Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who bring you engaging, accurate information about living with...
Don’t Try to Fit in...Many times, the one thing most warriors worry about is fitting in. Why can’t I be like this guy or that girl? Why can’t I feel free to live how...reactions1comment
My Superpowers...I have thought about my real, tangible superpowers. Powers that I have developed by wrestling with my health issues. I love all superhero narratives and they usually impart moral lessons...reactions2comments
What Does A Pain Crisis Feel Like?...Having survived 30-plus years of the inner, physical harshness that came with my sickle cell anemia, I have often been asked what a pain crisis feels like. Those who are...reactions2comments
My Brother, My Hero....I don't remember a world without sickle cell in it. My older brother had it for almost 41 years before he passed in 2006. He managed to marry and have...reactions7comments
Patient Leader Spotlight: Jenica Leah...This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate and...reactionscomments
How to Recover From a Setback...Last week, some bad news blindsided me. As soon as I hung up the phone, I wailed and the intense wave of emotions felt like a tsunami hitting land, pushing...reactions3comments
Patient Leader Spotlight: Andressa Hunsel...This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate, caregiver...reactionscomments
My Experience With Hydroxyurea...I didn’t know anything about hydroxyurea (hydroxycarbamide) until last year. The government gave out a few for free and I had no idea. Maybe because I stopped looking for a...reactions2comments
Learning to Rest...There’s this stereotype of the “strong Black woman.” The one who has been through everything and knocked down over and over again but still gets back up. She thrives through...reactionscomments
Patient Leader Spotlight: Elle Cole...This Sickle Cell Awareness Month, we're taking the opportunity to shine a light on some of our community's most influential change makers. This week, we're featuring sickle cell advocate, caregiver...reactions2comments
Using Public Transportation With Avascular Necrosis...Avascular necrosis is a complication that can cause a temporary physical disability if it happens to the hip joints. This complication has affected my left hip and in about 4...reactions5comments
A Month to Make a Change...September 1 marks the beginning of Sickle Cell Awareness Month! Our theme for this year is "Change Makers of Sickle Cell," so we will be highlighting warriors in the community...reactions1comment
Awareness Month Forum: Be A Change Maker...For the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and make a change for future generations. What is...reactions3repliesAwareness
50 and Still Here...I am a 50-year-old biracial female diagnosed with sickle cell. I have had pain crises, had my heart stopped twice, and I feel the pain of my disease on a...reactions2comments
2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway...The 2022 Sickle Cell Awareness Month Change Makers Bundle Giveaway is now closed. Thank you for your interest! For Sickle Cell Awareness Month this year, we are highlighting warriors in...reactionscomments
In America: Results From Our 2nd Survey...In early 2022, we conducted our annual Sickle Cell In America Survey, where 125 Sickle-Cell.com community members in the United States shared their experiences on symptoms, pain management, and treatment...reactionscomments
Balancing Work and Health...Last week, I combed through social media in search of content ideas and stumbled across a young woman (Instagram - @frelletheshelle) who recently participated in a bone marrow transplant at the...reactions1comment
Sickle Cell and Mood Swings...There are the days I feel alive and the days I don’t. Sometimes in a day, I could be both. Unfortunately, not everyone can tolerate the mood swings of others...reactionscomments
Back To School With Sickle Cell Disease...The new school year is now upon us. For the parents of children with sickle cell disease, it means we have to finish our preparing for school "list". Reminders for...reactionscomments
