Sickle Cell Can Be Lonely...I have had this illness for many years, met many people in my life, and been around my family whilst in pain...reactions2comments
Loneliness...Some people have no idea what’s it like to feel so utterly alone in this world. I’ve felt that way a lot...reactions7comments
The Power of Telling Your Story...Recently, Nigerian singer and songwriter Adekunle Gold became a trending topic in the sickle cell community (especially in Nigeria) when he opened...reactions4comments
How To Survive Caregiver Burnout...As I try to overcome survivor's guilt, one upside to life post-transplant is becoming a caregiver to my #SickleCellTribe. I take so much...reactions3comments
Timing is Everything...For many years, I choose to deprioritize my dating life because living with a chronic illness like sickle cell. It's pretty safe...reactions3comments
Working on My Fitness...The best my health has ever been was in D.C., before starting medical school. I mean, there are lots of reasons why...reactions3comments
Who I Am and Who I Want To Be...I think the concept of self is really interesting. And the idea that how we view ourselves can be quite different from...reactions3comments
A Fireside Chat With Pain...For the last two years, I've suffered in silence because as a transplant recipient, a common misconception is that my life is...reactions5comments
The Duality of Caregiving and Caretaking...The moment I was diagnosed with sickle cell anemia, my parents, specifically my father, knew the presumed fate of his 18-month-old baby...reactions1comment
Healthcare Providers and Sickle Cell Disease...Sickle cell disease (SCD) is a group of genetic red blood cell disorders. Most of the time, SCD is treated by doctors...
Educational Support for Kids Living With Sickle Cell...It is sometimes quite a lonely quest when you stand in the middle and believe that your child does not get the...reactions3comments
Getting Off the Emotional Rollercoaster Ride...The last rollercoaster ride I'm on is called the Screaming Tasmanian Devil... the chronic pain edition. This ride can be exhausting and...reactions3comments
Making Adult Friends...I am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if...reactions2comments
Transitioning from Pediatric to Adult Care...The teen years are an important time for young people with sickle cell disease (SCD). Nine out of 10 young people with...reactionscomments
Infants and Children With Sickle Cell Disease...Sickle cell disease (SCD) is a lifelong inherited condition that affects red blood cells. Normally, red blood cells are round and flexible...
Making Time for Healthcare Appointments...With sickle cell, time is always of the essence. Life is unpredictable but even more so when you have an unpredictable chronic...reactions2comments
Still Kicking It...Hello my name is Laura I was diagnosed at 6 months old. I'm an SS. I am 50yrs young with 1 daughter...reactions4comments
We Can Do Hard Things...The one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To...reactions2comments
What Is the Social Health Network?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
4 Tips on Managing My Pain at Home...As someone who lives with sickle cell anemia and who also lives alone, managing a crisis at home has its challenges. Over...reactions1comment
