Fatigue and Sickle Cell Disease...Fatigue is a common symptom experienced by children and adults with sickle cell disease (SCD). It is defined as a feeling of...
What to Know When Planning to Have a Baby...Most women with sickle cell disease (SCD) have safe and healthy pregnancies. However, women with SCD do have a higher risk of...reactions2comments
Coping with Long Hospital Stays...As treatments improve, people with sickle cell disease (SCD) are having shorter hospital stays. However, hospitalizations are still commonly needed to treat...
Living with an Invisible Illness Like Sickle Cell Disease...Acute pain and other complications of sickle cell disease (SCD) can be severe. However, this pain is invisible to other people, and...reactions1comment
Symptoms of Sickle Cell Disease...People with sickle cell disease (SCD) have abnormally shaped red blood cells. This can cause symptoms of blocked blood flow and anemia...
Staying Healthy in Colder Months...So the colder months are coming (depending on where you live) and as we all know the harsh cold temperatures are usually...reactions2comments
Glossary of Sickle Cell Disease Terms...Condition characterized by chest pain, cough, fever, and difficulty breathing. ACS is a potentially life-threatening complication of SCD and requires transfusions and...
Jenica Leah...Jenica Leah is an award-winning author and blogger as well as a speaker living with Sickle Cell Anemia. Since being diagnosed with...
Pain and Sickle Cell Disease...Acute and chronic pain are very common for people with sickle cell disease (SCD). Almost 1 in 3 adults with SCD have...
Tips for Dealing with Uncertainty...People with many chronic conditions, including sickle cell disease (SCD), experience “illness uncertainty.” This is the feeling when illness-related events are hard...reactions2comments
Living with Sickle Cell Disease...With improving treatments, people with sickle cell disease (SCD) generally have full lives and can enjoy most activities. Taking steps to control...
Clinical Trials as a Treatment Option...When you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or...reactionscomments
Is a Clinical Trial Right for Me? 5 Questions to Help You Decide...Making decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in...reactions1comment
Clinical Trial Participation...Every clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria)...reactions1comment
Why Wasn't I Chosen for a Clinical Trial?...In any clinical trial, participants must meet certain criteria to be eligible to participate. There are two commonly used terms when describing...reactionscomments
Will I Need to Pay to Be in a Clinical Trial?...Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous...reactionscomments
Symptoms and Complications of Sickle Cell Disease...Sickle cell disease (SCD) is a lifelong illness caused by an abnormal protein in red blood cells. Red blood cells become rigid...
Sickle Cell Disease: Prognosis and Cures...Sickle cell disease (SCD) can cause long-term complications. Most people experience acute and chronic injuries to different organs. This can increase healthcare...
Depression, Anxiety, and Sickle Cell Disease...Symptoms of depression and anxiety are common in people with sickle cell disease (SCD). People with SCD may experience depression and anxiety...
Clinical Trial Terminology...There are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable...reactions1comment
