Knowledge Is Power...Over the past few weeks, I have met so many new people within the sickle cell community. It is wonderful to see how many parents and warriors are committed to...reactionscomments
Stewed Yams and Chicken...People living with sickle cell disease need to know just how important it is to choose foods that support their health needs. No supplement or superfood can cure sickle cell...reactions4comments
Sickle Cell and Me...Hi, my name is Sakina. New here. I have always wanted to speak to people who understood my pains. I was diagnosed with sickle cell when I was 10. It...reactions4comments
Anything Can Happen...Today was almost a bad day. Maybe it was self-induced anxiety about starting surgery, what is known as the hardest rotation of medical school – for good reason. The hours...reactions2comments
The Pain I Have to Deal With...Content Note: This article alludes to suicide. If you or a loved one are struggling, consider reading our mental health resources page. I am tired of being a warrior. At...reactions2comments
Patient concierge ...I’m in the process of developing a non profit concierge service for sickle cell patients who get hospitalized. I’m looking for ideas on what services can be provided that would...reactions5repliesAwarenessCaregivingDiet & Nutrition
Finding a Seat at the Advocacy Table...With the nominations for the #SocialHealthAwards well underway, I started thinking about my own journey to advocacy. It's been far from the norm. My perspective on activism and advocacy is...reactionscomments
Discussion - Sickle-Cell/Thalassemia....Does any one wish to discuss any issues to do with any one or all of these conditions?...reactions2repliesAwarenessCopingFriends & Family
A Mom’s Heart Full of Gratitude...It's a feeling of gratitude every day here in Florida. If you've read my previous articles, you'll remember that a few months ago I decided to move from New Jersey...reactionscomments
What’s in a Name?...You've heard the popular phrase "Sticks and stones may break my bones but words will never hurt me." But name-calling hurts because it is an unfair attempt to falsely define...reactionscomments
3 Reasons I Think It’s Important to Take Time Out...Living with sickle cell is a lot in itself. Add to that the lemons life throws at you daily: work, family, friends, and social life (if you have the time...reactionscomments
Ask the Advocates: The World’s View of Sickle Cell...Sickle cell disease (SCD) is viewed and treated differently all around the world. Where you are born can determine whether you or your children are screened at birth. It can...reactionscomments
Preparing for Dating as a Crescent...When most people talk about dating and marriage, it’s about the other person. For me, my mental health, self-care, and happiness come first before anyone else. I think dating is...reactionscomments
Baby Fever...I have baby fever. I am not sure what is about this point in life where all my friends and peers are getting engaged or married, buying homes, and having...reactions2comments
What are your summer triggers?...Are there things that you have to watch out for in the summer time, or is your disease better managed?...reactionsrepliesCopingTips & Advice
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...reactionscomments
Adopting the Mindset of a Pioneer Helped Me Find Healing...As of today, there are more treatment options, curative therapies, clinical trials, and studies to go around. Luckily, I've witnessed what the past ten years alone have yielded. Humans have...reactionscomments
Sickle Cell Families Must Build a Network of Support...After receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts...reactions1comment
Potential Opportunities for Improving Sickle Cell Care...Staying healthy with sickle cell disease (SCD) starts with early diagnosis. Treatment is available, but it can be hard to get all the care you need. The treatments have improved...reactionscomments
My Warrior Daughter Michelle...My daughter Michelle was born on 12/12/1991 with sickle cell disease. Michelle's life was not an easy one, not at all. She started showing symptoms of hand and foot syndrome...reactions3comments
