What’s in a Name?You've heard the popular phrase "Sticks and stones may break my bones but words will never hurt me." But name-calling hurts because it is an unfair attempt to falsely define... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments0 comments
3 Reasons I Think It’s Important to Take Time OutLiving with sickle cell is a lot in itself. Add to that the lemons life throws at you daily: work, family, friends, and social life (if you have the time... By Jenica Leah1 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Advocates: The World’s View of Sickle CellSickle cell disease (SCD) is viewed and treated differently all around the world. Where you are born can determine whether you or your children are screened at birth. It can... By Editorial Team 8 min readBookmark for laterReactions 0 reactions Comments0 comments
Preparing for Dating as a CrescentWhen most people talk about dating and marriage, it’s about the other person. For me, my mental health, self-care, and happiness come first before anyone else. I think dating is... By Rhedd Maya4 min readBookmark for laterReactions 0 reactions Comments0 comments
Baby FeverI have baby fever. I am not sure what is about this point in life where all my friends and peers are getting engaged or married, buying homes, and having... By Halimat Olaniyan2 min readBookmark for laterReactions 0 reactions Comments2 comments
The 2024 Social Health Awards ProgramWe are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards program recognizing Health Leaders who make a difference... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Adopting the Mindset of a Pioneer Helped Me Find HealingAs of today, there are more treatment options, curative therapies, clinical trials, and studies to go around. Luckily, I've witnessed what the past ten years alone have yielded. Humans have... By Lena Harvey3 min readBookmark for laterReactions 0 reactions Comments0 comments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts... By Elle Cole3 min readBookmark for laterReactions 0 reactions Comments1 comments
Potential Opportunities for Improving Sickle Cell CareStaying healthy with sickle cell disease (SCD) starts with early diagnosis. Treatment is available, but it can be hard to get all the care you need. The treatments have improved... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
World SCD Day and Juneteenth: Not a CoincidenceWorld Sickle Cell Day is June 19th, the same day that Juneteenth is commemorated. World Sickle Cell Day was established in 2008 by the United Nations after the World Health... By Andre Harris2 min readBookmark for laterReactions 0 reactions Comments0 comments
A Masterclass in SurvivalThe act of survival can be summed up in 3 words – never giving up! Survival is deeply rooted in mental, physical, and psychological strength; navigating dark times and unpleasant... By Wunmi Bakare4 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Care for Sickle Cell Patients: Interview With Dr. Andrew CampbellIn this video, I am joined by Dr. Andrew Campbell, the Director of the Comprehensive Sickle Cell Program at Children's National Hospital in Washington, D.C. Before his move to Washington... By Halimat Olaniyan1 min readBookmark for laterReactions 0 reactions Comments2 comments
World Sickle Cell Day 2022 Giveaway!The World Sickle Cell Day 2022 Giveaway is now closed. Thank you for your interest! World Sickle Cell Day is on June 19, 2022. This is a time for warriors... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Going Through ItIt's been a while since I’ve been able to write. I tried several times and think I convinced myself I had writer's block. I didn’t though. The truth is, I... By Jenica Leah3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Daughter's Climate Triggers: Give Me the Sun!Have you ever wondered how it's possible that you have tried for so long to find a solution for your child's health, but in the end, it turned out to... By Andressa Hunsel4 min readBookmark for laterReactions 0 reactions Comments1 comments
My Fitness Journey With Sickle CellFitness is one thing that I have found interest in recently. I decided to invest more time and effort into keeping fit. So, I started by setting a fitness goal... By Abayomi Afolayan4 min readBookmark for laterReactions 0 reactions Comments0 comments
What Sickle Cell Cost MeSickle cell is a thief of joy and happiness. Most patients try to live through it all and smile as much as possible but this doesn’t take away the fact... By Rhedd Maya3 min readBookmark for laterReactions 0 reactions Comments4 comments
May Is National Mental Health MonthMay is National Mental Health Month. Join Patient Leader Halimat as she checks in with herself. Making healthy habits is hard. Taking care of ourselves is a full-time job we... By Halimat Olaniyan1 min readBookmark for laterReactions 0 reactions Comments2 comments
Sickle Cell and Living in DenialI think being in denial that you live with sickle cell is something many warriors can relate to, especially if you live in Africa. In Nigeria (where I'm from), despite... By Abayomi Afolayan3 min readBookmark for laterReactions 0 reactions Comments3 comments
I Said 'Yes' to Acupuncture! Was It Worth It?November of 2021, I found myself in a brand new space, one that was filled with new hope and fresh possibilities. I had just been freshly rejuvenated after starting Oxbryta... By Lena Harvey2 min readBookmark for laterReactions 0 reactions Comments2 comments