Going Through ItIt's been a while since I’ve been able to write. I tried several times and think I convinced myself I had writer's block. I didn’t though. The truth is, I...Reactions0reactionsComments0 comments
My Daughter's Climate Triggers: Give Me the Sun!Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health, but in the end, it turned out to...Reactions0reactionsComments1 comments
My Fitness Journey With Sickle CellFitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit. So, I started by setting a fitness goal...Reactions0reactionsComments0 comments
What Sickle Cell Cost MeSickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as possible but this doesn’t take away the fact...Reactions0reactionsComments4 comments
May Is National Mental Health MonthMay is National Mental Health Month. Join Patient Leader Halimat as she checks in with herself. Making healthy habits is hard. Taking care of ourselves is a full-time job we...Reactions0reactionsComments2 comments
Sickle Cell and Living in DenialI think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live in Africa. In Nigeria (where I'm from), despite...Reactions0reactionsComments3 comments
The Importance of Psychosocial SupportRecently, I had to come to terms with the fact that my stem cell transplant was not a finite curative therapy. At first, I was angry, then defeated. But as...Reactions0reactionsComments0 comments
A Day in the Life of a Sickle Cell Advocate: Educating OthersThanks to my sickle cell advocacy work, I have conversations with people all over the world. To see the differences among countries, patients, and doctors is so beautiful. I would...Reactions0reactionsComments1 comments
Meeting Others With Sickle CellAs a child, I felt I was the only person in the world with sickle cell anemia. Silly me. It wasn’t completely my fault, though. I hadn’t met anyone else...Reactions0reactionsComments8 comments
My Mental Health With Sickle Cell DiseaseI recently got diagnosed with bipolar disorder. It seems the struggles of living with sickle cell keep piling up over the days, from one (unsolved) problem to another. I must...Reactions0reactionsComments2 comments
All Things Stem Cell Donation: Insight Into the Stem Cell Harvesting ProcessLast year, I launched a web project titled The Diary of a #SickleCellProdigy – a content series that gives audiences a closer look at a patient's life with and without...Reactions0reactionsComments0 comments
My Warrior Daughter Led Me to AdvocacyMy journey as a sickle cell advocate started 13 years ago, after my husband and I visited the obstetrics and gynecology (OBGYN) specialist. During the visit, to my surprise, she...Reactions0reactionsComments0 comments
Mental Health and Sickle CellMy name is Grace. I am a wife, and mother and I work as a full-time content creator. I also am living with sickle cell disease. I am no stranger...Reactions0reactionsComments0 comments
DecisionsBefore medical school, the biggest decisions are deciding if you want to go to medical school, where to apply, and then hopefully, you get into more than one school and...Reactions0reactionsComments2 comments
Let's Talk About Mental HealthWhen we talk about sickle cell disease (SCD), mental health remains a hot topic. I spoke to a mental health advocate about his attitude towards sickle cell awareness. He said...Reactions0reactionsComments1 comments
Age Is Just a Number: Confronting Life Expectancy With Sickle CellToday, progress in treating and managing sickle cell disease (SCD) is helping people with the condition live longer than ever before. In the 1970s, the average life expectancy of a...Reactions0reactionsComments0 comments
A Day in the Life of a Sickle Cell Advocate (Part 2): Conversation With a WarriorDo you ever have the feeling that you can't separate your advocate cap from your real life? I often have conversations with patients where I sometimes forget that I'm not...Reactions0reactionsComments2 comments
The Act of Fitting InAfter my mum's death, I had to go and live with my aunty Mabel. Dad enrolled me in a private school called Kay Billie Klear. It was attended by very...Reactions0reactionsComments4 comments
My Good and Bad StressMy many forms of stress include the good and the bad. About a week ago, my motivational stress had me doing too much, as I wanted to repair my vehicle...Reactions0reactionsComments3 comments
Multidisciplinary Approaches to Caring for Sickle Cell Patient: An Interview With Dr. Sharon SinghI sat with Dr. Sharon Singh, my previous pediatric hematologist and the head of the sickle cell team at the University of Michigan Health C.S. Mott Children’s Hospital, to discuss...Reactions0reactionsComments0 comments