Can Parents Really Accept Sickle Cell?...As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process look like? During Thanksgiving, we sat at the...reactions5comments
Made Up of More Than Sick Cells...It just dawned on me that I’m more than a warrior. Realizing the number of times I didn’t give up even though I had all the reasons to... Wow, that...reactions3comments
Practicing Self-Care on a Budget...In the past, we have talked about the importance of self-care and shared examples of how you can practice it in your daily life. However, some self-care “treats” are more...reactionscomments
Making Friends and Building Relationships...You’d agree with me that building relationships is an important life skill. In order to survive and become the best we can be, we need to relate with others. Unfortunately...reactions6comments
What I Wish Everyone Knew About Sickle Cell...Let's start with the fact that sickle cell disorder doesn't get enough awareness as it should. What is even more worrying is that some people do not have access to...reactions3comments
The Invisibility and Stigma of Chronic Pain...Pain is sometimes called an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain often cannot be seen. Because of this, it is possible for...reactions3comments
Life After Transplant: Understanding the 5 Pillars of Chronic Pain Management...One of the primary reasons I participated in a stem cell clinical trial was to alleviate my chronic pain. According to the US National Library of Medicine, chronic pain is...reactions5comments
Ways to Advocate ...In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...reactions1replyAwarenessTips & Advice
Deciding on a Career as a Physician with Sickle Cell...The third year of medical school is all about career exploration. We rotate through many of the major specialties in the field of medicine such as: obstetrics and gynecology (OBGYN)...reactions3comments
My Journey to Happily Ever After...I’ve always been enamored by Disney’s animation and storytelling, eagerly anticipating the blissful end of the fairy tale. The simple meaning of happily ever after is that happiness pervades onwards...reactions5comments
Grief and Denial? ...How do you deal with the loss of a warrior that appeared stronger than you in all aspects? The warrior that encouraged me to share my story passed on and...reactions6repliesMental Health
My First Bankruptcy With SCD...My mum used to complain all the time about hospital bills and the toll it’s taking on the family. At a point, she began to think it was a spiritual...reactions2comments
Sickle Cell's Influence on My Career...Sickle cell can influence the career we choose. It can stop us from going for a particular career perhaps because of the stress involved. For me, sickle cell disease has...reactions3comments
My avascular necrosis surgery ...I suffered from a hip pain for six years I use to limp when walking and it became a problem for me. It got to a time I couldn’t walk...reactions4repliesSurgery
Research Opportunity: Sickle Cell and Intimate Relations...Loma Linda University School of Behavioral Health is conducting a study to understand the experiences of sickle cell patients and their partners as they navigate living with sickle cell disease...reactions1comment
American Society of Hematology Sickle Cell Patient Care Guidelines...People with sickle cell disease (SCD) often have a lot of pain. SCD pain can happen suddenly and be severe, or it can be long-term or chronic. Pain is a...reactionscomments
Caregiver's Awareness Month...Did you know that November is Caregiver's Awareness Month? Are you a caregiver for someone? What are tips or questions that you have for other caregivers?...reactionsrepliesTips & AdviceCaregiving
Active 6 days agoDoes cold weather trigger a pain crisis for you?...It's getting cold. This can trigger a pain crisis for some people with sickle cell. Does the cold trigger a pain crisis for you? What are tips for coping or...reactions7repliesCopingSymptomsWeather
Grieving the Loss of a Warrior...As an SCD patient, you probably have met another warrior who is no more. The fear of death that comes with SCD gets worse or deepened anytime such a death...reactions1comment
5 Lessons Sickle Cell Has Taught Me...Life is the best teacher, they say. I totally agree with that because in every situation we find ourselves in life, there is something to learn, and living with sickle...reactions10comments
