My Brother, My Hero....I don't remember a world without sickle cell in it. My older brother had it for almost 41 years before he passed in 2006. He managed to marry and have...reactions7comments
Patient Leader Spotlight: Jenica Leah...This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate and...reactionscomments
How to Recover From a Setback...Last week, some bad news blindsided me. As soon as I hung up the phone, I wailed and the intense wave of emotions felt like a tsunami hitting land, pushing...reactions3comments
Patient Leader Spotlight: Andressa Hunsel...This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate, caregiver...reactionscomments
My Experience With Hydroxyurea...I didn’t know anything about hydroxyurea (hydroxycarbamide) until last year. The government gave out a few for free and I had no idea. Maybe because I stopped looking for a...reactions2comments
Learning to Rest...There’s this stereotype of the “strong Black woman.” The one who has been through everything and knocked down over and over again but still gets back up. She thrives through...reactionscomments
Patient Leader Spotlight: Elle Cole...This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate, caregiver...reactions2comments
Using Public Transportation With Avascular Necrosis...Avascular necrosis is a complication that can cause a temporary physical disability if it happens to the hip joints. This complication has affected my left hip and in about 4...reactions5comments
A Month to Make a Change...September 1 marks the beginning of Sickle Cell Awareness Month! Our theme for this year is "Change Makers of Sickle Cell," so we will be highlighting warriors in the community...reactions1comment
Awareness Month Forum: Be A Change Maker...For the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and make a change for future generations. What is...reactions3repliesAwareness
50 and Still Here...I am a 50-year-old biracial female diagnosed with sickle cell. I have had pain crises, had my heart stopped twice, and I feel the pain of my disease on a...reactions2comments
2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway...The 2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway is now closed. Thank you for your interest! For Sickle Cell Awareness Month this year, we are highlighting warriors in...reactionscomments
In America: Results From Our 2nd Survey...In early 2022, we conducted our annual Sickle Cell In America Survey, where 125 Sickle-Cell.com community members in the United States shared their experiences on symptoms, pain management, and treatment...reactionscomments
Balancing Work and Health...Last week, I combed through social media in search of content ideas and stumbled across a young woman (Instagram - @frelletheshelle) who recently participated in a bone marrow transplant at the...reactions1comment
Sickle Cell and Mood Swings...There are the days I feel alive and the days I don’t. Sometimes in a day, I could be both. Unfortunately, not everyone can tolerate the mood swings of others...reactionscomments
Back To School With Sickle Cell Disease...The new school year is now upon us. For the parents of children with sickle cell disease, it means we have to finish our preparing for school "list". Reminders for...reactionscomments
Mourn With a Purpose: Channeling Sickle Cell Grief Into Advocacy...The loss of quality of life is a term that has been used in the context of a grieving person. The loss of quality of life for a grieving person...reactions3comments
Paying Attention To Body Language...When you hear the phrase "body language," you immediately think of non-verbal cues that we use to communicate: crossed arms, head movements, eye behavior, and facial expressions. That's not the...reactions3comments
Overcoming the Fear of the Future...It feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming fast. I haven't really sat down to think...reactions5comments
How has a shorter life expectancy impacted you?...A fellow warrior wrote a great article this week about life expectancy. Has this part of your disease changed the way you live your life? Are you more daring? Do...reactions2repliesCoping