Community Advocates

In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with sickle cell every day, brings you frequent articles, points of view and advice from leading patient advocates and experts.

Current advocates

Grace Adeyinka

Grace is a Sickle Cell Patient, she was diagnosed with sickle cell anemia at birth and has been a warrior and fighter ever since. Grace had a very difficult childhood due to her sickle cell anemia. During her childhood she suffered many hospitalizations, surgeries, and sickle cell crises. Read more.

Samuel Adeyinka

Sam has a Bachelor of Arts degree in Communication from Kean University and a Master of Social Work degree from Delaware State University. He has served as a School Counselor, supported students with post-secondary counseling, and worked with students in a variety of settings. Read more.

Abayomi Afolayan

My name is Abayomi, a creator, blogger, and writer based in Lagos, Nigeria. I live with sickle cell disorder. A disorder that majorly affects the black race and is usually inherited from both parents. Read more.

Chesterfield Hall

Growing up Chesterfield Hall was very active in sports and martial arts. Chesterfield Hall was diagnosed in 2011 with Sickle Cell Trait by his adult primary care physician. In 2011 he created the Sickle Cell Trait Journal on Facebook to locate more people with sickle cell traits like him. Read more.

André Harris

André Marcel Harris obtained his Bachelor of Social Work (BSW) from Fayetteville State University. At Fayetteville State, he was privileged to study abroad in Shanghai, China. While earning his undergraduate degree, Read more.

Andressa Hunsel

Andressa Hunsel Ambrose is a mother of a warrior, she is a Sickle Cell advocate, author of the children's book “Keemaya and the Beach, My journey living with Sickle Cell” and in her professional life, she is the founder and CEO of Hunsel Business Management Consultancy. Read more.

Jenica Leah

Jenica Leah is an award-winning author and blogger as well as a speaker living with Sickle Cell Anaemia. Since being diagnosed with sickle cell at 6 weeks old, Jenica has battled with the many complications that come with the disorder such as stroke, acute chest syndrome, avascular necrosis in both hips — the list goes on. Read more.

Rhedd Maya

Rhoda Ndo, popularly known as Rhedd Maya or Dat_Ewe_Model is a poet, fashion model, and aspiring actress. She hails from a small town called Ve-Gbodome in the Afadzato South District of the Volta Region, Ghana but lives in Accra. Read more.

Dee McGowan

Dee has sickle cell anemia (SC), she was diagnosed with sickle cell anemia at birth and has been a fighter and sickle cell warrior ever since, Dee tries her very best to radiate joy and hope and live a normal life, without allowing sickle cell to consume her. Read more.

Halimat Olaniyan

My name is Halimat Olaniyan and I have sickle cell anemia. Sickle cell patients are born with their disease and most experience symptoms by 6 months of age, but I didn't have my first symptoms until I was 7 years old. Read more.

Kehinde Salami

39 years old born in Nigeria with sickle cell disease but didn’t find out I had it until I was in my early 20’s. Shamefully my lack of awareness about the condition inspired me not only to want to learn more about sickle cell but to create a platform for other sickle cell patients like myself to have a voice and exchange information. Read more.

Chanel Taylor

Chanel was diagnosed with sickle cell at birth, and require regular blood transfusions. Through her life experiences, she aims to reshape the stereotypes within the sickle cell community. Read more.

Alisha Whynn

Alisha Whynn is a 32-year-old mother with Sickle Cell Anemia. After a life of being in and out of the hospital, Alisha reached her mid-twenties and decided that she wanted to let people know more about her illness. Read more.

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