2nd Sickle Cell In America Survey...Sickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with...reactionsrepliesAwareness
Alone Isn't Lonely...When sickle cell patients talk about how it affects their love life, most people think it’s an extreme exaggeration. Sadly, this is...reactions3comments
How To Deal With Tough Times...We all face tough times at some point in our lives whether that is going through a financial crisis or dealing with...reactions2comments
Are You Feeling Invisible?...I have not been to the emergency room in years due to the treatment I received years ago. So, consider how I...reactions2comments
Financial Planning for a Transplant...September is Sickle Cell Awareness month so earlier this year, I launched a web project titled "The Diary of a #SickleCellProdigy". This...reactions1comment
Will I Be A Good Parent? A Journey of Acceptance...Have you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math...reactions1comment
Accepting the damage Sickle cell has on my mind....How often do you check on your mental health as an SCD warrior.. Well, I recently got diagnosed with bipolar disorder and...reactions10repliesMental HealthDepression
Active todayHow Do You Advocate for Yourself in the ER?...We all know that going to the ER isn't fun, especially when doctors don't or won't listen. What are ways that you...reactions9repliesTips & Advice
Asking for Help & Applying for Disability...I’m not very good at asking for helping when I’m sick. It’s ironic because I’m always seeking ways to help others and...reactions5comments
My Crisis Triggers...Paying attention to my triggers was something I wasn’t good at when I was a child. My mum wouldn't let me go...reactions2comments
Everyone Can Be an Advocate...I chose to become a "professional" sickle cell advocate around 7 years ago. I was out of work and school, largely due...reactions2comments
Stop Doing These Things...Hi Guys my name is Grace. I am a wife, mother, and I work as a full-time blogger. I also live with...reactions1comment
A LITTLE PAMPERING...So I've been in and out of the hospital continuously since 2019.. Started with pregnancy complications, then coma, emergency Cs, lung infection...reactions4comments
What Is a Pain Management Specialist? Should I See One?...Pain management specialists are doctors who have special training in treating all kinds of pain. Pain can arise for a number of...reactions1comment
I Appreciate You!...I don’t think about doom and gloom every day when I wake up in the morning. As advocates, we do have to...reactions2comments
2022 World Sickle Cell Day Giveaway Terms and Conditions...Official Rules, Terms and Conditions for the 2022 World Sickle Cell Day Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE...reactionscomments
Can Parents Really Accept Sickle Cell?...As a parent, have you ever asked yourself if you have accepted sickle cell disease? If so, what did your acceptance process...reactions5comments
Made Up of More Than Sick Cells...It just dawned on me that I’m more than a warrior. Realizing the number of times I didn’t give up even though...reactions3comments
Practicing Self-Care on a Budget...In the past, we have talked about the importance of self-care and shared examples of how you can practice it in your...reactionscomments
Making Friends and Building Relationships...You’d agree with me that building relationships is an important life skill. In order to survive and become the best we can...reactions6comments
