Overcoming the Fear of the FutureIt feels kind of surreal that I turned 25 this July. Somehow, I'm reminded that adulthood is coming and it is coming...reactions5comments
Halimat Talks Periods, Birth Control, and Sickle CellThis past March, Halimat sat down to have a conversation with herself in honor of Women's History Month and International Women's Day...reactionscomments
A Life Worth Living: How a Shorter Life Expectancy Affected MeEditor’s note: As of September 2024, Oxbryta® (voxelotor) has been voluntarily withdrawn from the market by the manufacturer due to safety concerns...reactions3comments
Sickle Cell Disease Speaks All LanguagesThanks to the Health Union, I was able to attend and speak during the sickle cell event in my home country, Suriname...reactionscomments
My Treatment Side EffectsAll drugs have side effects. If you are lucky enough, you may never experience them. Unfortunately for me, my body seems to...reactions1comment
Channeling Confidence As An AdvocateLately, I've found myself getting lost in curated content for the disabled community. I admire the confidence, creative voice, storytelling ability, and...reactions7comments
Keeping the Hope AliveOne of the hardest things to do is try to encourage yourself in your worse moments. It’s easy to smile and be...reactions3comments
Presenting on Sickle Cell at ConferencesRecently, I went to the American Society of Hematology’s (ASH) Annual Meeting. It was in Atlanta, and I was only given off...reactions3comments
The Power of Telling Your StoryRecently, Nigerian singer and songwriter Adekunle Gold became a trending topic in the sickle cell community (especially in Nigeria) when he opened...reactions4comments
Learning to Cope With Survivor’s GuiltOnce upon a time, a warrior said to me "I'm sure after your transplant you'll turn your back on the sickle cell...reactions1comment
Unconsciously IrritatedNot long ago I got a call from a friend who I actually consider a sister. She walked around for months with...reactions2comments
FOMO (Feeling of Missing Out)I have been feeling stuck and out of place a lot lately. There’s this saying about how your 20s are this whirlwind...reactions5comments
Knowledge Is PowerOver the past few weeks, I have met so many new people within the sickle cell community. It is wonderful to see...reactionscomments
Stewed Yams and ChickenPeople living with sickle cell disease need to know just how important it is to choose foods that support their health needs...reactions4comments
Anything Can HappenToday was almost a bad day. Maybe it was self-induced anxiety about starting surgery, what is known as the hardest rotation of...reactions2comments
The Pain I Have to Deal WithContent Note: This article alludes to suicide. If you or a loved one are struggling, consider reading our mental health resources page...reactions2comments
Finding a Seat at the Advocacy TableWith the nominations for the #SocialHealthAwards well underway, I started thinking about my own journey to advocacy. It's been far from the...reactionscomments
A Mom’s Heart Full of GratitudeIt's a feeling of gratitude every day here in Florida. If you've read my previous articles, you'll remember that a few months...reactionscomments
What’s in a Name?You've heard the popular phrase "Sticks and stones may break my bones but words will never hurt me." But name-calling hurts because...reactionscomments
3 Reasons I Think It’s Important to Take Time OutLiving with sickle cell is a lot in itself. Add to that the lemons life throws at you daily: work, family, friends...reactionscomments
