My Experience With Hydroxyurea...I didn’t know anything about hydroxyurea (hydroxycarbamide) until last year. The government gave out a few for free and I had no...reactions2comments
Learning to Rest...There’s this stereotype of the “strong Black woman.” The one who has been through everything and knocked down over and over again...reactionscomments
Patient Leader Spotlight: Elle Cole...This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers...reactions2comments
Using Public Transportation With Avascular Necrosis...Avascular necrosis is a complication that can cause a temporary physical disability if it happens to the hip joints. This complication has...reactions5comments
A Month to Make a Change...September 1 marks the beginning of Sickle Cell Awareness Month! Our theme for this year is "Change Makers of Sickle Cell," so...reactions1comment
Awareness Month Forum: Be A Change Maker...For the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and...reactions3repliesAwareness
50 and Still Here...I am a 50-year-old biracial female diagnosed with sickle cell. I have had pain crises, had my heart stopped twice, and I...reactions2comments
2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway...The 2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway is now closed. Thank you for your interest! For Sickle Cell Awareness...reactionscomments
In America: Results From Our 2nd Survey...In early 2022, we conducted our annual Sickle Cell In America Survey, where 125 Sickle-Cell.com community members in the United States shared...reactionscomments
Balancing Work and Health...Last week, I combed through social media in search of content ideas and stumbled across a young woman (Instagram - @frelletheshelle) who recently...reactions1comment
Sickle Cell and Mood Swings...There are the days I feel alive and the days I don’t. Sometimes in a day, I could be both. Unfortunately, not...reactionscomments
Back To School With Sickle Cell Disease...The new school year is now upon us. For the parents of children with sickle cell disease, it means we have to...reactionscomments
Mourn With a Purpose: Channeling Sickle Cell Grief Into Advocacy...The loss of quality of life is a term that has been used in the context of a grieving person. The loss...reactions3comments
Paying Attention To Body Language...When you hear the phrase "body language," you immediately think of non-verbal cues that we use to communicate: crossed arms, head movements...reactions3comments
Overcoming the Fear of the Future...It feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming...reactions5comments
How has a shorter life expectancy impacted you?...A fellow warrior wrote a great article this week about life expectancy. Has this part of your disease changed the way you...reactions2repliesCoping
Living Beyond 50 with Sickle Cell...Hello fellow warriors and caregivers. My name is Trish and I live with having HB-SS. My sickle cell was discovered at the...reactions5comments
Halimat Talks Periods, Birth Control, and Sickle Cell...This past March, Halimat sat down to have a conversation with herself in honor of Women's History Month and International Women's Day...reactionscomments
A Life Worth Living: How a Shorter Life Expectancy Affected Me...Editor’s note: As of September 2024, Oxbryta® (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns...reactions3comments
Sickle Cell Disease Speaks All Languages...Thanks to the Health Union, I was able to attend and speak during the sickle cell event in my home country, Suriname...reactionscomments
