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Forums

Read conversations, start a discussion, and connect with others about sickle cell.

Do you know any Ridiculous Myths about Sickle Cell

What are some of the things people in your community think sickle cell is? I’ll go first.. Here in Ghana, it is called worms.. many people believe that pain crises...

World sickle cell awareness month

I am so excited about world sickle cell awareness month.. Can’t wait to experience the power of all you amazing warriors.. it’s going to be so colorful . I can...

UNCOMMON TRIGGERS

Aside weather,climate,stress and anemia which are the main known triggers for crises, what other triggers do you have? Mine is dust and I still don’t know why…....

Awareness Month Forum: Be A Change Maker

For the month of September, we will be focusing on ways to elevate the voice of those living with sickle cell and make a change for future generations. What is...

Discussion - Sickle-Cell/Thalassemia.

Does any one wish to discuss any issues to do with any one or all of these conditions?...

What are the long term effects of Tramadol?

I want to know the adverse effects of Tramadol....

Mental Health Month

May is Mental Health Month. Has sickle cell disease impacted your mental health? If so, how have you coped with it?...

Women's History Month

What are some unique challenges women with sickle cell face?...

2nd Sickle Cell In America Survey

Sickle cell may be invisible, but everyone's experiences matter. Consider taking this survey to share some of the challenges of living with sickle cell disease: https://bit.ly/31XcN07...

Ways to Advocate

In what ways do you advocate for sickle cell? How did you start your advocacy work, and what tips do you have for others who want to become advocates?...

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