Keeping the Hope AliveOne of the hardest things to do is try to encourage yourself in your worse moments. It’s easy to smile and be yourself when you’re not sick or not experiencing...reactions3comments
Presenting on Sickle Cell at ConferencesRecently, I went to the American Society of Hematology’s (ASH) Annual Meeting. It was in Atlanta, and I was only given off 3 days from school, which meant I would...reactions3comments
The Power of Telling Your StoryRecently, Nigerian singer and songwriter Adekunle Gold became a trending topic in the sickle cell community (especially in Nigeria) when he opened up about his struggle with sickle cell disease...reactions4comments
Learning to Cope With Survivor’s GuiltOnce upon a time, a warrior said to me "I'm sure after your transplant you'll turn your back on the sickle cell community." I was honestly speechless! What was so...reactions1comment
Unconsciously IrritatedNot long ago I got a call from a friend who I actually consider a sister. She walked around for months with an unpleasant feeling from a "meeting" I had...reactions2comments
FOMO (Feeling of Missing Out)I have been feeling stuck and out of place a lot lately. There’s this saying about how your 20s are this whirlwind of self-discovery and trial and error. Wow, they...reactions5comments
Knowledge Is PowerOver the past few weeks, I have met so many new people within the sickle cell community. It is wonderful to see how many parents and warriors are committed to...reactionscomments
Stewed Yams and ChickenPeople living with sickle cell disease need to know just how important it is to choose foods that support their health needs. No supplement or superfood can cure sickle cell...reactions4comments
Anything Can HappenToday was almost a bad day. Maybe it was self-induced anxiety about starting surgery, what is known as the hardest rotation of medical school – for good reason. The hours...reactions2comments
The Pain I Have to Deal WithContent Note: This article alludes to suicide. If you or a loved one are struggling, consider reading our mental health resources page. I am tired of being a warrior. At...reactions2comments
Finding a Seat at the Advocacy TableWith the nominations for the #SocialHealthAwards well underway, I started thinking about my own journey to advocacy. It's been far from the norm. My perspective on activism and advocacy is...reactionscomments
A Mom’s Heart Full of GratitudeIt's a feeling of gratitude every day here in Florida. If you've read my previous articles, you'll remember that a few months ago I decided to move from New Jersey...reactionscomments
What’s in a Name?You've heard the popular phrase "Sticks and stones may break my bones but words will never hurt me." But name-calling hurts because it is an unfair attempt to falsely define...reactionscomments
3 Reasons I Think It’s Important to Take Time OutLiving with sickle cell is a lot in itself. Add to that the lemons life throws at you daily: work, family, friends, and social life (if you have the time...reactionscomments
Ask the Advocates: The World’s View of Sickle CellSickle cell disease (SCD) is viewed and treated differently all around the world. Where you are born can determine whether you or your children are screened at birth. It can...reactionscomments
Preparing for Dating as a CrescentWhen most people talk about dating and marriage, it’s about the other person. For me, my mental health, self-care, and happiness come first before anyone else. I think dating is...reactionscomments
Baby FeverI have baby fever. I am not sure what is about this point in life where all my friends and peers are getting engaged or married, buying homes, and having...reactions2comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...reactionscomments
Adopting the Mindset of a Pioneer Helped Me Find HealingAs of today, there are more treatment options, curative therapies, clinical trials, and studies to go around. Luckily, I've witnessed what the past ten years alone have yielded. Humans have...reactionscomments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts...reactions1comment
