Disclosing Your Diagnosis...There is a lot of stigma and misconceptions about sickle cell disease. Have you had trouble telling people you have sickle cell?...reactions1replyTips & AdviceFriends & Family
The Power of Telling Your Story...Recently, Nigerian singer and songwriter Adekunle Gold became a trending topic in the sickle cell community (especially in Nigeria) when he opened...reactions4comments
Learning to Cope With Survivor’s Guilt...Once upon a time, a warrior said to me "I'm sure after your transplant you'll turn your back on the sickle cell...reactions1comment
Unconsciously Irritated...Not long ago I got a call from a friend who I actually consider a sister. She walked around for months with...reactions2comments
FOMO (Feeling of Missing Out)...I have been feeling stuck and out of place a lot lately. There’s this saying about how your 20s are this whirlwind...reactions5comments
Knowledge Is Power...Over the past few weeks, I have met so many new people within the sickle cell community. It is wonderful to see...reactionscomments
Stewed Yams and Chicken...People living with sickle cell disease need to know just how important it is to choose foods that support their health needs...reactions4comments
Sickle Cell and Me...Hi, my name is Sakina. New here. I have always wanted to speak to people who understood my pains. I was diagnosed...reactions4comments
Anything Can Happen...Today was almost a bad day. Maybe it was self-induced anxiety about starting surgery, what is known as the hardest rotation of...reactions2comments
The Pain I Have to Deal With...Content Note: This article alludes to suicide. If you or a loved one are struggling, consider reading our mental health resources page...reactions2comments
Patient concierge ...I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas...reactions5repliesAwarenessCaregivingDiet & Nutrition
Finding a Seat at the Advocacy Table...With the nominations for the #SocialHealthAwards well underway, I started thinking about my own journey to advocacy. It's been far from the...reactionscomments
Discussion - Sickle-Cell/Thalassemia....Does any one wish to discuss any issues to do with any one or all of these conditions?...reactions2repliesAwarenessCopingFriends & Family
A Mom’s Heart Full of Gratitude...It's a feeling of gratitude every day here in Florida. If you've read my previous articles, you'll remember that a few months...reactionscomments
What’s in a Name?...You've heard the popular phrase "Sticks and stones may break my bones but words will never hurt me." But name-calling hurts because...reactionscomments
3 Reasons I Think It’s Important to Take Time Out...Living with sickle cell is a lot in itself. Add to that the lemons life throws at you daily: work, family, friends...reactionscomments
Ask the Advocates: The World’s View of Sickle Cell...Sickle cell disease (SCD) is viewed and treated differently all around the world. Where you are born can determine whether you or...reactionscomments
Preparing for Dating as a Crescent...When most people talk about dating and marriage, it’s about the other person. For me, my mental health, self-care, and happiness come...reactionscomments
Baby Fever...I have baby fever. I am not sure what is about this point in life where all my friends and peers are...reactions2comments
What are your summer triggers?...Are there things that you have to watch out for in the summer time, or is your disease better managed?...reactionsrepliesCopingTips & Advice
