle cell had had on...reactions2comments
Stop Doing These Things...Hi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with sickle cell disease. In this video, I am...reactions1comment
A LITTLE PAMPERING...So I've been in and out of the hospital continuously since 2019.. Started with pregnancy complications, then coma, emergency Cs, lung infection, kidney infection and most recent AVN.. Now it's...reactions4comments
What Is a Pain Management Specialist? Should I See One?...Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of reasons. These can include injury, nerve damage, surgery...reactions1comment
I Appreciate You!...I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to talk about those things that impact us who...reactions2comments
2022 World Sickle Cell Day Giveaway Terms and Conditions...Official Rules, Terms and Conditions for the 2022 World Sickle Cell Day Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID...reactionscomments
Can Parents Really Accept Sickle Cell?...As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process look like? During Thanksgiving, we sat at the...reactions5comments
Made Up of More Than Sick Cells...It just dawned on me that I’m more than a warrior. Realizing the number of times I didn’t give up even though I had all the reasons to... Wow, that...reactions3comments
Practicing Self-Care on a Budget...In the past, we have talked about the importance of self-care and shared examples of how you can practice it in your daily life. However, some self-care “treats” are more...reactionscomments
Making Friends and Building Relationships...You’d agree with me that building relationships is an important life skill. In order to survive and become the best we can be, we need to relate with others. Unfortunately...reactions6comments
What I Wish Everyone Knew About Sickle Cell...Let's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is that some people do not have access to...reactions3comments
The Invisibility and Stigma of Chronic Pain...Pain is sometimes called an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain often cannot be seen. Because of this, it is possible for...reactions3comments
Life After Transplant: Understanding the 5 Pillars of Chronic Pain Management...One of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the US National Library of Medicine, chronic pain is...reactions5comments
Ways to Advocate ...In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...reactions1replyAwarenessTips & Advice
Deciding on a Career as a Physician with Sickle Cell...The third year of medical school is all about career exploration. We rotate through many of the major specialties in the field of medicine such as: obstetrics and gynecology (OBGYN)...reactions3comments
My Journey to Happily Ever After...I’ve always been enamored by Disney’s animation and storytelling, eagerly anticipating the blissful end of the fairy tale. The simple meaning of happily ever after is that happiness pervades onwards...reactions5comments
Grief and Denial? ...How do you deal with the loss of a warrior that appeared stronger than you in all aspects? The warrior that encouraged me to share my story passed on and...reactions6repliesMental Health
My First Bankruptcy With SCD...My mum used to complain all the time about hospital bills and the toll it’s taking on the family. At a point, she began to think it was a spiritual...reactions2comments