Potential Opportunities for Improving Sickle Cell CareStaying healthy with sickle cell disease (SCD) starts with early diagnosis. Treatment is available, but it can be hard to get all the care you need. The treatments have improved...reactionscomments
World SCD Day and Juneteenth: Not a CoincidenceWorld Sickle Cell Day is June 19th, the same day that Juneteenth is commemorated. World Sickle Cell Day was established in 2008 by the United Nations after the World Health...reactionscomments
A Masterclass in SurvivalThe act of survival can be summed up in 3 words – never giving up! Survival is deeply rooted in mental, physical, and psychological strength; navigating dark times and unpleasant...reactionscomments
How to Care for Sickle Cell Patients: Interview With Dr. Andrew CampbellIn this video, I am joined by Dr. Andrew Campbell, the Director of the Comprehensive Sickle Cell Program at Children's National Hospital in Washington, D.C. Before his move to Washington...reactions2comments
World Sickle Cell Day 2022 Giveaway!The World Sickle Cell Day 2022 Giveaway is now closed. Thank you for your interest! World Sickle Cell Day is on June 19, 2022. This is a time for warriors...reactionscomments
Going Through ItIt's been a while since I’ve been able to write. I tried several times and think I convinced myself I had writer's block. I didn’t though. The truth is, I...reactionscomments
My Daughter's Climate Triggers: Give Me the Sun!Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health, but in the end, it turned out to...reactions1comment
My Fitness Journey With Sickle CellFitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit. So, I started by setting a fitness goal...reactionscomments
What Sickle Cell Cost MeSickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as possible but this doesn’t take away the fact...reactions4comments
May Is National Mental Health MonthMay is National Mental Health Month. Join Patient Leader Halimat as she checks in with herself. Making healthy habits is hard. Taking care of ourselves is a full-time job we...reactions2comments
Sickle Cell and Living in DenialI think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live in Africa. In Nigeria (where I'm from), despite...reactions3comments
The Importance of Psychosocial SupportRecently, I had to come to terms with the fact that my stem cell transplant was not a finite curative therapy. At first, I was angry, then defeated. But as...reactionscomments
A Day in the Life of a Sickle Cell Advocate: Educating OthersThanks to my sickle cell advocacy work, I have conversations with people all over the world. To see the differences among countries, patients, and doctors is so beautiful. I would...reactions1comment
Meeting Others With Sickle CellAs a child, I felt I was the only person in the world with sickle cell anemia. Silly me. It wasn’t completely my fault, though. I hadn’t met anyone else...reactions8comments
My Mental Health With Sickle Cell DiseaseI recently got diagnosed with bipolar disorder. It seems the struggles of living with sickle cell keep piling up over the days, from one (unsolved) problem to another. I must...reactions2comments
All Things Stem Cell Donation: Insight Into the Stem Cell Harvesting ProcessLast year, I launched a web project titled The Diary of a #SickleCellProdigy – a content series that gives audiences a closer look at a patient's life with and without...reactionscomments
My Warrior Daughter Led Me to AdvocacyMy journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN) specialist. During the visit, to my surprise, she...reactionscomments
Mental Health and Sickle CellMy name is Grace. I am a wife, and mother and I work as a full-time content creator. I also am living with sickle cell disease. I am no stranger...reactionscomments
DecisionsBefore medical school, the biggest decisions are deciding if you want to go to medical school, where to apply, and then hopefully, you get into more than one school and...reactions2comments
Let's Talk About Mental HealthWhen we talk about sickle cell disease (SCD), mental health remains a hot topic. I spoke to a mental health advocate about his attitude towards sickle cell awareness. He said...reactions1comment