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My Travel Check List...Traveling abroad used to make me nervous. The feeling of 'have I packed everything?' is a bit more intense when you have...reactions1comment
Expectations for the New Year...I think that there is a kind of unconscious pressure that comes with the new year. We are expected to have resolutions...reactions3comments
My Top Three Tips On Dating...Dating can be nerve-racking in general. Add an invisible, chronic disability into the mix and you have a concoction of the most...reactions1comment
Recovering from Heart Break...I have a broken heart. It’s crazy because I genuinely thought I was done with those. I thought I had met and...reactions4comments
Living With and Conquering SCD at 50 and Beyond...Hi, my name is zylix ...I was diagnosed with SCD at age one and since then it hasn't been easy. Some days...reactions1comment
What To Do When a Loved One Is Diagnosed...With a proud feeling and happy heart, I wish our sickle cell community a healthy, positive, loving, and beautiful new year. I...reactions3comments
A Period of Pain...Recently I noticed that I do have a crisis when I am on my period. Like, this happens every month. And the...reactions1comment
My Warrior Daughter Led Me to Advocacy...My journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN)...reactionscomments
Sickle Cell Can Be Lonely...I have had this illness for many years, met many people in my life, and been around my family whilst in pain...reactions2comments
Loneliness...Some people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot...reactions7comments
The Power of Telling Your Story...Recently, Nigerian singer and songwriter Adekunle Gold became a trending topic in the sickle cell community (especially in Nigeria) when he opened...reactions4comments
How To Survive Caregiver Burnout...As I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much...reactions3comments
Timing is Everything...For many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe...reactions3comments
Working on My Fitness...The best my health has ever been was in D.C., before starting medical school. I mean, there are lots of reasons why...reactions3comments
Who I Am and Who I Want To Be...I think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from...reactions3comments
A Fireside Chat With Pain...For the last two years, I've suffered in silence because as a transplant recipient, a common misconception is that my life is...reactions5comments
The Duality of Caregiving and Caretaking...The moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby...reactions1comment
Healthcare Providers and Sickle Cell Disease...Sickle cell disease (SCD) is a group of genetic red blood cell disorders. Most of the time, SCD is treated by doctors...