My Journey to Becoming an Advocate...Growing up, sickle cell was always a hindrance in my life. It often limited me from being able to do the things...reactions1comment
Sickle Cell Crisis...Sickle cell crisis is the most common complication of sickle cell disease (SCD). Acute episodes of pain can occur anywhere in the...
My Fitness Journey With Sickle Cell...Fitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit...reactionscomments
What Sickle Cell Cost Me...Sickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as...reactions4comments
Everyone Can Be an Advocate...I chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due...reactions2comments
Accepting My Disease...I figured out that things were a lot easier once I accepted my disease. We all know sickle cell is something that...reactions1comment
Stigmatisation...I had my first sickle cell crisis at age 16, and the second at age 19. Being in Med school drove me...reactions1comment
May Is National Mental Health Month...May is National Mental Health Month. Join Patient Leader Halimat as she checks in with herself. Making healthy habits is hard. Taking...reactions2comments
Sickle Cell and Living in Denial...I think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live...reactions3comments
Women with Sickle Cell Disease...Sickle cell disease (SCD) is a disorder due to the inheritance of an abnormal hemoglobin gene. This gene is not on the...
Splenic Sequestration and Sickle Cell Disease...Splenic sequestration is a complication of sickle cell disease (SCD). It can lead to severe anemia and is a life-threatening condition. It...
Advocating for Yourself in the Emergency Room...Dr. Simone Eastman Uwan (known to the sickle cell community as Dr. Simone) was diagnosed with sickle cell disease in college, even...reactions1comment
The Importance of Psychosocial Support...Recently, I had to come to terms with the fact that my stem cell transplant was not a finite curative therapy. At...reactionscomments
Sickle Cell and PTSD...Having a chronic illness is not easy at all and I know that a lot of us have been through some traumatic...reactions1comment
I Am a Sickle Cell Warrior...I am a Sickle Cell Warrior. I was diagnosed with this disease at the age of two because at that time, sickle...reactions5comments
A Day in the Life of a Sickle Cell Advocate: Educating Others...Thanks to my sickle cell advocacy work, I have conversations with people all over the world. To see the differences among countries...reactions1comment
Meeting Others With Sickle Cell...As a child, I felt I was the only person in the world with sickle cell anemia. Silly me. It wasn’t completely...reactions8comments
My Mental Health With Sickle Cell Disease...I recently got diagnosed with bipolar disorder. It seems the struggles of living with sickle cell keep piling up over the days...reactions2comments
A Message of Hope...My 10-year-old sickle cell anemic son went through chemotherapy and a stem cell transplant (from his elder brother) in 2019 and now...reactions1comment
Can Yoga Help Manage Sickle Cell Pain?...The pain of sickle cell disease can be felt in both the body and the mind. Not only do people with sickle...reactionscomments
