Pregnancy, Motherhood & Accepting the Limits of Sickle CellPregnancy for me was an exciting time. It did not start with the usual morning sickness and discomfort that most people complain about. In fact, I did not even know...reactionscomments
Sickle Cell Awareness Month 2021We are so excited to participate in National Sickle Cell Awareness Month this year! This month is for all of the strong sickle cell warriors out there. We have activities...reactions5comments
Sickle Cell Awareness Month 2021 GiveawayWe are so excited to participate in National Sickle Cell Awareness Month this year! This month is for all of the strong sickle cell warriors out there. One way that...reactionscomments
Self-Care and CreativitySickle cell can cause feelings of worry and leave you overwhelmed. Finding ways to cope with the emotions and experiences that come with sickle cell can be difficult. Self-care is...reactions1comment
Life Checks: Resiliency and Rule-BreakingKnowing the things that trigger crises is a necessity, you also need to know your limits and be cautious as much as possible not to overdo things. For instance, it’s...reactions2comments
Planning and Preparing for Exercise With Sickle CellExercise is important for improving our well-being as individuals living with sickle cell. Aerobic exercises like walking can help increase the flow of oxygen. You know the lack of oxygen...reactions1comment
What Is It Like to Visit the ER With a Pain Crisis?People living with sickle cell disease (SCD) often experience severe pain and sometimes need treatment in the emergency room. In our 2020 Sickle Cell Disease In America survey, we explored...reactionscomments
3 Things You Shouldn’t Say When Treating Someone With Sickle CellBeing in a crisis that is so bad you’ve had to take yourself to the hospital is not the best feeling in the world. It’s probably happened to many of...reactionscomments
My Airplane EssentialsAs a frequent solo traveler, I believe the saying ‘catch flights not feelings’ was created just for me. I can definitely say I have caught more flights than feelings in...reactionscomments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like sickle cell disease...reactionscomments
Interview With Tiara Brown: Hospital Visits & MoreThe Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tiara Brown, aka @tee_2017, about...reactions1comment
Sickle Cell & MalariaSickle cell trait (SCT) is caused by a gene mutation. This mutation changes a protein (hemoglobin) in red blood cells. SCT is also referred to as HbAS. Those with SCT...reactionscomments
4 Tips on Managing My Pain at HomeAs someone who lives with sickle cell anemia and who also lives alone, managing a crisis at home has its challenges. Over the years, I have been able to get...reactions1comment
Frustrated: Living With A Chronic IllnessHaving a chronic illness can be well, you guessed it – frustrating. For me, the most frustrating part of having sickle cell anemia is never knowing when you’re going to...reactions2comments
Interview With Tiara Brown (AKA @tee_2017)The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tiara Brown, aka @tee_2017, about...reactions1comment
Recovering From a CrisisEvery sickle cell crisis leaves scars, bills, unforgettable experiences, etc. The trauma, pain, fear, and depression that sets in, do not only eat me up, but also drain all the...reactionscomments
My Experience With Avascular NecrosisSince I got diagnosed with avascular necrosis, I've been asked many times what that means. People want to know what avascular necrosis is. In fact, some people living with sickle...reactions4comments
An Interview With Tito (@hersickledjourney)The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tito, aka @hersickledjourney, about her...reactions2comments
A Few Methods I Use To Help Me Get To SleepDid you know that around 70% of adults with sickle cell disease experience sleep disturbances? Well, I had no idea. I thought struggling to get to sleep was a "me...reactions4comments
Finding Natural Remedies & Diet Changes With Sickle CellIt is quite rare that we get told of alternative therapies or natural ways of managing sickle cell. All of my life, I have been told that the only way...reactions2comments
