FOMO (Feeling of Missing Out)I have been feeling stuck and out of place a lot lately. There’s this saying about how your 20s are this whirlwind of self-discovery and trial and error. Wow, they...Reactions0reactionsComments5 comments
Knowledge Is PowerOver the past few weeks, I have met so many new people within the sickle cell community. It is wonderful to see how many parents and warriors are committed to...Reactions0reactionsComments0 comments
Stewed Yams and ChickenPeople living with sickle cell disease need to know just how important it is to choose foods that support their health needs. No supplement or superfood can cure sickle cell...Reactions0reactionsComments4 comments
Anything Can HappenToday was almost a bad day. Maybe it was self-induced anxiety about starting surgery, what is known as the hardest rotation of medical school – for good reason. The hours...Reactions0reactionsComments2 comments
The Pain I Have to Deal WithContent Note: This article alludes to suicide. If you or a loved one are struggling, consider reading our mental health resources page. I am tired of being a warrior. At...Reactions0reactionsComments2 comments
Finding a Seat at the Advocacy TableWith the nominations for the #SocialHealthAwards well underway, I started thinking about my own journey to advocacy. It's been far from the norm. My perspective on activism and advocacy is...Reactions0reactionsComments0 comments
A Mom’s Heart Full of GratitudeIt's a feeling of gratitude every day here in Florida. If you've read my previous articles, you'll remember that a few months ago I decided to move from New Jersey...Reactions0reactionsComments0 comments
What’s in a Name?You've heard the popular phrase "Sticks and stones may break my bones but words will never hurt me." But name-calling hurts because it is an unfair attempt to falsely define...Reactions0reactionsComments0 comments
3 Reasons I Think It’s Important to Take Time OutLiving with sickle cell is a lot in itself. Add to that the lemons life throws at you daily: work, family, friends, and social life (if you have the time...Reactions0reactionsComments0 comments
Ask the Advocates: The World’s View of Sickle CellSickle cell disease (SCD) is viewed and treated differently all around the world. Where you are born can determine whether you or your children are screened at birth. It can...Reactions0reactionsComments0 comments
Preparing for Dating as a CrescentWhen most people talk about dating and marriage, it’s about the other person. For me, my mental health, self-care, and happiness come first before anyone else. I think dating is...Reactions0reactionsComments0 comments
Baby FeverI have baby fever. I am not sure what is about this point in life where all my friends and peers are getting engaged or married, buying homes, and having...Reactions0reactionsComments2 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Adopting the Mindset of a Pioneer Helped Me Find HealingAs of today, there are more treatment options, curative therapies, clinical trials, and studies to go around. Luckily, I've witnessed what the past ten years alone have yielded. Humans have...Reactions0reactionsComments0 comments
Sickle Cell Families Must Build a Network of SupportAfter receiving the newborn screening results, my husband and I knew our daughter had sickle cell disease. The initial diagnosis is difficult because this is a chronic illness that impacts...Reactions0reactionsComments1 comments
Potential Opportunities for Improving Sickle Cell CareStaying healthy with sickle cell disease (SCD) starts with early diagnosis. Treatment is available, but it can be hard to get all the care you need. The treatments have improved...Reactions0reactionsComments0 comments
World SCD Day and Juneteenth: Not a CoincidenceWorld Sickle Cell Day is June 19th, the same day that Juneteenth is commemorated. World Sickle Cell Day was established in 2008 by the United Nations after the World Health...Reactions0reactionsComments0 comments
A Masterclass in SurvivalThe act of survival can be summed up in 3 words – never giving up! Survival is deeply rooted in mental, physical, and psychological strength; navigating dark times and unpleasant...Reactions0reactionsComments0 comments
How to Care for Sickle Cell Patients: Interview With Dr. Andrew CampbellIn this video, I am joined by Dr. Andrew Campbell, the Director of the Comprehensive Sickle Cell Program at Children's National Hospital in Washington, D.C. Before his move to Washington...Reactions0reactionsComments2 comments
World Sickle Cell Day 2022 Giveaway!The World Sickle Cell Day 2022 Giveaway is now closed. Thank you for your interest! World Sickle Cell Day is on June 19, 2022. This is a time for warriors...Reactions0reactionsComments0 comments