Ask the Advocates: The World’s View of Sickle CellSickle cell disease (SCD) is viewed and treated differently all around the world. Where you are born can determine whether you or...reactionscomments
Preparing for Dating as a CrescentWhen most people talk about dating and marriage, it’s about the other person. For me, my mental health, self-care, and happiness come...reactionscomments
Baby FeverI have baby fever. I am not sure what is about this point in life where all my friends and peers are...reactions2comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
Adopting the Mindset of a Pioneer Helped Me Find HealingAs of today, there are more treatment options, curative therapies, clinical trials, and studies to go around. Luckily, I've witnessed what the...reactionscomments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult...reactions1comment
Potential Opportunities for Improving Sickle Cell CareStaying healthy with sickle cell disease (SCD) starts with early diagnosis. Treatment is available, but it can be hard to get all...reactionscomments
World SCD Day and Juneteenth: Not a CoincidenceWorld Sickle Cell Day is June 19th, the same day that Juneteenth is commemorated. World Sickle Cell Day was established in 2008...reactionscomments
A Masterclass in SurvivalThe act of survival can be summed up in 3 words – never giving up! Survival is deeply rooted in mental, physical...reactionscomments
How to Care for Sickle Cell Patients: Interview With Dr. Andrew CampbellIn this video, I am joined by Dr. Andrew Campbell, the Director of the Comprehensive Sickle Cell Program at Children's National Hospital...reactions2comments
World Sickle Cell Day 2022 Giveaway!The World Sickle Cell Day 2022 Giveaway is now closed. Thank you for your interest! World Sickle Cell Day is on June...reactionscomments
Going Through ItIt's been a while since I’ve been able to write. I tried several times and think I convinced myself I had writer's...reactionscomments
My Daughter's Climate Triggers: Give Me the Sun!Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health...reactions1comment
My Fitness Journey With Sickle CellFitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit...reactionscomments
What Sickle Cell Cost MeSickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as...reactions4comments
May Is National Mental Health MonthMay is National Mental Health Month. Join Patient Leader Halimat as she checks in with herself. Making healthy habits is hard. Taking...reactions2comments
Sickle Cell and Living in DenialI think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live...reactions3comments
The Importance of Psychosocial SupportRecently, I had to come to terms with the fact that my stem cell transplant was not a finite curative therapy. At...reactionscomments
A Day in the Life of a Sickle Cell Advocate: Educating OthersThanks to my sickle cell advocacy work, I have conversations with people all over the world. To see the differences among countries...reactions1comment
Meeting Others With Sickle CellAs a child, I felt I was the only person in the world with sickle cell anemia. Silly me. It wasn’t completely...reactions8comments
