Rare Disease Day® and Sickle CellThere’s a day to recognize rare diseases like sickle cell disease! In the US, rare diseases are defined as conditions that affect...reactionscomments
Donating Blood Can Support Those Living with Sickle CellSickle cell disease (SCD) is a group of inherited disorders that affect red blood cells. SCD causes red blood cells to harden...reactionscomments
Finding Ways to Enjoy Snow DaysAs a child, I remember getting really excited for snow days. I’d sit in front of my tv waiting for them to...reactionscomments
What to Know When Planning to Have a BabyMost women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of...reactions2comments
Living with an Invisible Illness Like Sickle Cell DiseaseAcute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and...reactions1comment
Staying Healthy in Colder MonthsSo the colder months are coming (depending on where you live) and as we all know the harsh cold temperatures are usually...reactions2comments
Tips for Dealing with UncertaintyPeople with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard...reactions2comments
Clinical Trials as a Treatment OptionWhen you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or...reactionscomments
Is a Clinical Trial Right for Me? 5 Questions to Help You DecideMaking decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in...reactions1comment
Clinical Trial ParticipationEvery clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria)...reactions1comment
Why Wasn't I Chosen for a Clinical Trial?In any clinical trial, participants must meet certain criteria to be eligible to participate. There are two commonly used terms when describing...reactionscomments
Will I Need to Pay to Be in a Clinical Trial?Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous...reactionscomments
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable...reactions1comment
Understanding Clinical TrialsA clinical trial is a research study that is conducted to determine whether a specific medical intervention, such as a treatment, device...reactionscomments
