World SCD Day and Juneteenth: Not a Coincidence...World Sickle Cell Day is June 19th, the same day that Juneteenth is commemorated. World Sickle Cell Day was established in 2008 by the United Nations after the World Health...reactionscomments
What are the long term effects of Tramadol?...I want to know the adverse effects of Tramadol....reactions8repliesCaregivingCopingAwareness
A Masterclass in Survival...The act of survival can be summed up in 3 words – never giving up! Survival is deeply rooted in mental, physical, and psychological strength; navigating dark times and unpleasant...reactionscomments
How to Care for Sickle Cell Patients: Interview With Dr. Andrew Campbell...In this video, I am joined by Dr. Andrew Campbell, the Director of the Comprehensive Sickle Cell Program at Children's National Hospital in Washington, D.C. Before his move to Washington...reactions2comments
Aging With Sickle Cell...Hello, I’m A Sickle Cell Warrior & I’m 26yrs Old I Had Gotten Diagnosed When I Was Just 2wks Old Of Being Born. For The Past Year My Sickle Cell...reactions4replies
World Sickle Cell Day 2022 Giveaway!...The World Sickle Cell Day 2022 Giveaway is now closed. Thank you for your interest! World Sickle Cell Day is on June 19, 2022. This is a time for warriors...reactionscomments
Going Through It...It's been a while since I’ve been able to write. I tried several times and think I convinced myself I had writer's block. I didn’t though. The truth is, I...reactionscomments
My Daughter's Climate Triggers: Give Me the Sun!...Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health, but in the end, it turned out to...reactions1comment
My Fitness Journey With Sickle Cell...Fitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit. So, I started by setting a fitness goal...reactionscomments
What Sickle Cell Cost Me...Sickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as possible but this doesn’t take away the fact...reactions4comments
May Is National Mental Health Month...May is National Mental Health Month. Join Patient Leader Halimat as she checks in with herself. Making healthy habits is hard. Taking care of ourselves is a full-time job we...reactions2comments
Sickle Cell and Living in Denial...I think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live in Africa. In Nigeria (where I'm from), despite...reactions3comments
How do you deal with the Jaundice that sometimes comes with have SSC?...Hey, I’m new to this forum stuff so forgive me if this is a stupid question :) - with my sickle cell luckily I don’t have major crisis’ that often...reactions3repliesAssistive DevicesDiet & NutritionTips & Advice
How do you like to hydrate?...As the weather heats up, hydration becomes even more important. Do you have a favorite way to hydrate? Plain water? Sparkling water? Water with add-ins (like fruit or herbs)? Electrolyte...reactions7repliesDiet & Nutrition
Stigmatisation...I had my first sickle cell crisis at age 16, and the second at age 19. Being in Med school drove me to depression as I was in and out...reactions1comment
The Importance of Psychosocial Support...Recently, I had to come to terms with the fact that my stem cell transplant was not a finite curative therapy. At first, I was angry, then defeated. But as...reactionscomments
A Day in the Life of a Sickle Cell Advocate: Educating Others...Thanks to my sickle cell advocacy work, I have conversations with people all over the world. To see the differences among countries, patients, and doctors is so beautiful. I would...reactions1comment
Meeting Others With Sickle Cell...As a child, I felt I was the only person in the world with sickle cell anemia. Silly me. It wasn’t completely my fault, though. I hadn’t met anyone else...reactions8comments
My Mental Health With Sickle Cell Disease...I recently got diagnosed with bipolar disorder. It seems the struggles of living with sickle cell keep piling up over the days, from one (unsolved) problem to another. I must...reactions2comments
All Things Stem Cell Donation: Insight Into the Stem Cell Harvesting Process...Last year, I launched a web project titled The Diary of a #SickleCellProdigy – a content series that gives audiences a closer look at a patient's life with and without...reactionscomments
