The Secret Life of a Caregiver...One of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain...reactions3comments
A Warrior Nurse's Journey...I’m Grace and I’m a 25 year old third-year nursing student. Whenever I tell people about my condition I'm always met with...reactions3comments
Imposter Syndrome...I’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field...reactions2comments
Going to School with Sickle Cell Disease...At home, it is easier to monitor the needs of children with sickle cell disease (SCD). However, at school, the environment is...
Caring for Someone with Sickle Cell...Taking care of someone with sickle cell disease (SCD) can be both rewarding and challenging. There may be many things to remember...
Back To School With Sickle Cell Disease...The new school year is now upon us. For the parents of children with sickle cell disease, it means we have to...reactionscomments
Dee McGowan...Dee was previously a patient leader on Sickle-Cell.com. Dee has sickle cell anemia (SC), she was diagnosed with sickle cell anemia at...
Untold Truths About Living With Sickle Cell Pain...For many of us, sickle cell disease (SCD) sets precedence for how we show up in our daily lives. It is an...reactions6comments
Avascular Necrosis (AVN) and Sickle Cell...Like other parts of your body, your bones are composed of living cells that require a steady supply of blood to survive...reactionscomments
Balancing Motherhood and Sickle Cell...Hi guys, my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also...reactions1comment
Supporting Children With Chronic Pain...In my role as a mother and sickle cell advocate, I often talk about acceptance. It starts with accepting the illness, after...reactions2comments
My Daughter's Climate Triggers: Give Me the Sun!...Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health...reactions1comment
Will I Be A Good Parent? A Journey of Acceptance...Have you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math...reactions1comment
How Can I Support My Child With Sickle Cell?...In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand...reactions1comment
Mind Mapping & Staying Organized for Hospital Visits...Have you ever caught yourself lying awake in the middle of the night, going back to months ago to find out what...reactionscomments
Comforting Other Parents...Do you recognize this? You are in the hospital with your child, and you get a call from a good friend. As...reactionscomments
Mental and Emotional Health With Sickle Cell: Finding Support...We all know that sickle cell affects various parts of the body, but one thing I feel we need is more discussion...reactions1comment
Sickle Cell Families Must Build a Network of Support...After receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult...reactions1comment
Caring for a Child With Sickle Cell...Most of the time when we are dealing with sickle cell disease, we are focusing on the pain episodes, sleepless nights, and...reactions2comments
Hematologist Talks Stigma and Advocacy...Recently, Halimat, a fourth-year medical student with sickle cell anemia, sat down with Dr. Titilope Fasipe to talk all things sickle cell...reactions2comments
