A Day in the Life of a Sickle Cell AdvocateAs a sickle cell advocate, you are sometimes confronted with very difficult situations. For a few months, I also do volunteer work for a hospital that focuses exclusively on adults... By Andressa Hunsel4 min readBookmark for laterReactions 0 reactions Comments2 comments
Changing Healthcare ProvidersIt seems like that is all I know, CHANGE. Over a period of a few months, I have had to change several of my healthcare specialists. For me, it takes... By Chesterfield Hall2 min readBookmark for laterReactions 0 reactions Comments0 comments
Temperamental Temperatures: Weather and Sickle CellThe weather in the Midwest is just about as unpredictable as sickle cell pain is. It’s March, so it makes sense that it would be a little cold and I... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Practice Self-CareMy name is Grace, I am a wife and mother, and I work as a full-time content creator. I also live with sickle cell disease. One of the many ways... By Grace Adeyinka1 min readBookmark for laterReactions 0 reactions Comments1 comments
Recognizing Past Challenges and Prioritizing My Mental HealthContent Warning: This article discusses abuse and suicidal thoughts. If you or a loved one are experiencing suicidal thoughts, please text or call National Suicide Prevention Lifeline at 1-800-273-TALK or... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments5 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Mind Mapping & Staying Organized for Hospital VisitsHave you ever caught yourself lying awake in the middle of the night, going back to months ago to find out what went wrong? Or preparing a session with the... By Andressa Hunsel3 min readBookmark for laterReactions 0 reactions Comments0 comments
Working on My FitnessThe best my health has ever been was in D.C., before starting medical school. I mean, there are lots of reasons why this makes sense. I had a steady, though... By Halimat Olaniyan3 min readBookmark for laterReactions 0 reactions Comments3 comments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health is available... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Coping With Mental Health: Trauma-Informed CareTraumatic experiences can be life-changing, and it is well understood that such experiences can have long-term effects. In addition to mental health challenges, past traumatic experiences can lead to other... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Making Time for Healthcare AppointmentsWith sickle cell, time is always of the essence. Life is unpredictable but even more so when you have an unpredictable chronic illness. You never know how much time you... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments2 comments
Rebuilding My Confidence With AVNI believe everyone living with sickle cell disorder has an idea of what avascular necrosis is. Even if you have not experienced it, you must have seen someone or heard... By Abayomi Afolayan4 min readBookmark for laterReactions 0 reactions Comments3 comments
How Can You Care For Me, If You Don't Care About Me?To anyone who may witness me in a pain crisis, please do not judge me in my worst moment. Living with a chronic illness, especially one as painful as sickle... By Lena Harvey3 min readBookmark for laterReactions 0 reactions Comments6 comments
Five Things I Wish I Knew Before the TransplantI've said it about a million times, I'm happy I participated in a clinical trial and got a second chance at living my life without the limitations of sickle cell... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments1 comments
Prioritizing Self-Care After TransplantUndergoing a transplant is a difficult process for children and adults because each stage - from conditioning to stem cell infusion, and recovery - poses a different challenge. A common... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments1 comments
Physical ActivityI like to believe that having sickle cell doesn’t at all limit my potential. That if I really want to do something, then I can. However, I have to say... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments13 comments
Change Makers Bundle Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the Change Makers Bundle Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED... By corenepettit10 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: Rare Disease DayRare Disease Day® is celebrated on the last day of February every year. This year, it falls on February 28, 2022. This day is designed to support those living with... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
6 Health Goals For WarriorsEvery year we promise ourselves that we will take our health seriously and do better with our health but we never really make that change. Sometimes we give up and... By Abayomi Afolayan4 min readBookmark for laterReactions 0 reactions Comments3 comments
Living Within My Means as a WarriorI believe I was born to be rich. I can tell by the size of my dreams and aspirations. I set goals that scare me and keep me awake at... By Rhedd Maya4 min readBookmark for laterReactions 0 reactions Comments6 comments