Life Checks: Resiliency and Rule-BreakingKnowing the things that trigger crises is a necessity, you also need to know your limits and be cautious as much as possible not to overdo things. For instance, it’s...Reactions0reactionsComments2 comments
Planning and Preparing for Exercise With Sickle CellExercise is important for improving our well-being as individuals living with sickle cell. Aerobic exercises like walking can help increase the flow of oxygen. You know the lack of oxygen...Reactions0reactionsComments1 comments
What Is It Like to Visit the ER With a Pain Crisis?People living with sickle cell disease (SCD) often experience severe pain and sometimes need treatment in the emergency room. In our 2020 Sickle Cell Disease In America survey, we explored...Reactions0reactionsComments0 comments
3 Things You Shouldn’t Say When Treating Someone With Sickle CellBeing in a crisis that is so bad you’ve had to take yourself to the hospital is not the best feeling in the world. It’s probably happened to many of...Reactions0reactionsComments0 comments
My Airplane EssentialsAs a frequent solo traveler, I believe the saying ‘catch flights not feelings’ was created just for me. I can definitely say I have caught more flights than feelings in...Reactions0reactionsComments0 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like sickle cell disease...Reactions0reactionsComments0 comments
Interview With Tiara Brown: Hospital Visits & MoreThe Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tiara Brown, aka @tee_2017, about...Reactions0reactionsComments1 comments
Sickle Cell & MalariaSickle cell trait (SCT) is caused by a gene mutation. This mutation changes a protein (hemoglobin) in red blood cells. SCT is also referred to as HbAS. Those with SCT...Reactions0reactionsComments0 comments
4 Tips on Managing My Pain at HomeAs someone who lives with sickle cell anemia and who also lives alone, managing a crisis at home has its challenges. Over the years, I have been able to get...Reactions0reactionsComments1 comments
Frustrated: Living With A Chronic IllnessHaving a chronic illness can be well, you guessed it – frustrating. For me, the most frustrating part of having sickle cell anemia is never knowing when you’re going to...Reactions0reactionsComments2 comments
Interview With Tiara Brown (AKA @tee_2017)The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tiara Brown, aka @tee_2017, about...Reactions0reactionsComments1 comments
Recovering From a CrisisEvery sickle cell crisis leaves scars, bills, unforgettable experiences, etc. The trauma, pain, fear, and depression that sets in, do not only eat me up, but also drain all the...Reactions0reactionsComments0 comments
My Experience With Avascular NecrosisSince I got diagnosed with avascular necrosis, I've been asked many times what that means. People want to know what avascular necrosis is. In fact, some people living with sickle...Reactions0reactionsComments4 comments
An Interview With Tito (@hersickledjourney)The Editorial Team at Sickle-Cell.com is highlighting people in the sickle cell community and their journeys in a series of Instagram interviews. We talked to Tito, aka @hersickledjourney, about her...Reactions0reactionsComments1 comments
A Few Methods I Use To Help Me Get To SleepDid you know that around 70% of adults with sickle cell disease experience sleep disturbances? Well, I had no idea. I thought struggling to get to sleep was a "me...Reactions0reactionsComments2 comments
Finding Natural Remedies & Diet Changes With Sickle CellIt is quite rare that we get told of alternative therapies or natural ways of managing sickle cell. All of my life, I have been told that the only way...Reactions0reactionsComments2 comments
Fear of FlyingDid you know high altitudes are a trigger for sickling? Basically, the higher you go up the less oxygen there is for you to breathe. The human body is amazing...Reactions0reactionsComments1 comments
Writing, My Only Escape From Life With SCDFor many years, writing has been my perfect escape routine. I write about all I feel and think. It is my confidant. When I started, I wasn’t comfortable with sharing...Reactions0reactionsComments3 comments
How I Keep Track of My DiseaseI think I say this so many times that anyone who has read my previous articles is probably tired of me saying it, and that is that sickle cell anemia...Reactions0reactionsComments0 comments
Laboring for Sickle Cell TraitTo labor ceaselessly upon a work unrecognized as to its merits is a difficult task. If you view the etymology of the verb labor, you will find the true meaning...Reactions0reactionsComments0 comments