Making Adult FriendsI am a social butterfly and having sickle cell has only amplified that. I always have something to talk about. And, if...reactions2comments
Transitioning from Pediatric to Adult CareThe teen years are an important time for young people with sickle cell disease (SCD). Nine out of 10 young people with...reactionscomments
Making Time for Healthcare AppointmentsWith sickle cell, time is always of the essence. Life is unpredictable but even more so when you have an unpredictable chronic...reactions2comments
We Can Do Hard ThingsThe one accurate stereotype about sickle cell warriors is how strong we are – though, we should not have to be. To...reactions2comments
What Is the Social Health Network?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
4 Tips on Managing My Pain at HomeAs someone who lives with sickle cell anemia and who also lives alone, managing a crisis at home has its challenges. Over...reactions1comment
The Secret Life of a CaregiverOne of the very first things one learns when introduced to a person with sickle cell disease (SCD) is that a pain...reactions3comments
Imposter SyndromeI’ve been thinking a lot about imposter syndrome lately. Maybe (probably) because I’m applying for residency right now. Residency is the field...reactions2comments
Back To School With Sickle Cell DiseaseThe new school year is now upon us. For the parents of children with sickle cell disease, it means we have to...reactionscomments
Emotional Support Dogs and Sickle Cell DiseaseA couple of weeks ago my princess started to suffer from back pain again. This officially started last year, and it seems...reactions2comments
Untold Truths About Living With Sickle Cell PainFor many of us, sickle cell disease (SCD) sets precedence for how we show up in our daily lives. It is an...reactions6comments
Avascular Necrosis (AVN) and Sickle CellLike other parts of your body, your bones are composed of living cells that require a steady supply of blood to survive...reactionscomments
Balancing Motherhood and Sickle CellHi guys, my name is Grace. I am a wife and mother, and I work as a full-time blogger. I am also...reactions1comment
Supporting Children With Chronic PainIn my role as a mother and sickle cell advocate, I often talk about acceptance. It starts with accepting the illness, after...reactions2comments
My Daughter's Climate Triggers: Give Me the Sun!Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health...reactions1comment
Will I Be A Good Parent? A Journey of AcceptanceHave you ever been scared or anxious about an unknown situation? I bet yes! We have all been anxious about a math...reactions1comment
How Can I Support My Child With Sickle Cell?In my childhood days, anytime I had crises or got sick, my mum would be so emotional. She would hold my hand...reactions1comment
Mind Mapping & Staying Organized for Hospital VisitsHave you ever caught yourself lying awake in the middle of the night, going back to months ago to find out what...reactionscomments
Comforting Other ParentsDo you recognize this? You are in the hospital with your child, and you get a call from a good friend. As...reactionscomments
Mental and Emotional Health With Sickle Cell: Finding SupportWe all know that sickle cell affects various parts of the body, but one thing I feel we need is more discussion...reactions1comment
