My Fitness Journey With Sickle Cell...Fitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit. So, I started by setting a fitness goal...Reactions0reactionsComments0 comments
What Sickle Cell Cost Me...Sickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as possible but this doesn’t take away the fact...Reactions0reactionsComments4 comments
May Is National Mental Health Month...May is National Mental Health Month. Join Patient Leader Halimat as she checks in with herself. Making healthy habits is hard. Taking care of ourselves is a full-time job we...Reactions0reactionsComments2 comments
Sickle Cell and Living in Denial...I think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live in Africa. In Nigeria (where I'm from), despite...Reactions0reactionsComments3 comments
How do you deal with the Jaundice that sometimes comes with have SSC?...Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...Reactions0reactionsComments3 repliesAssistive DevicesDiet & NutritionTips & Advice
How do you like to hydrate?...As the weather heats up, hydration becomes even more important. Do you have a favorite way to hydrate? Plain water? Sparkling water? Water with add-ins (like fruit or herbs)? Electrolyte...Reactions0reactionsComments7 repliesDiet & Nutrition
Stigmatisation...I had my first sickle cell crisis at age 16, and the second at age 19. Being in Med school drove me to depression as I was in and out...Reactions0reactionsComments1 comments
The Importance of Psychosocial Support...Recently, I had to come to terms with the fact that my stem cell transplant was not a finite curative therapy. At first, I was angry, then defeated. But as...Reactions0reactionsComments0 comments
A Day in the Life of a Sickle Cell Advocate: Educating Others...Thanks to my sickle cell advocacy work, I have conversations with people all over the world. To see the differences among countries, patients, and doctors is so beautiful. I would...Reactions0reactionsComments1 comments
Meeting Others With Sickle Cell...As a child, I felt I was the only person in the world with sickle cell anemia. Silly me. It wasn’t completely my fault, though. I hadn’t met anyone else...Reactions0reactionsComments8 comments
My Mental Health With Sickle Cell Disease...I recently got diagnosed with bipolar disorder. It seems the struggles of living with sickle cell keep piling up over the days, from one (unsolved) problem to another. I must...Reactions0reactionsComments2 comments
All Things Stem Cell Donation: Insight Into the Stem Cell Harvesting Process...Last year, I launched a web project titled The Diary of a #SickleCellProdigy – a content series that gives audiences a closer look at a patient's life with and without...Reactions0reactionsComments0 comments
My Warrior Daughter Led Me to Advocacy...My journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN) specialist. During the visit, to my surprise, she...Reactions0reactionsComments0 comments
A Message of Hope...My 10-year-old sickle cell anemic son went through chemotherapy and a stem cell transplant (from his elder brother) in 2019 and now he is totally cured from the disease! He...Reactions0reactionsComments1 comments
Mental Health and Sickle Cell...My name is Grace. I am a wife, and mother and I work as a full-time content creator. I also am living with sickle cell disease. I am no stranger...Reactions0reactionsComments0 comments
Decisions...Before medical school, the biggest decisions are deciding if you want to go to medical school, where to apply, and then hopefully, you get into more than one school and...Reactions0reactionsComments2 comments
Frequently Asked Questions About Mental Health...Mental health includes how you think, feel, and act. It can fall on a spectrum and vary for each person. You may have questions about mental health conditions, treatment options...
Let's Talk About Mental Health...When we talk about sickle cell disease (SCD), mental health remains a hot topic. I spoke to a mental health advocate about his attitude towards sickle cell awareness. He said...Reactions0reactionsComments1 comments
Suicide Prevention...If you or someone you know is in crisis or considering suicide, please contact the 988 Suicide & Crisis Lifeline. Call or text 988, call 1-800-273-TALK (8255), or use the...
Coping With Mental Health: Medications...Treating mental health conditions with prescription drugs is common. About 16 percent of American adults take medicine for a mental health condition. It is not necessary to suffer in silence...
