Educational Support for Kids Living With Sickle Cell...It is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the...reactions3comments
Getting Off the Emotional Rollercoaster Ride...The last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and...reactions3comments
Making Adult Friends...I am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if...reactions2comments
Transitioning from Pediatric to Adult Care...The teen years are an important time for young people with sickle cell disease (SCD). Nine out of 10 young people with...reactionscomments
Infants and Children With Sickle Cell Disease...Sickle cell disease (SCD) is a lifelong inherited condition that affects red blood cells. Normally, red blood cells are round and flexible...
Making Time for Healthcare Appointments...With sickle cell, time is always of the essence. Life is unpredictable but even more so when you have an unpredictable chronic...reactions2comments
Still Kicking It...Hello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter...reactions4comments
We Can Do Hard Things...The one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To...reactions2comments
What Is the Social Health Network?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
4 Tips on Managing My Pain at Home...As someone who lives with sickle cell anemia and who also lives alone, managing a crisis at home has its challenges. Over...reactions1comment
The Secret Life of a Caregiver...One of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain...reactions3comments
A Warrior Nurse's Journey...I’m Grace and I’m a 25 year old third-year nursing student. Whenever I tell people about my condition I'm always met with...reactions3comments
Imposter Syndrome...I’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field...reactions2comments
Going to School with Sickle Cell Disease...At home, it is easier to monitor the needs of children with sickle cell disease (SCD). However, at school, the environment is...
Caring for Someone with Sickle Cell...Taking care of someone with sickle cell disease (SCD) can be both rewarding and challenging. There may be many things to remember...
Back To School With Sickle Cell Disease...The new school year is now upon us. For the parents of children with sickle cell disease, it means we have to...reactionscomments
Dee McGowan...Dee was previously a patient leader on Sickle-Cell.com. Dee has sickle cell anemia (SC), she was diagnosed with sickle cell anemia at...
Untold Truths About Living With Sickle Cell Pain...For many of us, sickle cell disease (SCD) sets precedence for how we show up in our daily lives. It is an...reactions6comments
Avascular Necrosis (AVN) and Sickle Cell...Like other parts of your body, your bones are composed of living cells that require a steady supply of blood to survive...reactionscomments
Balancing Motherhood and Sickle Cell...Hi guys, my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also...reactions1comment
